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been going through this for years sigh
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Discussion Starter · #1 ·
ive been trying to get diagnosed for years, and it seems no one knows or is able to diagnose me since they dunno what dpdr is. does anyone have a list of dpdr positive therapists/psychiatrists or pathways in the uk that could guide me in the right direction?
 

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Since you may not find a particular psychiatric medication that significantly improves your symptoms, you may never get a proper diagnosis. My thinking is that a diagnosis is only useful for purposes of prescribing meds, filing medical insurance claims, or applying for disability. I don't have an official diagnosis, but I know my symptoms started with an epigastric aura, followed by a poerful temporal lobe seizure accompanied by about 30 epileptic discharges over a period of 3 minutes, and when that was over, I was never the same. I found neurological research papers which identified every unique and odd sensation I experienced during this trauma, and it said I was suffering from a rare and difficult to diagnose epileptic syndrome and the worst case scenario is when "the posti ictal psychosis segues into an affective disorder of recurrent major depression.". And that described my experience to a T. So, I had an episode of major depression every. I 8 years throughout my adult life, and each was an epic struggle for survival. I'm 67 now, and have been essentially symptom free for the past 9 years, since having ECT. My only symptoms now are migraine aura, but my EEGs will always show significant pathoogy in my dominant temporal lobe, from an event which occurred 50 years ago. And, no neurologist that I have ever met would understand what I have just explained to you.
 
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