[Guest]

hi, this is laur3, i forgot my old password and email, so i made a similar username.

Firstly love to you all & sorry for not being around the board for a little while.

I've been in hospital for the past two months, which is why i havent been on the board(i am on day leave with my mum today) & am now undergoing bilateral ect, which ive never done before, and being that my admission followed an overdose taken after worsened depression/dp, i figured i'd give it a go. It was inititally started as unilateral for about 4(?) times, and the past two have been bilateral.

When i went into hospital I changed from what used to be my best combo for DP/depression- which was
aropax/paxil 60ng
rivotril/klonopin 1mg
lamictal 100mg
other meds-
losec 40mg( stomach ulcer med )
naprosyn ( for neck problems ) to the same combo, but with cipramil/celexa as the SSRI.

the reason i chaged other than what happened was that aropax/paxil tends now to only to only work for afew months ( this is just with me, please dont think it will happen to you from reading this ).... as i said i initially i changed to cipramil/celexa with the other two ( which is what i generally do for afew months before going back on aropax/paxil with the other two ), but i think being that my depression was alot worse than it had been in a while, it just wasnt working.

I am now on 225mg effexor
1mg rivotril/klonopin

...and was until afew days ago still on the lamictal at 125mg.

But am having to go off it abruptly because when the dose was raised i got mouth ulcers ( its ok, they sent me to a dermotologist, did blood tests, have been taking my temp and obs and the Pdoc i am seeing in hosp is very good and open minded ).... and the dermotologist said i might be able to restart it in a week or so hopefully.

Plus the losec for my tummy, the narprosyn for my neck and also valium for anxiety ( 7.5mg + prn(when needed)- but only every 2nd non pre-ect day ), and mogodon(nitrazepam-only on non pre-ect days ) for sleep. When im not on them because i have ect the next day, i am on largactil(thorazine) for anxiety and sleep.

Was just wondering if anyone here has experience with ECT and DP, i'm more than willing to keep on going, but i havent noticed any difference yet and had heard it may not be good for DP, i trust this new Pdoc so i'll keep going for now, i am just weary it may make it worse and was wondering if either of the research units had done studies on it.

I also cant remember how i felt last time i was on effexor previously, but even though it doesnt feel like its working, im staying with it for now and the other meds arent causing any probs and i've been on them before.

Sorry if this is abit rambly, we have to get going so im trying to write quickly-

Im going to give my dad the password to this account so he can check the replies while im still in hosp, thankyou very much for any input and sorry if the post may have been triggering for some.

Love and best wishes to you all,
Laur3 a.ka laur333
xxx3

 

[Guest]

hi, this is laur3, i forgot my old password and email, so i made a similar username.

Firstly love to you all & sorry for not being around the board for a little while.

I've been in hospital for the past two months, which is why i havent been on the board(i am on day leave with my mum today) & am now undergoing bilateral ect, which ive never done before, and being that my admission followed an overdose taken after worsened depression/dp, i figured i'd give it a go. It was inititally started as unilateral for about 4(?) times, and the past two have been bilateral.

When i went into hospital I changed from what used to be my best combo for DP/depression- which was
aropax/paxil 60ng
rivotril/klonopin 1mg
lamictal 100mg
other meds-
losec 40mg( stomach ulcer med )
naprosyn ( for neck problems ) to the same combo, but with cipramil/celexa as the SSRI.

the reason i chaged other than what happened was that aropax/paxil tends now to only to only work for afew months ( this is just with me, please dont think it will happen to you from reading this ).... as i said i initially i changed to cipramil/celexa with the other two ( which is what i generally do for afew months before going back on aropax/paxil with the other two ), but i think being that my depression was alot worse than it had been in a while, it just wasnt working.

I am now on 225mg effexor
1mg rivotril/klonopin

...and was until afew days ago still on the lamictal at 125mg.

But am having to go off it abruptly because when the dose was raised i got mouth ulcers ( its ok, they sent me to a dermotologist, did blood tests, have been taking my temp and obs and the Pdoc i am seeing in hosp is very good and open minded ).... and the dermotologist said i might be able to restart it in a week or so hopefully.

Plus the losec for my tummy, the narprosyn for my neck and also valium for anxiety ( 7.5mg + prn(when needed)- but only every 2nd non pre-ect day ), and mogodon(nitrazepam-only on non pre-ect days ) for sleep. When im not on them because i have ect the next day, i am on largactil(thorazine) for anxiety and sleep.

Was just wondering if anyone here has experience with ECT and DP, i'm more than willing to keep on going, but i havent noticed any difference yet and had heard it may not be good for DP, i trust this new Pdoc so i'll keep going for now, i am just weary it may make it worse and was wondering if either of the research units had done studies on it.

I also cant remember how i felt last time i was on effexor previously, but even though it doesnt feel like its working, im staying with it for now and the other meds arent causing any probs and i've been on them before.

Sorry if this is abit rambly, we have to get going so im trying to write quickly-

Im going to give my dad the password to this account so he can check the replies while im still in hosp, thankyou very much for any input and sorry if the post may have been triggering for some.

Love and best wishes to you all,
Laur3 a.ka laur333
xxx3

 

[Dreamer]

Dear Laur,
Good grief! Sounds like you've been having a VERY rough time, I'm sorry to hear that.

