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620 Views 10 Replies 4 Participants Last post by  Dutchhighlander
This is a reminder for a petition on the internet. It started alsmost a year ago, had a good start, but it faded.

If you think it's total unfair there isn't any long term research, treatment and cure for this condition. And if you think you deserve a good life too?
Please SIGN THE PETITION for change and please share it in every relevant group and all the people you know who would sign it.
Sign the Petition

We only talk about our condition in closed groups, so NOTHING will ever change. Nobody knows our suffering.
If the general public is well informed about this condition, hopefully things begin to move.
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Ignored because too many just won't sign.
Yeah, doing nothing and only complaining in forums will help.
I think it can't be bad. And I remember signing it. Maybe the petition itself could be similar as mailbombing and have more positive impact. But at the same time I don't feel that people in the medical field would really listen to patients. I might be wrong, but I think there are already so many people who make complaints about mental illness for good and bad reasons. You already have those with "chronic Lyme disease", who are not taken seriously (for good or bad reasons whatever). A lot of people would probably look at the petition and think "oh, 10,000 self-diagnosed people who think we don't listen to them enough. It's not news, I already knew there were millions more", especially people in the mental illness field. Also the fact that the petition is meant to be sent to Boris Johnson, Justin Trudeau or Emmanuel Macron doesn't add to its credibility, in my opinion. I think these people probably couldn't care less about a disease that concerns only a few thousand "probably self-diagnosed on the internet" (<-- that's what I think they could think) and wouldn't feel competent on the matter. But journalists, it's a better idea. Sending it to political leaders seems like the writers of the petition are a bit "detached from reality", if you excuse my joke (but I am still proud of it). I still signed it, because I hope I am wrong and that it helps.
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