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Discussion Starter · #1 ·
for about the past year, I have been doing really good; in spite of my illness, I have been living a virtual normal life. However, a week ago I was going about my day until I was suddenly plunged into DPDR again. My DPDR has always been with me for the past year and a half, but it was acutely exaggerated in this random moment.

Since then I have not been feeling good. The past year I would rarely think about my dissociation, and when I did I was completely indifferent to it. Now Im thinking about it a lot, and im filled with feelings of anxiety and dread because of it.

Ive been thinking, was I really better? Or did I just get really good at ignoring it until now? It feels so damn confusing, like I can’t pinpoint where I am or who I am within my mind; I feel so jumbled. Im worried if I can ever get back to how I was feeling this past year. Like its almost unbelievable that I not only was functioning really well, but I was genuinely pretty emotionally content with life. I cant tell if i was in some illusory state of denial that I finally snapped out of, or if my dpdr really is worse now and its making me feel awful.

does anyone relate?
 

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for about the past year, I have been doing really good; in spite of my illness, I have been living a virtual normal life. However, a week ago I was going about my day until I was suddenly plunged into DPDR again. My DPDR has always been with me for the past year and a half, but it was acutely exaggerated in this random moment.

Since then I have not been feeling good. The past year I would rarely think about my dissociation, and when I did I was completely indifferent to it. Now Im thinking about it a lot, and im filled with feelings of anxiety and dread because of it.

Ive been thinking, was I really better? Or did I just get really good at ignoring it until now? It feels so damn confusing, like I can’t pinpoint where I am or who I am within my mind; I feel so jumbled. Im worried if I can ever get back to how I was feeling this past year. Like its almost unbelievable that I not only was functioning really well, but I was genuinely pretty emotionally content with life. I cant tell if i was in some illusory state of denial that I finally snapped out of, or if my dpdr really is worse now and its making me feel awful.

does anyone relate?
Relate? Its like I’m reading my own mind, which isn’t surprising as I am on a dp forum. But the whole “not being able to pinpoint who I am or where I am in my mind” is so close to home. It’s like my mind is constantly dragged along this ride of trying to figure out my mind or how to use it. Of course the way to get out is to not think about that though, isn’t it?
 

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i’ve had pretty much the exact same experience, recovered and felt content and dp didn’t bother me, it came back after a long time and i have a lot of anxiety with it my OCD came back, as i’ve worked through it again and i have got so much better it feels like i’m connecting to myself more than i ever had during my last recovery though, which is even more confusing as im feeling emotions and memory’s from my former self which i don’t think i felt before, well not in the same way anyway, which also has made me think did i actually recover last time as all my interests and hobbies i formally liked to do like riding my mx bike have started to come back where as during my last recovery it was strange it was like i still loved those things but i’d changed and no longer felt the need to do them anymore 🤷‍♂️
 

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Yes I can understand. When my DPDR started when I was a teenager, I remember it staying for some time and slowly disappearing and then coming back again. And every time I was in DP and/or DR, I could not remember how I felt when I was in the previous state. When I was in DP, I could not remember how I used to feel when I was normal, and when I was normal again I could not understand how it was possible that I had felt unreal, I could not even picture again what it meant. This is really what is reported by many people who have recovered, they can't even picture how they felt when they were in DP, and in the same way a lot of people who are having DP say that they feel like they have forgotten their "normal self".

And this is not just for DPDR I think, I think it is present in other states. Like when you have strong emotions you can feel like they will last forever (or at least that's true for me). When someone is very depressed they can feel like they will be depressed forever and they (or at least I) can't remember how it could be that they were not depressed before given "how bad their life is", or given "how difficult the world has always been" and so on. So I think this is something quite common that the brain does.

And if you can't really remember your previous state, the current state imposes itself as a new absolute reality that you cannot compare to anything else. So for some people it can even feel like this new state IS true reality. It feels like you are in this new state because you realized something. In my case it is clear when I have a DP episode, I feel like I have actually “realized” that the concept of personality is something artificial. My personality has collapsed, but at the same time I feel like I am now closer to the truth. But if you understand something you cannot “un”-understand it, it’s only a one-way process, so it feels like I will be stuck in this forever. This could also be the reason why some people confuse DPDR with a form of spiritual enlightenment, and I think there are a couple posts like this on the forum.

And again I think that for many people it’s the same with depression. I know someone who, when she is depressed, knows she felt happier before but she thinks she was happy for bad reasons. She says that now she knows that “people are all selfish”, “life is worthless” and so on, and that if she was happy before she was wrong. I had a bit the same with my mood disorder, every time I switched from low to high or high to low mood, every time I thought that “oh! now I understand!”, whatever the direction of the switch, every time I felt like I was wrong before and now I am closer to the truth. It’s like there are some things that are nearly impossible to question, they just feel true.