The only thing I can comment on is ECT re: myself and a few people I've known w/DP who've had it.

1. I had considered it myself, back in the late 1990s when I was working w/a very biologically oriented psychiatrist. Very up to date on meds, etc., etc. Had inpatients/outpatients, Clinical professor at a top U.S. university.

He said he found ECT to not be a treatment of choice for DP/DR. And he didn't think it would be a good idea for ME, but it was up to me to look into it. He said, he wouldn't do it, he insisted I see an ECT specialist for a consult.

I changed my mind about it, mainly because my goal was to hit the DP/DR. I have depression also, but I feared that the temporary memory loss/confusion after ECT would make me worse, so I chose not to go that route.

2. A former member of this Board who has a number of problems, depression/OCD and DP/DR (chronic), tried ECT in hospital for a month I believe. He said it made him feel much worse. He however did not respond to a HOST of medications. He simply doesn't respond to much at all. Very treatment resistant. The ECT didn't help the DP/DR or depression. And he had a negative view on it.

3. Another former member here, haven't heard from in quite some time, had a very interesting experience with ECT. He would have a treatment, and the DP/DR would go away immediately, but it would slowly come back in about a week. (I hope I'm telling this correctly, but I think a week). He'd then have another treatment (or series of treatments?) and the DP would go away, 100%. But it would slowly return.

He stopped trying it.

To the best of my understanding those who have tried it have found it generally temporarily makes the DP worse, but then one returns to normal DP. If this is to treat depression, it can be very effective. Again, after trying other methods of treatment w/ different meds, etc.

Bottom line. We are all so unique, it is so hard to answer the question.

My personal answer is, for you? I don't know. I hope others will chime in. My overall sense, and I don't want to discourage you, is that ECT is not a recommended treatment for DP/DR.

On the other hand, there is no specific treatment for DP/DR. We're all stabbing around in the dark.

I hope you are feeling better soon! Sounds like a very rough summer for you!

Take Care,
Dreamer

 

[Dreamer]

Dear Laur,
Good grief! Sounds like you've been having a VERY rough time, I'm sorry to hear that.

The only thing I can comment on is ECT re: myself and a few people I've known w/DP who've had it.

1. I had considered it myself, back in the late 1990s when I was working w/a very biologically oriented psychiatrist. Very up to date on meds, etc., etc. Had inpatients/outpatients, Clinical professor at a top U.S. university.

He said he found ECT to not be a treatment of choice for DP/DR. And he didn't think it would be a good idea for ME, but it was up to me to look into it. He said, he wouldn't do it, he insisted I see an ECT specialist for a consult.

I changed my mind about it, mainly because my goal was to hit the DP/DR. I have depression also, but I feared that the temporary memory loss/confusion after ECT would make me worse, so I chose not to go that route.

2. A former member of this Board who has a number of problems, depression/OCD and DP/DR (chronic), tried ECT in hospital for a month I believe. He said it made him feel much worse. He however did not respond to a HOST of medications. He simply doesn't respond to much at all. Very treatment resistant. The ECT didn't help the DP/DR or depression. And he had a negative view on it.

3. Another former member here, haven't heard from in quite some time, had a very interesting experience with ECT. He would have a treatment, and the DP/DR would go away immediately, but it would slowly come back in about a week. (I hope I'm telling this correctly, but I think a week). He'd then have another treatment (or series of treatments?) and the DP would go away, 100%. But it would slowly return.

He stopped trying it.

To the best of my understanding those who have tried it have found it generally temporarily makes the DP worse, but then one returns to normal DP. If this is to treat depression, it can be very effective. Again, after trying other methods of treatment w/ different meds, etc.

Bottom line. We are all so unique, it is so hard to answer the question.

My personal answer is, for you? I don't know. I hope others will chime in. My overall sense, and I don't want to discourage you, is that ECT is not a recommended treatment for DP/DR.

On the other hand, there is no specific treatment for DP/DR. We're all stabbing around in the dark.

I hope you are feeling better soon! Sounds like a very rough summer for you!

Take Care,
Dreamer

 

[Guest]

I also have no personal experience with ECT, but I know from first hand sources that it can be quite helpful for very resistent forms of depression. I doubt that ECT does anything to directly reduce dp, BUT....if your dp is depression-based, and you can reduce/eliminate the depression, then you're well on your way.

Again, like everything: Common Sense first.

You've had a few treatments, right? How do you feel? Better? The same? Worse? That alone should determine whether you continue. There is nothing anyone can tell you that replaces your own experience with any form of treatment.

Peace,
and hope you get "sprung" from your hospital soon, grin,
Janine

 

[Guest]

I also have no personal experience with ECT, but I know from first hand sources that it can be quite helpful for very resistent forms of depression. I doubt that ECT does anything to directly reduce dp, BUT....if your dp is depression-based, and you can reduce/eliminate the depression, then you're well on your way.

Again, like everything: Common Sense first.

You've had a few treatments, right? How do you feel? Better? The same? Worse? That alone should determine whether you continue. There is nothing anyone can tell you that replaces your own experience with any form of treatment.

Peace,
and hope you get "sprung" from your hospital soon, grin,
Janine