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How do you know this; have you scanned the brains of everyone on here? That's a rhetorical question by the way. Most DP sufferers who have had brain scans done show no brain damage at all, so your conclusion isn't based on any statistical evidence, it seems to be merely assumption.
What about our receptors that just do not work in proper manner?
 

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I expect what you've said previously may be right, that while it is logical to "switch off" the stress response for a time, and may be a great relief short term, it may also require some kind of therapy to help keep from old stress-generating thinking patterns etc resurfacing, what do you think?
Yes, I absolutely do still agree with this. You have to deal with your issues before this has any real chance of successfully working long term I think.
 

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Try this http://www.dpselfhelp.com/forum/index.php?/topic/83786-hope-nad-therapy/page-2

We all have some kind of brain damage and need to restore receptors
Think you may have misunderstood the poster Auto...Think the poster is talking about chemical problems in our brain..

Brain Damage is a very harsh description though...Chemical Imbalance is my personal belief....Hence medications help so many...And also the reason why therapy fails so many..But those are just my own personal theories...I cannot prove them....

I think if we actually had brain damage we would be dealing with some serious physical as well as mental impairments....
 

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Think you may have misunderstood the poster Auto...Think the poster is talking about chemical problems in our brain..

Brain Damage is a very harsh description though...Chemical Imbalance is my personal belief....Hence medications help so many...And also the reason why therapy fails so many..But those are just my own personal theories...I cannot prove them....

I think if we actually had brain damage we would be dealing with some serious physical as well as mental impairments....
yes i mean chemical imbalance, and maybe NAD therapy can help restore balance.
 

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My anesthesiologist diagnosed me with chronic pain after "physical trauma" so we can try this and my insurance cover me. If it helps, I don't mind getting a needle in my neck every now and then.
 

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Hey guys I have a question for you:

There is a study from 2003 which I think explains why my depersonalization became so much better

Basal norepinephrine in depersonalization disorder.

Simeon D, et al. Psychiatry Res. 2003.
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Abstract
In contrast to the noradrenergic dysregulation described in PTSD, little is known regarding noradrenergic function in dissociative disorders. The purpose of this preliminary study was to investigate basal norepinephrine in depersonalization disorder (DPD). Nine subjects with DSM-IV DPD, without lifetime PTSD, were compared to nine healthy comparison (HC) subjects. Norepinephrine was measured via 24-h urine collection and three serial plasma determinations. Groups did not differ significantly in plasma norepinephrine levels. Compared to the HC group, the DPD group demonstrated significantly higher urinary norepinephrine, only prior to covarying for anxiety. The DPD group also demonstrated a highly significant inverse correlation between urinary norepinephrine and depersonalization severity (r=-0.88). Norepinephrine and cortisol levels (reported in a prior study) were not intercorrelated. We concluded that although dissociation accompanied by anxiety was associated with heightened noradrenergic tone, there was a marked basal norepinephrine decline with increasing severity of dissociation. The findings are in concordance with the few reports on autonomic blunting in dissociation and merit further investigation.

PMID 14572626 [PubMed - indexed for MEDLINE]
Full text

This study says that patients with depersonalization have a higher production of norephineprine doesn't it??

So basically the stellate ganglion block BLOCKS the production of it thats why I feel so much better I think.
 

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Hi Ray, I wanted to follow up to see how u r doing now post shot, as well as any other people u know of.. I am particularly interested in your feed above because as I understood Dr. Simeon's study- Those study participants actually had low noripenephrine levels which is different than those with PTSD who actually are producing to much?
This is all so complicated and I believe warrants further collaboration between those of us who were and perhaps are not interested and took the shot nthose of us still interested and didn't take the shot. Do you know if everyone who took the shot is still here n doing ok or did any end up with worsening of symptoms? It seems the subject just dropped off
 

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Can we get this subject going again with all of the participants.. I started a thread titled PTSD shot for Depersonalization.. We should be exploring this further as there is a possibility that 1. Dr. Lipovs expertise in giving this shot would give us an edge on a possativr outcome.
2. How many times and where the injection was placed among participants could make a difference.
3. There is a very valid suggestion by one of the participants that if your dp/dr is more anxiety based it may work better. If that is the case and more people are helped even if only those who suffer anxiety based do it could also give more clues clinically as to what to do next for non anxiety based DP/DR.
I read through the 47 pages on this subject a few times n realize that participants reported back a few times bit not sure if all participants reported back n how everyone is doing now? If any of us are going to explore this further we need the participants in the discussion. Personally I would go tomorrow n give the shot a try but what is holding me back is the fact that Dr. Simeon reported low norepinephrine levels amount those with chronic do/dr in her study which contradicts the heightened noripenephrine in PTSD. Or dose it??? Can u have high norepinephrine levels but test low through your urine? I would guess not or why then would Dr. Simeon make the comparison in the first place? I would so much like to get this conversation going again. I think we are giving up to soon and to many brilliants minds here to figure this out We could be missing something..
 

