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Discussion Starter · #1 ·
Well I haven't made a post here in quite sometime so I figured i'd make one because i have a few things I want to say and a few concerns as well.

Its starting to become apparent to me that an actual physical " cure" for DP/DR and everything else is most likely impossible. In a few weeks, it is going to be the ONE YEAR anniversary( which i hate saying because your suppose to apply anniversary's to happy things in most cases) that I have known about whats wrong with me. Over this time span, i have tried many different medications, the only one that seems to help is Klonopin. Currently i am tapering off of Paxil because it really did NOTHING for me, just like every other medication ive tried over the past year. Its really quite depressing.

I honestly have no idea how I make it through each day, i really don't. To be completely honest with everyone, there have been times where I have come to this website in the past few months and have come on this part of the forums and read the posts and felt that they were pathetic and that people constantly post about the same exact thing. But than I realized that I did that for a while and basically its all apart of this scary horrific hell that we have to live with each day.

I remember various people telling me that you have to move on with your life and keep going. Well I have done that, I try to give myself as many distractions as possible, I go out almost every night, I go to school, I work, I have even managed to finally get the music thing going. Yet I still feel miserable. This fact alone is starting to make me think that infact there is no cure, that there is no way to get better, that I will be stuck feeling like this until I am dead. Really I feel like a miserable bastard half the time. Its like at times I don't give a fuck about anything, things just don't faze me.

Anyways, I have a few concerns that I would like to address in this post.

1. This upcomming Monday I will be going to my therapists place where there will be about 10 other therapists or so. I guess they have this group that meets once a month, and what they do is each therapist presents a case and they discuss it and offer suggestions to each other. Well my case has already been presented and they were the ones who suggested the MRI/Brain Scan, which I had done, and everything turned out fine. Well my therapist told me that they wanted to actually start bringing the actual CLIENTS to these meetings and that he was giving me the first opportunity to go. With my therapist, kind of like the last one,it comes down to this. As far as ANXIETY AND DEPRESSION, he knows what to do and how to treat it and what to say etc etc. But when i explain to him the Derealization and such, he is familiar with it in textbook terms etc. But he even told me himself that he doesn't know how to exactly approach dealing with it. He hopes that by me going to this therapist meeting that some of the others there will be able to give some good insight??????? Personally im expecting that I will probably get nothing out of it, but who knows, its worth a shot right????????????? The ironic part of this, is that my FIRST therapist is actually apart of the group and will most likely be there. This kind of leads me to believe that the others might be in the same boat she was when I was going to see her.

2. Unfortunatly my psychiatrist, who I considered to be a very good one, LEFT. He's gone, he was offered a full time job at a big university to teach and he obviously took the opportunity. He was one of the few people who I truly think understood what was going on with me, and if he really didn't he did a hell of a job of making believe that he did. Well a new psychiatrist is taking over his practice, and hes suppose to be very good as well. I think I am going to go see him to see what his deal is. Well my therapist knows all of this and at our last meeting this week, he gave me a suggestion. He suggested that maybe I should go get what they call a SCID Evaluation. Which I guess is the most comprehensive and extensive psychological evalutaion modern psychiatry offers. Apparently it is a 4 hour evaluation from about 10 psychiatrists. And what they do after evaluating you, is send you to a Psychiatrist who they feel fits your needs the most. Has anyone ever had this done here??? Im kind of sceptical of this as well.

The thing that frustrates me so much about this shit, is that if I were say Schizophrenic, or psychotic, Doctors could say OK THIS IS WHAT YOU HAVE TO DO, TAKE THIS MEDICATION, DO THIS AND THIS IS HOW YOU CAN GET BETTER. Noone thus far has been able to do that for me & probably most of you hence the reason I feel like the fuckin oddball of the mental illness world. This here is the big MYSTERY " condition". I mean its obvious that its apart of anxiety & depression but other than that, what is it??????????????

I dunno, this post is gettin long now So i am going to end it, But i just thought i'd tell you that i have about 2 percent of HOPE left that I will recover from WHATEVER IT IS THAT I HAVE???????????????????????

Peace
 

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sb i think its definetly worth going to the meeting....at least youll beable to give your view without everyone just talking about you......i am coming up to my anniversary as well......weird really i honestly thought i would of shaken this off months ago......but oh no.....i am still f**** agroaphobic......still out of it....and now really paranoid that this is it....this is how i am going to be forever :(
 
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Discussion Starter · #3 ·
Hi SB,

I know we feel left out with this horrible feeling, I understans you because I want to see another psychiatrist too. Ijust want to know that any way we call it, it may be only pure anxiety/depression/trauma/obsessions, that's it. And if so, we can get out of this problem. We have to find our own way.

Don't give up, there is hope, many of the people have healed, they aren't here anymore to tell us, because they live their life.

See ya

Cynthia xxx
 
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Discussion Starter · #4 ·
There is another thing that bothers me, I realize that I have been given many opportunies to like lets say better my education and didn't give a fuck because school bored me. That I have good parents and a good home. So why do I feel like this????

