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Discussion Starter · #1 ·
For those unsure as to how/why they're experiencing DP/DR all the time......

If one of your troubles is being short of breath, try taking a pulmonary function test.

I have had two over the past 5 years and did terrible each time. Even though I'm a non-smoker I was told that I breathe like an 80 year old.

I'm always short of breath even though nothing medically can explain the shortness of breath.

When I'm lying flat on my back, watching my belly rise and fall as I breathe in and out, my abdomen will quiver and spasm quite prominently.

Was wondering if anyone else experiences this. The diagnosis is "diaphragmatic flutter" and it can cause DP/DR 24/7, which is what I've been struggling with the past 11 years.

It seems that this diagnosis is super rare, with only about 40 reported cases in the past several decades. And everyone with the problem eventually ended up on disability (all of this is according to the information I've found in medical journals online).

After all, with "diaphragmatic flutter" not only do you experience DP/DR 24/7, but also constant shortness of breath or choppy, uneven breathing to go along with the DP/DR. It makes "life" quite incapacitating.

Even though the problem appears to be pulmonary, those with acid reflux should be checked by a GI doctor. Acid can come up the throat and then go down into the lungs, where an infection can start.

"Diaphragmatic flutter" may result from forced breathing being superimposed over natural breathing. As a result, the whole natural body/breath rhythm is thrown off.

Can anyone relate to this "diaphragmatic flutter" or am I pretty much on my own with this one? Just wanted to post this in the event someone else experiences similar quivers in their belly and is not sure what is going on.

Best Wishes,

Jeff
 

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Hmm. Is one of the symptoms of this disorder intermittent hiccups? That's one of the few symptoms I've experienced that I really can't explain, and my doctor doesn't seem too concerned about. Frequently, out of the blue, I'll hiccup for no reason. Just once. It's not like a normal hiccup, but deeper and slower, like a "gulp." It really drives me nuts. :(
 

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poonanny said:
how does this have any connection to DP? im just wondering...
could you specify more on what its like... cause im a hypochondriac and im very prone to picking up diagnosis' for myself. :)
Dear 1A,
Also curious about this. My reaction to a new illness is to go research it. Thank God I don't think I have it. My hypochondriasis really was its worst as a child, teen, in my twenties.

I found a lot of interesting information at good old
http://www.pubmed.com

It seems to be found in neonates and horses! It is also apparently a neurological problem. Found a recent article, not the full abstract ... interesting ...

Mov Disord. 2005 Aug 20 (8)917-8.

Antony van Leeuwenhoek and the description of diaphragmatic flutter (respiratory myoclonus).

Larner AJ.


Walton Centre for Neurology and Neurosurgery, Lower Lane, Fazakerley, Liverpool, United Kingdom. [email protected]

*Interesting as there is an email address for this Larner guy if that helps*

This article reviews the first account of diaphragmatic flutter, published by Antony van Leeuwenhoek, the renowned microscopist, in 1723. The completeness of the clinical description merits the eponymous description of Leeuwenhoek's disease.

Copyright 2005 Movement Disorder Society
PMID: 16007667 [PubMed - in process]
-------------------------------------------------------------------------------------
One can search under three names: diaphragmatic flutter, respiratory myoclonus, Leewnehoek's disease.

1A,
It seems this can be neurological (a movement disorder). Have you seen a neurologist or only a gastroenterologist? And again, curious about the connection to DP.

Best,
D
 

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1A said:
(all of this is according to the information I've found in medical journals online).
Oops, you've already been into the med journals. Still curious if this has been Dxd as a gastro or neurological disorder in you?

And again, the connection to DP I'd gather is irregular breathing? or sleep disruption? Very curious.

Obsessive medical researcher 8)
D
 
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