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Discussion Starter · #1 ·
Hi,

I am 62 and have had dpdr since I was 18. I think my case may be a little different than some of the others because the doctors think it is due to mild brain damage, which shows up in a cat scan. I think it is probable, but not definite because a lot of obsessive thinking preceded the dpdr, which seems to be the case for many here.

The mild brain damage causes a condition called Non-Verbal Learning disability, which means you have trouble with the visual-spatial, body language, and getting the overview.

One reason I think that it is neuroglial is that I started taking an anti-convulsant, Tegretol in 1983, and the symptoms got a lot better.

The word brain damage makes me feel bad, so I want to say, I am not mentally challenged. I double majored in literature, and electrical engineering, and worked as an electrical engineer for 5 years, before my condition prevented me from continuing to do so. I have worked in real estate since.

The symptoms of dpdr were just horrible before the Tegretol. They were as many here have described them. They were so bad, I don’t even want to write about them. Since the Tegretol, the dpdr comes and goes, but it is limited to feeling like I am in a fog. That is pretty mild. I have added other medicines as I have gone along. I added some clonazepam which has anti-seizure and anti-anxiety effects. I added Zoloft which got rid of my obsessive thinking. I finally added Provigil which got me to focus a lot better. If I had taken that earlier, I would still be an engineer. Like many here, I have multiple conditions. I went to a learning specialist so that the learning disabilities are better now, and a speech therapist for 20 years. I also saw a psychiatrist for 45 years.

I am happy with the way life turned out. I am happily married, have good friends, and work, (although not at as high a level as someone with my education should).
What has helped me with the dpdr are: not thinking of it, forcing myself to go through life no matter how bad I feel, mantra-type meditation, (not mindfulness medication), and cognitive behavioral therapy.

Right now, I am in one of the phases, where the dpdr has returned. That is why I am here.

I have already learned a lot from the group, and hope to learn more.

My next step is to try naloxone and/or naltrexone. Does anyone have any advice about that?
 

· Registered
Joined
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635 Posts
Hi,

I am 62 and have had dpdr since I was 18. I think my case may be a little different than some of the others because the doctors think it is due to mild brain damage, which shows up in a cat scan. I think it is probable, but not definite because a lot of obsessive thinking preceded the dpdr, which seems to be the case for many here.

The mild brain damage causes a condition called Non-Verbal Learning disability, which means you have trouble with the visual-spatial, body language, and getting the overview.

One reason I think that it is neuroglial is that I started taking an anti-convulsant, Tegretol in 1983, and the symptoms got a lot better.

The word brain damage makes me feel bad, so I want to say, I am not mentally challenged. I double majored in literature, and electrical engineering, and worked as an electrical engineer for 5 years, before my condition prevented me from continuing to do so. I have worked in real estate since.

The symptoms of dpdr were just horrible before the Tegretol. They were as many here have described them. They were so bad, I don’t even want to write about them. Since the Tegretol, the dpdr comes and goes, but it is limited to feeling like I am in a fog. That is pretty mild. I have added other medicines as I have gone along. I added some clonazepam which has anti-seizure and anti-anxiety effects. I added Zoloft which got rid of my obsessive thinking. I finally added Provigil which got me to focus a lot better. If I had taken that earlier, I would still be an engineer. Like many here, I have multiple conditions. I went to a learning specialist so that the learning disabilities are better now, and a speech therapist for 20 years. I also saw a psychiatrist for 45 years.

I am happy with the way life turned out. I am happily married, have good friends, and work, (although not at as high a level as someone with my education should).
What has helped me with the dpdr are: not thinking of it, forcing myself to go through life no matter how bad I feel, mantra-type meditation, (not mindfulness medication), and cognitive behavioral therapy.

Right now, I am in one of the phases, where the dpdr has returned. That is why I am here.

I have already learned a lot from the group, and hope to learn more.

My next step is to try naloxone and/or naltrexone. Does anyone have any advice about that?
did/do you suffer from emotional numbness?
 

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Discussion Starter · #3 ·
I am not an emotional person, but I don't think so. More the feelings of dpdr. I had obsessive thinking at one point also. It is still uncomfortable even today, but it is not devastating like it was, when it was at its worst. I do however, have long periods where it goes away. It has come and gone all my life, but not in the absolutely horrible way it was before I took the tegretol, or maybe I am just used to it so it does not make so agitated like I was before.
 
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