[Guest]

Hi,

It seems that I may have TLE. My psychiatrist wants me to try an anticonvulsivant that helps for TLE. I am very afraid of all that, but I want so much to be better.

That's all folks.

Sam

 

[Homeskooled]

Take it! They seem to help people with DP but normal EEGs....if you had an abnormal neurologic test, PLEASE listen to your doc and take it! So many people on here wander in the dark for years to find the cause of their DP, never eliciting a positive response from the doc. You may have a clear path out.

Peace
Homeskooled

 

[university girl]

Hey Sam,

Why does your psych believe you may have TLE? I would definately go for lamotrigine with an SSRI if I could but my pscyh won't go that route...yet. Like HS said, go for it!

 

[Guest]

Thanks,

I am scared as hell. Tegretol! :shock:

My psychiatrist tend to think that I have TLE because what I describe (dissociation) sounds like it.

So he decided to try to hard med to see how I react.

Sam

 

[Depersonalized]

I got an EEG appointment to rule out TLE, which also can be in my case.

 

[Guest]

Hi,

How can you see TLE with simple EEG? I have heard it takes more than a EEG to see it!

(I had a EEG, showed slight abnormalities)

Sam

 

[Inflammed]

They said to me that usually it shows on a normal EEG, but somtimes you either have to pass the EEG asleep or on some people they need to be in some form of crisis.

Best thing to do would be to have that test in a deep DPDR state

I just passed the EEG yesterday.
WAiting for the results.

 

[Guest]

Ok, but how can you see TLE in a EEG result?

For me, it showed slight abnormality. The neurologist thought it was anxiety, my psychiatrist said to me that when there is even a slight abnormal EEG, it's because there is something with seizures. He also said that psychiatrists and neurologists don't agree with the EEG thing. He said that neurologists rule out problems easily; and psychiatrists tend to think it's worth it to push the research further.

Sam

 

[Homeskooled]

I agree with the psychiatrist. Now stop obsessing and take the medicine, darn it!

Homeskooled

 

[Guest]

Ok, ok, I understand!

I just wanted to know how they can rule out TLE with a test, because I feel it's kind of bizarre to take an AC (the strongest and most side effets) without really knowing what's wrong with our brain, from a medical point of view.

Really, it's a risk to take, it's not like sweet AE like Neurontin, it's much more harder for the brain, and HS, I am sure you know it.

That's all, I just wanted to know if they have some tests that can show TLE, really. I guess the answer is : no, they have no test, really. So you have to try to see, hun? :?

Sam

Sam

 

[Inflammed]

They can detect Epilepsy in almost all it's form with EEG, there are a few types of EEG too.

It's funny 'caus I just found out one of my sister's friend is studying in that field ! haha...I stole her books :lol:

 

[Guest]

I don't know if it can be something about epilepsy....

I just went to the mall and I realized physically what happens when I feel bad....

My eyes feels like wet, I get 2d vision, and I always feel like there is one eye that is weaker than the other, I feel like semi-blind of one eye.... but I do see! :? It's like a pressure behing one eye. I feel like I have dilated pupils, and derealization feels really bad. These days, I can feel totally confused, like you know, confused, like my mind forget for 2 seconds where I am, I lost orientation, then I realize I lost it, and I feel confused. It didn't make me a lot this before. It makes me afraid to loose all sense of orientation. During this time, or just before, I am not really aware of what is going on.

But my DR stays all the day, but like Uni-g, in busy places I get really disoriented.

Ok,

thanks,

Sam

 

[Depersonalized]

I don't think that any of us has TLE, from what I read it has totally different symptoms and some people find it pleasurable.

 

[Dreamer]

This topic comes up frequently. I believe that what we have here isn't TLE, but it is possible that one day a more sensitive EEG or other device will be able to measure or diagnose our DP/DR.

Also, I have had improvement on two anticonvulsants -- Klonopin which decreased my DP/DR significantly, and Lamictal, which is actually a "mood stabilizer" and has helped with my depression, moodiness, and I "fear the DP/DR less."

I have had no trouble with either med, and have been on both for some time. (Years)

Here is a definition of TLE from

http://www.epilepsyfoundation.org/answerplace/Medical/seizures /syndromes/temporallobe.cfm

---------------------------------------------
Temporal Lobe Epilepsy

"The temporal lobes are the site of one of the most common forms
of epilepsy, characterized by complex partial seizures.

The temporal lobes, one on each side of the head, just above the
ears, are the sites of one of the most common forms of epilepsy.

Complex partial seizures with automatisms (unconscious actions),
such as lip smacking or rubbing the hands together, are the most
common seizures in temporal lobe epilepsy.

Seventy-five percent of patients also experience simple partial
seizures which may include such features as: a mixture of thoughts,
emotions, and feelings that are hard to describe; sudden emergence
of old memories or feelings of strangeness in familiar
surroundings; hallucinations of voices, music, smells, or tastes,
and feelings of unusual fear or joy. While partial seizures
dominate, approximately half the people with temporal lobe epilepsy
have generalized tonic-clonic seizures as well.

The seizures characteristic of temporal lobe epilepsy often begin
in the deeper parts of the temporal lobe (part of the limbic
system) which control emotions and memory. Memory problems may
develop over time in people with this syndrome. Treatment is with
medication or surgery, or in some cases, VNS therapy."

------------------------------------------------- end of article....

I don't believe I have TLE, or any form of epilepsy, but I believe DP/DR to be a perceptual shift/ a "glitch" in the brain. I have DP and DR 24/7.

Also, if you take an anti-convulsant, it doens't mean you have epilepsy. So many meds today are used for various purposes. One friend on the board here takes Neurontin with much relief of his DP/DR. But he really might be described as a person who has GAD, as I have as my primary diagnosis.

DP/DR can come with most if not all mental illnesses, head trauma, tumors, strokes, etc. Many different ways to get DP/DR.

Neurontin for example has recently been used to help women with severe menopausal symptoms. I believe it helps with severe hot flashes and moodiness.

Best,
D

 

[dakotajo]

neurontin is marketed as a "fix all" drug. I think there was a few law suits awhile back about the drug companies over marketing it to doctors. My doctor told me its completely worthless and you could just as well eat dirt.

Joe

 

[Guest]

Thanks D for your reply.

Sam