I think this is probably one of the most significant and useful polls on this message board. I feel that I did something of a disservice not including a series of questions on the study that relate to the physical symptoms, however this sounds like a great pilot study for an undergraduate student to take on.
Although not a person with DP, I admit that after my experience with substance abuse that I have been to the ER for every sort of pain and they all thought I was a hypochondriac.
My research agenda for graduate school (so I will be much more knowledgable about mechanisms and also have the equipment and funding to do so) is to look at the manefestation of physical symptoms, which have no tangible physical explanation, in patients with DP/DR/HPPD.
I am curious if individuals taking Klonopin, Valium, Ativan, or Xanax find that these substance eliminate their strange pains. Although this class of drugs can help with chronic pain, I can eliminate the horrible head pressure with even .5 mg Klonopin. It this the best treatment for these pains? I do not have an answer. Could use of benzos potentially mask a more serious medical condition, perhaps. However, I do know that my intense body energy buzz, head pressure, side pains, chest pressure, and extreme neck pain (to the point that even touching a muscle on my neck would set me in to tears) can be eliminated with a dose of 1 mg Klonopin daily.
I am very interested in this subject, however I have only so many hours and no money. But, I hope that this post stays active and individuals continue to respond. I could probably draw up a quick study of physical symptoms and allow people to check physical symptoms and severity scores and then collect the data. However, it would take some time and I have to have some sort of life outside of the computer.
All my best to those of you suffering these pains, because I can handle my HPPD (although can't drive at night), but the physical pains are the worse symptoms that I have. I have respect for all of you who experience DP/DR and these pains. My best to all.
David