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Discussion Starter · #1 ·
Hey, there is an organization that is starting up to raise awareness and money to initiate depersonalization research! Spreading awareness of it on this forum will lead to more donations and will be beneficial to us all. That is why me and several others on here have changed our profile picture to the Iniative for Depersonalization Studies logo (IDS). I made this post to encourage others to do so as well.

Here is a post about the organization. Check it out:

http://www.dpselfhelp.com/forum/index.php?/topic/81282-depersonalization-studies-funding-time-to-contribute-to-this-one/
 

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Discussion Starter · #4 ·
Yeah, we know about this already
If you guys all know about it already why does nobody seem to care or want to donate? Some kind of change needs to happen. I've had this for 7 years and there is still nothing known about how to treat this condition. Research needs to be done and finally someone is trying to step up and make it happen and we don't support it?
 

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If you guys all know about it already why does nobody seem to care or want to donate? Some kind of change needs to happen. I've had this for 7 years and there is still nothing known about how to treat this condition. Research needs to be done and finally someone is trying to step up and make it happen and we don't support it?
to be honest, I highly doubt donating money to this is going to find a "cure". The people who had interest in actually researching it are long gone. You would need quite a bit more than just money to peak someones interest in looking to help.
 

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to be honest, I highly doubt donating money to this is going to find a "cure". The people who had interest in actually researching it are long gone. You would need quite a bit more than just money to peak someones interest in looking to help.
Unfortunately money is what motivates most of these companies to research anything so we need to donate as much as possible.
 

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Discussion Starter · #7 ·
to be honest, I highly doubt donating money to this is going to find a "cure". The people who had interest in actually researching it are long gone. You would need quite a bit more than just money to peak someones interest in looking to help.
Thanks for your asinine comment on this post that is really important to me. First of all, this kind of hopeless depressed attitude about the future for DPD is not doing anyone any good. It may be true that a "cure" won't come out of the IDS group, but at least it is an effort, which is a hell of a lot better than nothing. Secondly, the people who care about researching DPD aren't all gone. The Kings College DPD unit still exists, and Anthony David is still doing research on TMS for DPD. Jeff Abugel seems to have some kind of vision with this IDS group and I say we all support it with our best effort. He talks of groundbreaking conferences in the U.K. and the U.S. that will happen when enough money is raised. I heard someone say there are 33,000 members on here? If everyone donated $5 it would raise enough money. Right now it says 38 people have raised $1,900. Imagine if it changed to 5,000 people raising $25,000. It would show there is demand for research for our neglected condition. Which is so true. And people in the future are gonna just keep getting DPD and suffer until someone figures this out. Also I want to add that the research done in the past (even though it isn't much) has made a difference. 10 years ago the nuerobiology of DPD was far less understood. Through studies we got some more clues into the mystery of DPD, like an overactive prefrontal cortex dampening the insula, tempero-parietal dysfunction, abnormal glutamate avtivity, and some potential treatment options like lamictal paired with an SSRI and kappa opiate receptor antagonists. So studies do move things along and I think you are wrong in saying that money isn't the right motivator. What else would it be? We need to donate to this guys, it is an effort to benefit us all. You don't have $5 to spare?
 

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Thanks for your asinine comment on this post that is really important to me. First of all, this kind of hopeless depressed attitude about the future for DPD is not doing anyone any good. It may be true that a "cure" won't come out of the IDS group, but at least it is an effort, which is a hell of a lot better than nothing. Secondly, the people who care about researching DPD aren't all gone. The Kings College DPD unit still exists, and Anthony David is still doing research on TMS for DPD. Jeff Abugel seems to have some kind of vision with this IDS group and I say we all support it with our best effort. He talks of groundbreaking conferences in the U.K. and the U.S. that will happen when enough money is raised. I heard someone say there are 33,000 members on here? If everyone donated $5 it would raise enough money. Right now it says 38 people have raised $1,900. Imagine if it changed to 5,000 people raising $25,000. It would show there is demand for research for our neglected condition. Which is so true. And people in the future are gonna just keep getting DPD and suffer until someone figures this out. Also I want to add that the research done in the past (even though it isn't much) has made a difference. 10 years ago the nuerobiology of DPD was far less understood. Through studies we got some more clues into the mystery of DPD, like an overactive prefrontal cortex dampening the insula, tempero-parietal dysfunction, abnormal glutamate avtivity, and some potential treatment options like lamictal paired with an SSRI and kappa opiate receptor antagonists. So studies do move things along and I think you are wrong in saying that money isn't the right motivator. What else would it be? We need to donate to this guys, it is an effort to benefit us all. You don't have $5 to spare?
Nearly all of the money donated to this is going to be to setup a conference (assuming people actually want to get on board and participate, or it could be a flop). I'm not saying that raising money isn't a huge factor, but you're going to need hundreds of thousands of dollars to peak enough interest that it would become feasible for real research to realistically begin. I've had this for seven and a half years and am now recovering, so don't act like I don't understand where you're coming from.
 

