hey, thanks for your reply.Hey leminaseri,
Would you perhaps like to share as to why this particular video killed your hope?
I am suffering from depersonalization-derealization disorder, and I am diagnosed with it, as a disorder on the spectrum of dissociative disorders. I haven't got it from drugs or (for most part) anxiety, but from a prolonged childhood abuse that I suffered, and in my case it is completely trauma-related. It means that I cannot just solve it by relieving my anxiety, even though relieving my anxiety helps, but that I have some other background issues to tackle. It does not mean that I am doomed with this disorder, it just means that my path to recovery is somewhat more complicated - but not impossible!
I have to say that I see nothing wrong with what this guy is saying. He allows for other possible causes of depersonalization to exist, but he is pointing out to what he suffers from, and that is what he is mostly talking about through his channel, from what I understood, based on this one video. It does not have to refer to you. Also, you should only rely on a good therapist to tell you what you suffer from, and by no means assume on your own what kind of DP do you have.
hey thank you for replying.I agree totally with what Anna said. If your DP is transient and intermittent, then it is likely it is triggered by anxiety or depression. So tackling the underlying cause there would likely solve the symptom of DP/DR
Depersonalization Disorder (DPD) is a chronic and unabating illness, where the symptoms of DP, DR or both, are always there regardless of anxiety or depression. The disorder, as Anna said, is often a result of trauma (I believe) so tackling the trauma might relieve the symptoms in those cases.
All he is saying basically, is that often people making these videos don't distinguish or know the difference. Some videos talk about tackling the anxiety while others talk about the actual disorder (a lot like on this website). So for you the first step is to appreciate you either have symptoms of DP or DPD and then go from there. We are all in the same boat here though so try not to lose hope. Have faith you will find the answer you are looking for, but it may take some time
thanks for the very valuable informations. i hope in the next 15-20 years there will be accurate methods to threat this mental state.The video is a year old. He later became a patient at the former "Depersonalization research unit" and was given 16.sessions of cognitive behavioral therapy. He was tested prior to the sessions and after. It was found that his symptoms had increased after CBT. He also tried the combination of lamotrigine and a SSRI without effect. Then naltrexone in a dose as high as 150.mg. He had to stop that as he became to have problems with he liver metabolizing the drug.
He was contacted by an English publisher who was interested in a book about depersonalization. He have recently submitted the manuscript to them. He is active in the depersonalization charity "Unreal" and had some interaction with former researchers at the then "Depersonalization research unit" and they have said to him that they do not have an idea what causes the disorder. So, there is more need for research.
The latest brain scans they did was in 2015. In many ways these are very old. There are scanners that are 50.times faster than those they used, there are also scanners that can go deeper into structures in the brain stem. Recent studies in the dissociative subtype of PTSD found that a structure related to fight and flight and immobilization was affected in dissociation called "periaqueductal gray". So, new scannings might give some new data about the disorder that could not be seen before. There are also changes in the possibilities of interventions with brain stimulation. When the "depersonalization research unit" did their small rTMS trail there was many location in the prefrontal cortex that could not be stimulated with a normal coil. That have and still is a problem in depression too. Many depressive states would not respond to normal rTMS as that state likely was cane from location to deep in the prefrontal cortex. There are now developed coils that can go deeper into the brain and stimulate areas that could not be stimulated a few years ago. So, there are more areas found active in depersonalization that was not accessible a few years ago that can be intervened in now. These techniques are used in a very few places on the private market in the US but for research it is more possible.
A research facility using a combination of new functional MRI scanners and rTMS could give more information about emotional regulation is done in depersonalization and a treatment. This is done in depression and have been very productive about the disorder. Most depressive can not use these location as most rTMS clinics only treat at locations found 20.years ago. They do not have the equipment to go into the other locations found yet. I think it will change the coming years.
yes i understand.. thank you for your advicesHey leminaseri,
Don't lose hope by identifying with other people having DP, because we are all different - that is something you can clearly see here, at this forum.
Sure, sometimes we wish that is does not have to be so damn difficult, particularly when we are already worn out by all the struggle, but it is what it is.
Keep focus on your own experience, on your strengths and your resources. Give yourself credit for all that you have been able to do by now, and don't give up.
You can not see Mauricio Sierra-Siegert. He have not been employed as researcher since 2015. You could only get a consultation then when it was under English "National Health Service" and if you lived in England. For English patients not living in the London area it could take years to get a referral. He now lives in Medellin, Columbia and do not work with depersonalization. There is no formal cure for depersonalization and he do not have it either.hello, n, I saw you said you met Dr. Sierra .. I also want to meet and seek treatment with him .. where can I meet with Dr. Sierra .. please help
I expect there could be a treatment within the coming years. There are some locations found active in depersonalization you have not been able to intervene in until recently. This is also the case for depression. The locations have been to deep in the prefrontal cortex to do it. But, there are coils that can go deeper and they will likely be available for the many with depression who do not respond to normal rTMS. Many of these locations found in depression are often very active in depersonalization too. So, when these coils that can go deeper are available then other locations can be tried. The medial prefrontal cortex along with anterior cingulate is found active in some states of depression and obsessive compulsive disorder. This area is also found active in depersonalization. It is very deep in the brain to reach but a deep coil can. There is a lot of obsessive self monitoring in depersonalization and it might be related to this activity.thanks for the very valuable informations. i hope in the next 15-20 years there will be accurate methods to threat this mental state.
Thanks.To mayer-gros My advice .. You submit yourself to the study because the cooperation of intelligent sufferers seems needed rather than passive sufferers
interesting. I'm left handed in some cases as well but right handed in others. I wonder if this would change anything For me in terms of TMS locations.Thanks.
I tried rTMS in march at the right VLPFC/ventrolateral prefrontal cortex and the right TPJ. 12.session and i felt nothing. The right ventrolateral prefrontal cortex was the area that the "Depersonalization research Unit" found to be an area for rTMS intervention though they expressed interest for some other location but likely dropped them as they where to deep for a rTMS intervention then(2014).You can not do rTMS at the right ventrolateral prefrontal cortex without neuronavigation from a MRI scan - that excludes almost 90% of all rTMS providers as they do not have neuronavigation . They would not be able to find a location. So, I have thought about why I did not respond and one reason could be I am left handed some much of my emotional regulation could be in the other brain hemisphere. Left handed are almost excluded from brain imaging studies or rTMS trail because they can cause errrors for the study. Other reason is that the location that they found might not be the right one. Other studies point towards the ventromedial prefrontal cortex - again a location too deep in the brain. I re-read a text by rTMS researcher, Jonathan Downar about different locations in the prefrontal cortex and he writes that ventrolateral prefrontal cortex have some surface that can be stimulated by a normal coil but it expands into the brain where a normal coil cannot go. To him it is a location for a coil for deep rTMS. When I looked at some of the images taken in the studies by the depersonalization research unit I could see that large parts of the ventrolateral prefrontal cortex active it likely to deep to be inhibited by a normal coil. So a reason for the lack of response could be the only 1/3 to 1/2 of the ventrolateral prefrontal cortex was stimulated. So, you likely need both neuronavigation and a coil for deep rTMS to give this area a fair trail. There are some who have benefited partly at this location but if it is only 50% a normal coil can cover of the location it might explain that.