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Hi

This is a long shot, but if you look on http://www.drjilltaylor.com/, Dr Jill Taylor is a neuroanatomist who is afilliated with the Indiana University School of Medicine in Indiananapolis, Indiana.Neuroanatomy is the science for localizing function in the human brain.

She has been chosen as TIME Magazine's 100 Most Influential in the World for 2008. See http://www.time.com/time/specials/2007/ ... 55,00.html

Just recently she was on Oprah Soul series recently,because in 1996, Dr. Taylor woke up to discover that she was experiencing a rare form of stroke. For the past ten years, Dr. Taylor has been successfully rebuilding her brain - from the inside out, and has written a book called "My Stroke of Insight"

I emailed her about our plight, and she has responded (See below).My thinking was that if brain researches from different disciplines could compare data, it could only be beneficial.

-----Original Message-----
From: Jill Bolte Taylor [mailto]
Sent: 22 May 2008 04:56 PM
To: Cyberafrica
Subject: Re: Depersonalization & Derealization Disorder needs urgent Research

Hi Cyberafrica, thanks for this message. Have you had a chance to read my book? I am curious about what your experience feels like in comparison to what I describe in my book. That would give me some insight into this disorder.

I will keep this message in a special research file for when I find colleagues who are interested in doing these types of projects. I appreciate you reaching out and wish you all the best, Jill

My email to her is below:

> Dear Dr Taylor and Robert Koehler
>
> Congratulations on your triumph and book concerning your life >changing experience.I am a sufferer (like many other people) of depersonalisation/derealisation disorder, and just as you, have taken a great interest in this disorder, as I come >from a medical family (father is a doctor and surgeon, and mother is a nurse)

>There is not much known about this frightening illness, as there is no real cure. Apart from having to self diagnose myself >from finding out from doing website research (mainly http://www.depersonalization.net , >much of the medical profession does not know much about it, although it is >extremely common. Lately, >this disorder has >been popularized by the movie "Numb" acted by Matthew Perry.
>
> I am sure it has to do with part of the left brain "shutting down", as one loses ones insight of the "self" or ego. And we are >only left with "right brain thoughts" which include existentialism and not feeling "real". Also our sense of perception >changes, where the world >looks "unreal"
>
> I am contacting you, as there must be a lot of cross over research to do,from a neuroanatomy perspective. There are >thousands of sufferers in >the world, who do not have any answers to their problem, or who do not even know what they >have. There is research being done by Dr Daphne Simeon from Mount Sinai School of Medicine.
>http://www.mountsinai.org/Research/Centers%20Laboratories%20and%20Programs/Depersonalization%20and%20Dissociation%20Research%20Program

>She has also written a book called Feeling Unreal, Depersonalization Disorder and the Loss of the

> We also have a representative, see
>
>
... re=related>
> , who is pleading to the medical profession to help and bring more awareness about this disorder. If you read the posts on >http://www.dpselfhelp.com/> there are many sufferers who see suicide as a way out.

> I definitely see this illness as a life challenge, as it came on suddenly,one moment I was fine, then the next felt as though >my whole world had changed.(Literally!) I hope my experience with this illness is transient, as there are people who do get >through it, and heal.

> Look forward to your response.
>
> Cyberafrica
>
 

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The case reports, which contain the 66 pages of single spaced content, contains e-mail addresses and other information that we are unable to publish. We would choose specifically good clinical vignettes that demonstrate the areas that are important for DP and DR. I am sorry that it is not available, but we are thinking of a way to publish what we can. We can not have anyone's information published if it lists a single personal item, even where they work.

The 25 pages of the submitted manuscript has only been handed out as a draft to two trusted individuals. We can't have that information out until we get it accepted and revised to be 100% accurate.

Best,

David
 

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ok.. why doesnt anyone use any other research besides these moneyspinners? theres so much more research out there... check out sachdev et al 2002

publishing books to people who are ill ? (and not much money? ) ... ok if you have minor DP/DR this may prove an "interesting diversion" but what does it do for serious cases ? ...sod all .. may as well be the linden method ;)

screw this... get out there and be proactive about your illness:

http://apt.rcpsych.org/cgi/content/full/11/2/92

lots of (free) references, do some research ....heckle your psychiatrist

.. and do your best to get well!

and... DONT BUY ANY BOOKS !!
 
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