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Discussion Starter · #1 ·
Hi - I thought I'd share my story, see if anyone can relate, and perhaps offer me some support.

I've been suffering with chronic DP and DR for almost 10 years. I'm in a constant dream-like state, where everything I see is flat and far away, blurry and unreal. I don't feel attached to what I see, I feel like a floating consciousness. My sense of touch is blunted as well. I often believe I really am in a dream, or this is some sort of spiritual hell. I see and feel this way 24/7, for 10 years, and it is chronically getting worse. For the most part, I function normally. I can talk to others, concentrate, look normal on the outside. But it also impacts my functioning in the sense that I feel intense discomfort interacting in my environment and what I see. I sit and observe everything rather than interact with it. I mean this in a very literal way. I don't feel comfortable touching the table I'm sitting at, doing things physically is very hard for me. It's hard for me to engage. I haven't been able to apply for a job because of this, and it's gotten to the point where I am considering disability.

I'm not scared of the way I feel, nor do I cry over it. I'm so used to feeling this way, I have grown accustomed to it, and I try to ignore it the best I can. When I can't ignore it, I feel intense apathy towards what I see, the "picture" that I see, but I also feel intense anger directed at the dissociation and I want to lash out at something, to try to "feel" again.

I've had trouble with mood disturbance these past few years, diagnosed as Bipolar, but all is stable now with the correct medication, and I have my doubts that I actually have it. I also have social phobia and avoidant personality disorder, which inhibits me from engaging socially with anyone. I have no friends and am a loner, I only hang out with my mother and two brothers. The rest of the time I engage in escapist activities.

I can't stress enough how very severe this derealization is. It never ever goes away. I suffer in this hell every day for 10 years. I've seen a few therapists and psychiatrists, but they only focus on my social phobia and mood episodes. They completely ignore my dissociation which is my MAIN mental health issue and most severe problem. When I explain it to them, they look at me like I have 3 heads and they are at a loss as to how to help me. I feel so alone in this state, no one can seem to help me, and I haven't read many stories of people who have chronic DP/DR that never goes away, so I feel alone in that way as well. I honestly have no idea how to get help with this. I had an MRI to see if there was anything physically wrong and nothing showed up.

Despite telling this to every doctor so far, none have given me a dissociative disorder diagnosis. Which I really need if I am going to apply for disability. Once they find that they don't know what is wrong, and I "look" normal, they completely ignore it. I'm seeing a new psychiatrist next month, I'm wondering how exactly I should stress this enough to get a diagnosis because everyone else just conveniently ignores it. I'm really suffering with this, but I have no hope that it can get better. I have no faith that medication or therapy will make any dent in it, it's getting worse and worse and I can't pinpoint what is making it worse, what is keeping me in this state. I feel as though it might have started due to anxiety, but instead of getting better when my anxiety got better, it is getting worse. Like something malfunctioned in my brain and I can't go back to normal.

Can anyone offer any help, advice or simply support?
 

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Discussion Starter · #3 ·
A few years ago, during an event that caused me a very strong surge of adrenaline, I came out of the dissociation for a couple of seconds. So I also have the same hope that perhaps it will just go away, and I use that experience as a bit of proof that it's possible. But it's really hard to keep up that hope..

The only person I talk to about it is my mother occasionally. But she doesn't understand it and she ends up getting frustrated and depressed, so she's not someone can go to. My past therapists were useless. And I've been on many different medications to try to handle my mood, and none have made any dent in my dissociative state.

Well, thank you for responding, it really means a lot. It's comforting to know I'm not alone in having this chronically, although I'm very sorry to hear that you have this hell as well.
 

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I'm sorry you've had this for so long. Really. I can't relate to the length of your dissociation, but can definitely relate to the quizzical looks from people who are supposed to be helping. It's just so impossible to comprehend for people who've never had this experience. Even I forgot exactly how bad it was when I recovered the first time. For nearly ten years I couldn't even believe I had ever gotten to such a point. It seemed silly even. And this was after I had experienced it for myself!

But doctors and psychologists are supposed to help you. If this is your main problem that you would like to be treated for, then assert that from the very beginning and don't even bring up anything else right away. When you fill out the paperwork for your counselling goals and such, list only that you would like help recovering from DP/DR. Tell the counselor to look it up. Bring in reading materials for her if you have to! I would also say that CBT does not seem to work at all for this kind of thing. I know it didn't work for me even though the therapist who was doing CBT with me was very nice and intelligent, and I read in other places that CBT isn't effective for people with dissociative disorders. This will be like the third time I've posted this is the past two days, but I'll say it again. lol I think that Sensorimotor Psychotherapy seems to work the best for dissociation. This is based on just a few sessions I had myself and the fact that my friend with DID stopped switching between alters after seeing a therapist who specialized in this kind of therapy. So, I'm not sure, of course, if it would work for everyone, but I feel like I have to at least suggest it or I would be holding back what could be helpful information.

In any case, good luck with the new psychiatrist. I was wondering - are you seeing a psyciatrist for counseling? I thought they mainly handled meds and psychologists did most of the actual therapy. ? Also wondering if you think your anxiety got better or if you just became numb to it. I have the same question for myself because I sometimes don't even feel as scared or anxious as I think I should feel about certain things. Just wondering. Thanks for writing your story.
 

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Discussion Starter · #6 ·
Thank you for your responses.