Im like I AM FUCKED UP?? but why?? am I really fucked up???

You wanna hear about fucked up???

One of my friends- he's 18, about to be a father, has no job, gets high every single day, messes around with different girls all of the time, basically has no aspirations or motivation, his mom is addicted to Crack, and I just found out from his cousin who is also my friend that, He has had HERPES for like a year or close to it but still managed to get a girl pregnant. THAT IS FUCKED UP

How can what I am going through, be even close?????
 

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I know what your going through,Soul Brotha. You feel angry inside becuase you have no emotions. Hard to explain but if that's how you feel then you'll understand. I am always asking, why me? what did I do? I already had a horrible younger (ages4-7) chilhood then another horrible (9-17) life, so why should I be stuck with this too? didn't I suffer enough?

I think you should do the doctor thing. I think that would be really good thing for you to do. I wish I was givin the oppertunity to do it. I don't think they'll have a medication for DP/DR untill furthur down the road, but in the mean time, take the meds for your depression/anxaity and keep talking.

At least your getting the support you need. I told my mom and she was like, "well, how did you get this? will it ever go away? I bet you were misdiagnosed" I only have you guys that I can talk to about this. Take the chance with the doctors and bring us back the juciey details about how to deal with it!! :wink:

Just remember, we are here for you. I will always be here to talk also (I hardly sleep so I'm up most the night) If you ever need to vent....this is the place. :)
 

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dear soul

since i've been reading your posts you've come a hell of a way. you're working, studying etc. you may not feel ok but you've come such a long way from the state you were in. you sound more depressed to me than anything else at the minute. anti deps don't seem to help you so why not try some natural alternatives, like st johns wort. it's non addictive, cheap etc.
also, i may be wrong here but, i found that using oxazepam(for anxiety) increased my depression. if klonopin is a similar kind of tranquilizer it mightn't be helping your mood.

hope you've got a better boss these days
 
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Discussion Starter · #8 ·
Hi Bro,all of the questions you ask I have also asked.
The thing is it's been over two years for me and still no answers.

What can I say...............don't lose hope etc yep probably is the politically correct approach(not that I disagree with being positive)it's just that sometimes naturally or at least naturally for some of us our skepticism dominates our thinking.

I'm feeling a bit hopeless myself lately so unfortunately I have no words of wisdom.
Same as you,I've tried my best to keep going against all odds at times.

There is always lamactil.Have you tried it?I know one person who swears it takes away their dp.
What about long term therapy.Have to say it's sounds bloody boring but hey a few people have found it did the trick so who knows, maybe?

I honestly wish I had more to options to suggest.

All the best at the meeting........you never know, miracles can happen......so they tell me lol

Cheers Shelly
 
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Discussion Starter · #9 ·
I told my mom and she was like, "well, how did you get this? will it ever go away? I bet you were misdiagnosed" I only have you guys that I can talk to about this.
That sucks (what your Mom said)

You got it from anxiety
 
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Discussion Starter · #10 ·
thanks for the replies guys

but can someone give me some more info on the SCID thing and what do people think about the therapist meeting??? And any other advice

Janine? Dreamer???
 
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Discussion Starter · #12 ·
I agree, it certainly can't hurt. The real truth is that you will probably help THEM more than they can help you, but there's something to be said for that, too.

I just cannot stress this enough: we all are SO focused on "what" specifically is "wrong" with us. It really ultimatley doens't matter if it's anxiety or depression or dp or obsessions or mania or panic. The solutions that work the best are the LONG term therapy treatments, working hard to strengthen the rest of you, working on learning more and more about what you want in life and what scares you in life and where your goals and dreams dont' match up with reality. We also learn where our backgrounds and parents' impressions hamper us, or help us, and where we're stuck in the past and how hard it is to grow up.

if you can do ALL that work, and stick with it....you will be fine. And your symtpoms will be history. other than that, all the meetings in the world arent' going to fix you.

Love,
J
 
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Discussion Starter · #13 ·
^thats alot of work but shes completely right, the cure is inside you! haha its gonna be an adventure finding it .... could take 6 months or could take forever muahahahahaa, find the ring froto... oh man i need a drink haha
 

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SB - I was in the same boat as you, for exactly the same reasons. As you know, I had Cannabis induced DR, (first time around), and 'E' induced DR (second time around), and recovered both times. Even though my life has been a roller-coaster over the following years, the DR/DP itself has NEVER returned. Not even when my wife threw me out and I was homeless. Not even when I heard that my friend had died. NEVER. Panic, anxiety, sure - occassionally, but the DR/DP has NEVER returned. I don't know if I'm just lucky in that respect. I'm certain that you've tried everything I did.