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Thank you so so much DPfighter for your brilliantly articulate response to yet another negative and defeatist comment from a forum user. Donating money aside, it's utterly staggering to me how people who purport to suffer do not support others who are trying to raise awareness and or understanding. It is very very telling.
All that is being asked here is to get behind the initiative by joining the Facebook group or simply spreading the word amongst networks. This is a no brainer!! And Jeff Abugel is THE leading spokesperson on the condition currently working very very hard to garner support. This is his initiative and it's depressing to see so little interest in his endeavours.
Enlighten me as to why this is the case!
 

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to be honest, I highly doubt donating money to this is going to find a "cure". The people who had interest in actually researching it are long gone. You would need quite a bit more than just money to peak someones interest in looking to help.
I don't mean to get you upset don't get me wrong, but you seem to be contradicting your own self when you put this down here when you actually say 'I have faith in medication' in another discussion or perhaps not taking time to explore research being conducted at the moment - we can't get medication or any other alternative treatment towards a cure unless we all contribute to the awareness of this disorder on every level possible or research conducted towards a cure. There is a reason why there are thousands of people with depersonalization on facebook groups- not only to share their experiences but to raise an awareness, as it happens to be the only effective way to send a message to the medical community/researchers out there that this disorder exists. Of course it needs thousands of dollars etc. but we all need to start somewhere, right? :)

'The people who had interest in actually researching are long gone', I didn't understand what you mean by that honestly but the truth is: The scientists from the old times may be gone but there is significant literature out there left by them which is persuading today's researchers and doctors to conduct more and more research and paved to way to allow the use and development of rTMS specifically for this disorder. What do you think King's College London is there for? Or NYU? Columbia, Cambridge, you may want to contact them if you want to find out more. So if you are not comfortable with donating to this particular funding, you can still contribute to funding within these universities' research programs :)

Also, I am 100% percent sure that the upcoming marijuana research conducted in the US and Canada will give more and more clues and reveal more mechanisms of this disorder, perhaps even a cure, as there are already recent reports signifying that marijuana use is strongly related with psychosis and rising mental health problems, one of which depersonalization disorder. So we all MUST contact with all facilities, universities, marijuana research centers together to put enough pressure on them so that researchers can raise more awareness on it, even when we can't donate.

Let's get this research process going, all together towards a cure, everyone!!!!!! :) :)
 

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Yes, DPFighter, Marmalade, and fighterS are right. Initiative for Depersonalization Studies (IDS) led by Jeff Abugel is the top leading research happening for DPD right now.

A link to the description and gofundme, as well as a link to the facebook group are both pinned under the Treatment<Research section.

I am glad to see that someone prominent is taking the initiative to actually do something.

Sadly DP is still in the Awareness phase in terms of it being acknowledged as an actual disorder.

Jeff Abugel is our Top Guy right now.
 

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Unfortunately when it comes to money or funding for this type of stuff people become very suspicious when they cant see for themselves exactly whats going on in the background....

Its the way of the world....Just look at alot of the corrupt charities over the years....Honest decent peoples contributions being pocketed by evil people at the top...I mean if your to believe the stories half the money that Live Aid made in the mid eighties never even got to Africa....I do know for a fact though that there are people in jail in this country for stealing from charities....Usually it was the people at the top...One was even a well recognised tv presenter back in the day....

What a sad corrupt suspicious world we live in today...Nothing is sacred when it comes to money....Ive seen people break into Alcoholics Anonymous rooms and steal the collection money that pays the room rent and buys the coffee....And the people involved where actual members....

Money has a very funny effect on peoples personalities....It certainly does on mine....
 

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Discussion Starter · #14 ·
I s

Unfortunately when it comes to money or funding for this type of stuff people become very suspicious when they cant see for themselves exactly whats going on in the background....

Its the way of the world....Just look at alot of the corrupt charities over the years....Honest decent peoples contributions being pocketed by evil people at the top...I mean if your to believe the stories half the money that Live Aid made in the mid eighties never even got to Africa....I do know for a fact though that there are people in jail in this country for stealing from charities....Usually it was the people at the top...One was even a well recognised tv presenter back in the day....

What a sad corrupt suspicious world we live in today...Nothing is sacred when it comes to money....Ive seen people break into Alcoholics Anonymous rooms and steal the collection money that pays the room rent and buys the coffee....And the people involved where actual members....

Money has a very funny effect on peoples personalities....It certainly does on mine....
I see where you are coming from. It is sad but true that some charities are corrupt in this way. On the other hand I highly doubt the DPD fund under Jeffrey Abugel could possibly be corrupt. Don't you think? It was even confirmed legitimate on this thread:

http://www.dpselfhelp.com/forum/index.php?/topic/81282-depersonalization-studies-funding-time-to-contribute-to-this-one/

Also if anyone is suspicious they could also donate a low amount such as $5 or $10 which is still greatly appreciated as it all adds up.
 

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A certain book was plugged by a certain individual on said group recently...No wonder people question what the motives are????

Having said that I do know of one person invloved in the IDS that is very very genuine and has recently done some wonderful things to promote awareness...And for the efforts they have put in I am very very thankful....Because of that persons efforts my family and friends and co workers finally can understand what ive been dealing with for nearly 30 years....Up until then it was basically invisable to everybody around me....

Thanks so much to said person! You know who you are!
 
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