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Hi Ray, I wanted to follow up to see how u r doing now post shot, as well as any other people u know of.. I am particularly interested in your feed above because as I understood Dr. Simeon's study- Those study participants actually had low noripenephrine levels which is different than those with PTSD who actually are producing to much?
This is all so complicated and I believe warrants further collaboration between those of us who were and perhaps are not interested and took the shot nthose of us still interested and didn't take the shot. Do you know if everyone who took the shot is still here n doing ok or did any end up with worsening of symptoms? It seems the subject just dropped off
I think the subject dropped off as it had reached a natural conclusion, at least for the time being. Unfortunately it didn't turn out to be as successful a long term solution as people had hoped it would be. It's also expensive and people should be aware there are potential dangers in having shots like these. For those reasons, in agreement with the OP, I'm moving this thread out the recovery section into treatment options.
 

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There was a guy from the Initiative Depersonalization Studies group on Facebook who tried and reported positive effects, despite not having helped in PD, helped in anxiety. Follows his relate

Since I had my SGB procedure, I have to say that it was worth the investment. Not because it cured me from DPD, but because how it changed my outlook and attitude towards my father.

Before I had the procedure, I could barely stand sitting in the same room with him. I would have two dialogues going on in my head if I was forced to sit and talk to him. A normal one out loud, and an inner one where I was thinking how much I'd like to punch him in the face, among other things. We really had no relationship to speak of. This has been going on for decades. All my abuse issues stem from him.

Since the procedure, I feel completely different in terms of how I view him. When I talk to him, the only dialogue I have is the one out loud. I don't start getting angry, defensive and on edge when he's around. We actually have seeked out each others company. Even when I try to think about things that would usually make me mad or emotional, I can't. It's like they didn't happen. It's like all the times I've tried to forgive him finally worked. I have never gotten along with him like this. I've even offered to make him a sandwich if he's watching television, or getting him a beer.

I still have much better visual acuity. I'm calmer, and have less fear. I'm also more aggressive. I know it sounds like an odd combo, but I do feel calmer, lighter in spirit, and also more confident and sure of myself. I can't explain the aggression. I just know when I walk into a room, I size people up and don't feel any fear.

It's a great feeling not to carry around any baggage as it pertains to my father. It's like we are starting our relationship all over again. This alone was worth getting the procedure.
 

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Does anyone have a doctor in California who has the balls to prescribe new treatments like this. We need help finding a doctor. We are being told they won't take us on a patient at all. Please PM me if you know of any decent California doctors for an adult.

Please Help

Please DM me....can you DM on this site? If not, please reply. Thanks
 

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This is the best most definitve post Ive read on here for a long time if ever....Fair play Valley Girl.....We are all delighted for you....And thanks so much for the updates...Your experience and info is invaluable to the rest of us (Especially those with either CPTSD or PTSD) It may not work for us with the illegal drug induced DP but I can see amazing potetntial for those whos DP came about as a result of abuse etc.....In fact I can see where this would be very very useful for girls who have been either physically emotionally or sexually abused...

Well done miss!!!!!!!!!
what if i recovered fully once from drug induced and then relapsed from abusing? do i have now both reasons? or was the first cause solved?
 

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Discussion Starter · #495 ·
[quote name="Mayer-Gross" post="470569" timestamp="1498059290"]

i had a c6 done yesterday,-in Bristol. I have had DP for 30.years. I felt more spaced out and a little anxious form the experience.

You were more anxious after the treatment back in 2017?
 

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Hello all,

I apologize for commenting on an old post, but I thought I would add my experience to the list. I suffer from DPD, triggered by smoking weed at the age of 14 or 15. I say triggered because I suffered through severe sexual and emotional abuse and neglect for the first 10 years of my life until I was removed from that environment. Weed triggered it, but it is the trauma that causes it. I got the procedure yesterday 5/25/2021.

I didn't put a name to DPD until very recently. I was diagnosed with PTSD at the age of 17 and I have always believed that was my primary issue. For most of my life, I've found ways to distract myself from dealing with my issues. I primarily distracted myself with work, but I've gotten to a point in my career where I do not need to be in the weeds of all the details and find myself with a lot more free time. It has become impossible to no longer face my demons. I tried anti-depressants, but they did not give me the desired results. I heard about SGB several years ago and decided this year to try it. After scheduling, booking a flight, and paying for the procedure, I found this forum, did some research, and realized what I actually suffered from. I was very tempted to cancel. but decided I had gone this far and would try it.

