I notice you, too, as from the UK. Is this because there is more awareness there? I understand Kings College London is doing good work. All my family except my sisters and I are in and around London. If only I could get my daughter on a plane!
Also, I see you are a Moderator and have been active on the site for over a year. I know getting a good diagnosis at 13 (such a young age) is good but worry because 13 is such an awfully difficult age, even without this extra load. I believe my daughter was developed DP/DR (she's very strongly DR) as a young child but it was reactivated -- if that makes sense -- when she smoked pot the first time. She had a dreadful, terrifying reaction and hasn't been the same since. Is it usual for the two to go together, do you know?
Just looking for some wisdom...
I'm not sure I feel qualified to give advice on the topic at all, but in the absence of being able to cure my daughter myself, my wish would be that she would tell me what she needs. She has gotton better a little better at this.
Her anxiety and DR get dramatically worse as the day goes on. She uses all her energy trying to get through school or as much school as she can manage. She is DR 24/7 so trying to determine what is real and what is not is exhausting. She used to lash out if I said ANYTHING to her. She has learned to tell me if she needs me to go into another room for a while or to stop talking because she can no longer process any information.
Sounds strange but it comforts me to know there is some small way I can make her more comfortable and that she can tell me about it. I wish she would tell me what would help keep her distracted. So if you can, tell your parents as much as you can, even if you have to write it down.