But I think you're asking the wrong question and getting the right answer. Yes, I don't think there is soley a physical cure to DR/DP. It's not as simple as taking a pill for headache. Not at all. I think recovery from DR/DP is a very personal thing....in a way, finding your own personal 'mindset' that switches off the DR/DP cycle. I really think that's the path to finding a cure. In my case, I think, although I'm still not entirely sure, that I just refused to care about the DR/DP sympyoms anymore. I just refused. I think anyway, I'm not sure. It sounds easier said than done. Fortunately for me, this lead to the DR/DP fading away, on both occassions, after about a year. And unfortunately for others, they have yet to find their 'mindset', their 'attitude' or 'approach' maybe, and the DR/DP drags on. But if it CAN fade in me and Janine for instance, then why not you ? I know you doubt this, but so did I at the time. It's a strange kind of blindness, is DR/DP. Recovery, for me, was like learning to live again. But like riding a bike, you never forget.

Either way, you're right. Only you can find the answer, and you will.
 

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SB,

Man...it's been a minute since you posted on here!

Well, since about last Wed/Thurs I have started to feel a little better. But the three weeks prior, I was in HELL. I didn't think I would last much longer. But it lifted some and I have been able to feel pretty good for the last five days or so.

Here is what I think...we have to push and push and push. Sure, it may be so hard sometime and we don't even know why we are pushing and if it is even worth pushing, but we HAVE to. What other alternative do we have? Killing ourself like you sarcastically said to me over Instant Message a week or so ago when I was complaining to you about how I felt. What good will that do? It won't solve our problem cause we'll be dead. And it certainly will cause pain for the loved ones we have in our lives.

Sure, we got stuck with one of the most horrible illnesses in the world, but we can only work with the cards we are dealt and learn to deal with it. Just keep pushing. Keep working with therapists, because the more we talk to them, then more we will learn to live our lives and deal with our issues.

Also, we have to keep moving forward. We can never intentionally go backwards. Keep working, keep going to school, keep going with the music thing, keep staying away from the weed, keep working out, keeping watching sports, keep listening to music. Just don't quit any of that stuff just because of the way you feel! Keep going forward with your life the best you can and keep working with therapists. It's all you can do!

Holla soon.

Kelson
 

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You may be right. Maybe there is no cure for YOU. Maybe you'll be one of the unlucky "victims" of the dreaded DP/DR. But then again, maybe there is another possibility.

Like I've said lots of times I've had DP/DR now for 24 years, and I feel 10 billion times better about life than I did during the first 2 months. (that's right I said 10 billion). For those of you who think, or fret, or imagine, or delude yourself into believing, that all is lost because "the damn DP/DR isn't ever going to go away", you're wasting your time. Not one tiny bit of panicking or dreading or mulling over your symptoms is going to make you better. I can promise you from about 22 years of doing just that. I still have the symptoms, but I no longer have a single day of dread about them and THAT's the only reason I'm not suffering. Right now as I observe myself I see my hands typing. I don't feel connected to them. I am looking through a fog at my monitor. However, not one ounce of worry about it. Anyway, I imagine that if my attitude remains this way it could all one day fade away and I'd be so-called "normal" again. However, if it doesn't change there's not a damn thing I can do about it, and I'm not going to waste one more second of my life worrying about it. Too many years have gone by.

As for you guys, I do worry about you. That's one of the reasons I keep coming back, apart from my growing fascination of the phenomenon. I worry because I see so many of you suffering so much for nothing. You just have to face the possibilities. A) One day you may be cured, or B) DP/DR may come and go as the years go by, or C) You may have DP/DR 24/7 for the rest of your life.

So accept all three of the possibilities and go out and live life. Because whether or not you have DP/DR, or whether or not you think I'm fulll of hot air, life goes on.

All the best.
 

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jag....you are an inspiration....i know i have only been like this for a year, i cant imagine having it for 24 years.....if you have hope on having a full recovery then maybe the rest of us shouldnt give up hope yet.....i am presuming that things get easier as time goes on....and i really glad to hear you are feeling alot better than what u did......there is hope for all of us :)
 
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Discussion Starter · #18 ·
Martin, very good post man, i appreciate that.

Kelson, i know, your right we do have to keep pushing, its the only way.

Tonight i went to the therapists meeting and to my surprise it went well. All of the therapists there were very nice and pretty knowledgeable. Gave me some good info. And actually a few of them told me they actually have similar cases to mine. Everyone one of them told me that they think I am doing good despite how I feel, and that in time I will heal and get better. One of them told me it can take up to 18 moths for the brain to psychologically heal from marijuana, especially accomponied with depression and anxiety.

I guess I have a little bit more optimism now
 

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SB,

The brain is such a super complex thing. It is amazing how complex it can be. If Marijuana is the cause of your problem, just think how long you have smoked and how much and then consider that it may take just as long if not longer for the brain to heal and get back to where it should be. The thing that matters most is that you are staying away from the weed. Continue to do so and I know your brain will eventually heal. It does suck that smoking/drinking/doing drugs doesn't effect alot of people, like it effects us, but what can we do about it? It is just the cards we are dealt I guess.
Just gotta keep on keepin on and continue with what we have. Stay up man...holla,

Kelson
 
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