I booked my appointment through the Stella Center, and quite honestly, I think the procedure should be taken out of their hands. They connected me with a completely and totally unqualified "patient coordinator". This person did not have the right qualifications and did not really understand PTSD or any other mental disorder. I think this is a HUGE mistake. You never talk to a nurse, doctor, or any other qualified person on mental health. Their qualifying process is complete garbage. You answer a few surveys about feelings and recent experiences, which really should be guided with a qualified individual, they ask you a few medical questions, and then approve you. It was a huge red flag for me from the beginning, but when you are desperate to feel alive, you will do anything.

The doctors I went to for the procedure are in Dallas, TX, and that staff was great. They are not affiliated with Stella Center outside of contracting to do the procedure. I actually had a bit of an emotional breakdown there and started crying. They were very compassionate and understanding. They calmly walked me through the process and showed great concern for my well being. I would give them a 4.5/5 for sure. However, at the same time, they have no mental health individuals on staff and the doctors are pain management experts with very little psychiatric expertise. I think their understanding of PTSD is likely limited. The doctor wanted to go ahead and do the left side too, since I flew 700+ miles to be there, but the Stella Center patient coordinator never made me aware of that option, and told me to book my flight home 8 hours after the procedure, which is what I did. If I would have realized I could have stayed an extra day and went ahead and got the left side done too, I would have went ahead and done so.

The procedure itself sucked because you are getting two needles stabbed into your neck and that alone creates a lot of anxiety, but I didn't feel any pain and my side-effects were minimal. My left arm was numb for a while, and my right eye was red and droopy. These side-effects were expected and lasted about the 8 hours I was told they would last. Today, I don't have any pain and just a little tenderness' in the neck. While doing the procedure, the doctor told me that most patients feel a "pop" in the brain and start to feel instant relief. I did not feel this pop or relief, and the doctors kind of looked at me expecting some sort of "new me". Honestly, that is what I was hoping for because that is how Stella Center sells it. I was definitely calmer after the procedure was done, but I could not really equate this to the success of the procedure or simply being done with the procedure. I felt a lot of pressure to say "yeah, I feel different" and I wonder how many people get the procedure and succumb to that pressure and that success rates are skewed higher than they should be. I can 100% for sure say that it has had zero impact on DPD (at least so far). I will give the procedure time to see if it will help with anxiety and the jumpy and easy startle symptoms of PTSD.

I think the PTSD symptoms have lessened over the past two decades and that DPD is the lingering major disorder. Because of this, unless Stella is willing to make and pay for all of my accommodations, I will not back and get the left side done. Despite their "waiver", I do think there is a lot of potential that Stella could be sued.

I am not writing this to discourage anyone who is considering the procedure, but this is my experience. My biggest concern is that the Stella Center is simply mining for gold by selling snake oil to a lot of people. I have no doubt it probably works for a certain group of individuals with a certain type of PTSD, but the Stella Center does not do proper due diligence to make sure the right patients are getting the procedure. They will basically accept anyone who signs the waiver and I think some of their practices are misleading or at the very least ineffective.

Regards,

ndhp123
 

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I also received the SGB from Dr. Lipov. It didn't don anything for me unfortunately. Having said that, I dont want to discourage anyone as there were people who came out of the procedure literally jumping for juoy.

Many authorities claim that DP is a result of the parasympathetic response. I agree wholeheartedly. I don't have much anxiety, if at all, I'm almoston the opposite end of the spectrum where I am so dull, dead, unmotivated and fatigued. I fall asleep like a rock, could sleep for seemingly forever and never feel rested. One with heighted sympathetic response is one who would be overly jumpy when startled, me, you could tell me a nuke is headed for Chicago and I would yawn. I would be interested in Lipov would be willing to do an injection which focuses more on the parasympathetic branch.

I live in the area, if anyone wants to meet up or wants some recommendation on where to stay, where to eat, hit me up.
If you don't have a problem of anxiety any more its great.
If you still have dpdr try ozone rectal insufflation ann HBOT
 

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If HRV is stimulaton of the para-sympathetic state what do you think about the theory that DP is largely an over-active parasympathetic state? Could that not exacerbate symptoms? I ask this, because my DP was triggered by excessive mediation and things that are parasympathetic in nature(mediation, deep relaxation, trance music, massage) often make me feel worse. Many in the field believe this to be the case.
My dpdr also trigger by meditation.
Apparently this is common.google cheetah
 
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