Drose - I think you're right that I have to bring up this issue right away and stress it's importance. Before, I always talked more about my anxiety and mood issues, because they were more "important" at the time because they were interfering with my life, and then the DP/DR was just mentioned on the side, and quickly forgotten by the professionals. I didn't talk about it too much, because my main coping mechanism is ignoring it completely, so I ended up ignoring it for the most part in sessions. And because of that, I think they thought that it wasn't severe.

I never had any belief that CBT would help with this. I never was in that type of therapy but I've read about it, and I don't see how it would be relevant at all to my DP/DR, as there are no prominent thoughts or behaviours that I can pinpoint that lead to it. CBT is too much of a simplistic approach, and I've never heard of it working for dissociative disorders. I haven't heard of Sensorimotor Psychotherapy, but I will look it up right away and see what it is!

Yes, you're right that psychiatrists only do medication. I recently stopped seeing my past psychiatrist (who also did therapy), and I had to find another doctor really quickly because I'm on medication that needs to be continued and managed, medication for my mood/bipolar disorder. I'll be looking into a therapist/psychologist as well, but I'll take my time with that. Also.. I kinda needed a break from therapy.. I've been in constant therapy since January 2010, and it's honestly made me worse. I just need a break from it, a few months I guess.

With regards to the anxiety, I honestly think it has gotten better.. I had very bad social anxiety, but it seems to have gotten to a manageable state, where in most social situations, I feel only small anxiety or none at all. Although I often wonder if it's the medication I've been on that has lessened it, I've been on medication since January 2010 as well. I just find it very disheartening that my anxiety has got better, but the dissociation gets worse. As everything I've read said that anxiety is the main cause of DP/DR, and if the anxiety lessens, then the DP/DR should lessen as well. Makes me think that something is off in my brain, that the DP/DR got switched on because of anxiety, but now it's "stuck" being on, and I can't go back to normal....

Seafoamwinter - I'm very sorry to hear that you've had this for so long, I really am. There were times where I was more optimistic and happy, but I don't recall that my DP/DR went away, at most I think I probably ignored it better.. I think you should try to think that you "can" get back to that mindset. If it happened once, it's possible to happen again. Please don't give up..
 

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Eh. I agree that anxiety probably causes DP/DR, but I don't think getting over anxiety is an automatic cure. Plus, as I've seen on this board and experienced for myself, a lot of people have a numbing of their anxiety along with other emotions with DP/DR. Anyway, glad that's lessened for you. I hope you find some more relief pretty soon. I just suddenly felt recovered myself tonight. Well, kind of suddenly. It has been a really slow process that seemed to end within just a few minutes and has remained that way for a few hours now without me having to think about it or try to hold on to the feeling of reality. So, it is possible!

PS: I'm glad to hear you had a moment of reality, even if it was a few years ago. If it could happen then, it can happen again for sure! Hope you feel more moments of reality again soon.
 

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Eh. I agree that anxiety probably causes DP/DR, but I don't think getting over anxiety is an automatic cure. Plus, as I've seen on this board and experienced for myself, a lot of people have a numbing of their anxiety along with other emotions with DP/DR. Anyway, glad that's lessened for you. I hope you find some more relief pretty soon. I just suddenly felt recovered myself tonight. Well, kind of suddenly. It has been a really slow process that seemed to end within just a few minutes and has remained that way for a few hours now without me having to think about it or try to hold on to the feeling of reality. So, it is possible!

PS: I'm glad to hear you had a moment of reality, even if it was a few years ago. If it could happen then, it can happen again for sure! Hope you feel more moments of reality again soon.
 

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Yes me to 7 years and it is a constant thing it's like if follows me everywhere I go and eveything i do very very uncomptable fir me and i do know exacatly how you feel its a prision sentance and constant battle with our minds i had very strange sensation in forehead which dont help makes me feel very ill in my mind chin up I'm with you
 

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I feel so
alone in this state, no one can seem to help me, and I haven't read many
stories of people who have chronic DP/DR that never goes away, so I
feel alone in that way as well.
You're not alone. I've had chronic DP for almost 21 years. It has not gone away for a second in that time, and reading your post, I'm sure it is the same condition that you have.

Here's some advice, if you want it.

Firstly, when you see psychologists/psychiatrists, calmly tell them you have depersonalization disorder (DSM-IV 300.6). You have to put it right in their lap so they don't get confused by your other symptoms.

But it also
impacts my functioning in the sense that I feel intense discomfort
interacting in my environment and what I see. I sit and observe
everything rather than interact with it. I mean this in a very literal
way. I don't feel comfortable touching the table I'm sitting at, doing
things physically is very hard for me. It's hard for me to engage.
You have to push out your comfort zone and engage. That is precisely how I got over the "freakout" phase of my DPD. Physical, sensory activities are precisely the medicine to stabilize oneself. Playing a musical instrument, playing sports (great for improved mood and mental functioning), fixing things, doing household chores, etc. Sitting around and observing is not helpful.

I started learning how to play basketball e.g. about a year and a half after onset of chronic DP, and I actually got quite good at it.

Think about it - the visual flatness or distortion is not an issue when I shoot 22 foot jumpers. I can shoot them a lot better than many people without DPD. These days I go to the gym, play pickup basketball and no-one suspects I have DPD.

The point is, the symptoms of DPD scare your mind into thinking you can't do something. But when you try it and stick with it, you see that those fears are irrational - you can do a lot more with DPD than you scare yourself into believing.

The key is attempting the things you fear - slowly, but consistently. That will improve your condition considerably.
 
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