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Discussion Starter · #1 ·
Ernestia here

i'm also an amateur researcher on DP.

But the data regarding it is something i might like to begin collecting now. i do think that we can make a difference by banding together.

I was considering, a public database (For those of you who'd like their symptoms and information to the available to the public). Or, private works too.

There are alot of ppl discussing recovery stories, things they've tried, etc and that's all good- but it isn't organized in any fashion. I was thinking, a database, following a survey to categorize the different forms of DP, might help. Cuz, everyone experiences different forms of DP right- some have complete emotional numbing, others- existential thoughts, etc. That means that there must be dysfunctions in different areas of the brain correlating to each of those symptoms. (Brain, or thyroid, etc).

This goes specifically to the DP that is more than just "In thought"- that is, there are people who have claimed to found cures simply by going back into life and living it, and coming back to reality. Although that is a form of DP that seems to be in "thought pattern"- there are others that haven't been so lucky, and found their symptoms a tad bit uncontrollable, perhaps even neurological.

I have created a survey form which i might be sending out.

The research might involve in depth skype interviews- right now, it just involves answering a simply survey for the creation of a database in which people with similar symptoms and medical history can be categorized with other similar symptoms. In the hands of an analyst, patterns may be found in terms of treatment options, because all these people have been trying out different things, seeing what works and what doesn't.

It might aid ppl in finding a cure following experiences of others rather than "re-inventing the wheel" to find treatment that works for them, and in terms of research- the data itself is very useful for finding participants.

What do you guys think?

Do share your ideas.

Anyone who signs up for the database may be contacted for future FMRI/ EEG studies regarding this (As soon as I can get studies approved by the government, which may take some time)
 

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Discussion Starter · #2 ·
For now, I was considering a simple "searchable site". In which one can search up their symptoms and come across similar cases of other people.
"Ex, someone searched "visual distortion" and comes across a case involving visual distortion."

the point is to help people find correlations between symptoms that are similar to theirs, as well as help researchers look for patterns.
ex.
DP case 1 involves complete emotional numbing and tries medication S, he is cured. DP case 2 is similar and comes across DP case 1
 
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