But as I said it also seems true the other way around. People who have recovered often say they think they have “understood” something. I read a couple of people on the forum saying that now that they have recovered once, they won’t ever fall back into DPDR because now they know how to “fight” it. Of course it isn’t necessarily wrong, but it happens so often that I think at least part of it is related to the same phenomenon. All the more that some of these people do relapse anyway despite this feeling.

So some people feel that they are depressed because they now see the world for what it is. Some people who fall into DP feel like they feel like this because they have realized something about the world or about their mind, and some people feel they are cured because they understood something about DPDR. So I think there is also some tendency sometimes to take credit for these changes of state. It’s weird to me that so many people come to the forum thinking they have found “the cure” and want to tell every one what they should do, and often with a kind of authoritarian tone, in my opinion, as if they are sharing a kind of realization. And I find it weird because very often they credit different techniques or therapies that have never been proven to be efficient. I do think people recover but maybe not for reasons that are obvious or reasons that they understand. (By the way, one can notice that even for depression it doesn’t work this way. I have rarely seen someone who recovered from depression telling every one how to do to get out of it, they rather offer support and understanding, knowing that everybody’s path is different)

So I just wanted to say that this disorder is full of illusions in my opinion. When I am in it I do feel like it is going to be like that forever, I do feel like I have forgotten my personality and it is not going to come back or at least not the same. Very often this illusion is proven wrong and still I believe it again during the next episode. So I try to see it just as an illusion. But because I think that for example “I will never be myself again” is an illusion doesn’t mean that now I can control it and trick myself into thinking the exact opposite and go back to normal. It’s just that if I know it is probably an illusion I know it is not the right moment to make big conclusions about my life or about my future. I think it was when I had general anesthesia for a little operation, they told me that after the operation the drug would still affect my mind but I would not be very aware of it, so they warned me that I should not make any big decision in the next day, like drop from studies, leave my girlfriend, buy a land in siberia… just to wait it out. I don’t mean that I should not make decisions when I have DPDR but that I have to remember I am not in the right mind to make big conclusions Even when I had the feeling that I would never be myself again it still happened that I found my “true self” again, regardless of what I felt or how strong I felt it. So to me that feeling is just a regular symptom of DPDR. That doesn’t mean I will or won’t find my true self eventually, just that the feeling is probably irrelevant.
 

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Discussion Starter · #5 ·
Of course the way to get out is to not think about that though, isn’t it?
That seems to be the case; when I stopped ruminating about dpdr and lived my life It was still there but it appeared to get better. I say “appeared” because I think the act of endeavouring in emotions and rich experiences will sort of mask it, but take those emotions and experiences away and it all comes back. In any case, I felt indifferent to it and I was no longer bogged down by it.

But I cant get over this thought ive had as a product of this state im currently in: I realized that all I was doing the past year was merely ignoring it, like the whole time I was tricking myself into enjoying life?? Like I was somehow still miserable and horribly disconnected but I denied it through trying to live normally. Its such a horrible thought because now that Im aware I think I can never get back to how I was living.

but of course, I hope the actual case is that I WAS truly better, and I DID gain an organic sense of self back, and now my DPDR simply got worse and Im all fucked up.

I know this is more or less tangent to what you were saying, but Im really bothered by this
 

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Discussion Starter · #6 ·
Yes I can understand. When my DPDR started when I was a teenager, I remember it staying for some time and slowly disappearing and then coming back again. And every time I was in DP and/or DR, I could not remember how I felt when I was in the previous state. When I was in DP, I could not remember how I used to feel when I was normal, and when I was normal again I could not understand how it was possible that I had felt unreal, I could not even picture again what it meant. This is really what is reported by many people who have recovered, they can't even picture how they felt when they were in DP, and in the same way a lot of people who are having DP say that they feel like they have forgotten their "normal self".

And this is not just for DPDR I think, I think it is present in other states. Like when you have strong emotions you can feel like they will last forever (or at least that's true for me). When someone is very depressed they can feel like they will be depressed forever and they (or at least I) can't remember how it could be that they were not depressed before given "how bad their life is", or given "how difficult the world has always been" and so on. So I think this is something quite common that the brain does.

