The Gilbert's Syndrome Story
If you're like many people diagnosed with Gilbert's Syndrome, you've been on a long journey to find out what's wrong with you, visiting doctor after doctor and coming up with nothing. And then one day, a doctor tells you that you have Gilbert's Syndrome but that it's not the cause of your problems because their desk reference says that there are no symptoms. At that point the doctors usually tell you that all your symptoms are probably due to stress or depression. Worse still, some will claim you're a hypochondriac or making it all up. Rather than listening to your symptoms and looking for an explanation, you are sent on our way without help.
There are several scientific studies examining the many and varied effects of Gilbert's Syndrome, but apparently they havent found their way into the desk references yet. The fact is that there is a striking degree of similarity in the symptoms suffered by those with Gilbert's Syndrome, and these symptoms can be incredibly disruptive to one's life. Luckily, it is not life threatening. But this may also be the reason is doesnt get the attention it deserves.
From an exhaustive study of the symptoms reported by 283 people with Gilbert's Syndrome on the Gilbert's Web forums over the past 5 years, here are the symptoms of Gilbert's Syndrome.
Frequently Reported: fatigue, tiredness, brain fog, headaches, poor memory, dizziness, depression, irritability, anxiety, nausea, loss of appetite, irritable bowel syndrome (IBS), stomach pain & cramping, liver/gallbladder pain, abdominal pain, tremors, itchiness, jaundice
Commonly Reported: insomnia, difficulty concentrating, panic attacks, hypoglycemic reaction to foods, intolerance to carbs, food intolerances, alcohol intolerance, loose stools / diarrhea, abdominal bloating or swelling, breathlessness or labored breathing, heart palpitations, aching muscles / body ache, joint pain, numbness & tingling, weakness, chemical sensitivity, weight loss, lump in the throat, feeling constantly sick
Sometimes Reported: difficulty finding the right words, feeling drunk, vomiting, intolerance to fatty foods, strong hangovers, acid reflux, excessive thirst, chest pain, muscle twitches, cold hands and feet, environmental allergies, swollen lymph nodes, toxic feeling, bitter or metallic taste in the mouth, eye pain
Occasionally Reported: waking panic attack, mood swings, feeling antisocial, intolerance to drugs, constipation, pale stools, indigestion, back pain, dry skin, feeling cold, low body temperature, pale skin, low weight, night sweats, excessive sweating, poor immune system, sore or dry throat, light sensitivity, bloodshot eyes