And if you can't really remember your previous state, the current state imposes itself as a new absolute reality that you cannot compare to anything else. So for some people it can even feel like this new state IS true reality. It feels like you are in this new state because you realized something. In my case it is clear when I have a DP episode, I feel like I have actually “realized” that the concept of personality is something artificial. My personality has collapsed, but at the same time I feel like I am now closer to the truth. But if you understand something you cannot “un”-understand it, it’s only a one-way process, so it feels like I will be stuck in this forever. This could also be the reason why some people confuse DPDR with a form of spiritual enlightenment, and I think there are a couple posts like this on the forum.

And again I think that for many people it’s the same with depression. I know someone who, when she is depressed, knows she felt happier before but she thinks she was happy for bad reasons. She says that now she knows that “people are all selfish”, “life is worthless” and so on, and that if she was happy before she was wrong. I had a bit the same with my mood disorder, every time I switched from low to high or high to low mood, every time I thought that “oh! now I understand!”, whatever the direction of the switch, every time I felt like I was wrong before and now I am closer to the truth. It’s like there are some things that are nearly impossible to question, they just feel true.

But as I said it also seems true the other way around. People who have recovered often say they think they have “understood” something. I read a couple of people on the forum saying that now that they have recovered once, they won’t ever fall back into DPDR because now they know how to “fight” it. Of course it isn’t necessarily wrong, but it happens so often that I think at least part of it is related to the same phenomenon. All the more that some of these people do relapse anyway despite this feeling.

So some people feel that they are depressed because they now see the world for what it is. Some people who fall into DP feel like they feel like this because they have realized something about the world or about their mind, and some people feel they are cured because they understood something about DPDR. So I think there is also some tendency sometimes to take credit for these changes of state. It’s weird to me that so many people come to the forum thinking they have found “the cure” and want to tell every one what they should do, and often with a kind of authoritarian tone, in my opinion, as if they are sharing a kind of realization. And I find it weird because very often they credit different techniques or therapies that have never been proven to be efficient. I do think people recover but maybe not for reasons that are obvious or reasons that they understand. (By the way, one can notice that even for depression it doesn’t work this way. I have rarely seen someone who recovered from depression telling every one how to do to get out of it, they rather offer support and understanding, knowing that everybody’s path is different)

So I just wanted to say that this disorder is full of illusions in my opinion. When I am in it I do feel like it is going to be like that forever, I do feel like I have forgotten my personality and it is not going to come back or at least not the same. Very often this illusion is proven wrong and still I believe it again during the next episode. So I try to see it just as an illusion. But because I think that for example “I will never be myself again” is an illusion doesn’t mean that now I can control it and trick myself into thinking the exact opposite and go back to normal. It’s just that if I know it is probably an illusion I know it is not the right moment to make big conclusions about my life or about my future. I think it was when I had general anesthesia for a little operation, they told me that after the operation the drug would still affect my mind but I would not be very aware of it, so they warned me that I should not make any big decision in the next day, like drop from studies, leave my girlfriend, buy a land in siberia… just to wait it out. I don’t mean that I should not make decisions when I have DPDR but that I have to remember I am not in the right mind to make big conclusions Even when I had the feeling that I would never be myself again it still happened that I found my “true self” again, regardless of what I felt or how strong I felt it. So to me that feeling is just a regular symptom of DPDR. That doesn’t mean I will or won’t find my true self eventually, just that the feeling is probably irrelevant.
Thanks for the reply

what you said about the perceived permanence of being in a state of depression was so spot on. I thought the exact same thing and its reassuring to know that its just a part of our psychology. Because my parents have GAD and my dad in his worst year with it thought that he would never be better, and now hes the most highly functioning person that I know. But yes its one of the more scary parts of DPDR, that is feeling like its some existential revelation about existence. Youve said so many other very truthful things but I just wanted to point those out.
But I think that might be what is happening to me. My dpdr is worse now, and my inability to imagine how my dpdr wasnt ALWAYS this worse makes me come to the conclusion that I mustve been secretly miserable and ignoring it the whole time and faking my emotions. Now that I type this out I realize how stupid it sounds; the idea that I was staging my happiness and emotions for a year. or maybe it isnt, im still in this mental battle right now.
 

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I can’t relate to the disease itself. Still, I can say that when I had my first episode of persistent depressive disorder, sometimes there were periods when I felt like I was healthy again. Like nothing was wrong. After some time, however, the PDD would come back and remind me that it was not over yet.
My theory was that my brain was tired of the disease and wanted to take a break creating an illusion of health.
After such episodes, I was feeling tired, and this is because the brain used a lot of resources to block the symptoms for a while. The bad thing is that you don’t seek medical assistance of any kind or any other kind of assistance during such episodes.
 
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