[cesart]

my pyschs/docs think i have chronic fatigue syndrome as a result of the dp/dr, and also the fact i had glandular fever a few years ago. does anyone else get this? im absolutely exhausted...past tired even. this is even when ive had enough sleep. also my whole body aches to the point where i cant move...its awful. anyone else experience something similar? take care everyone...cx

 

[peacedove]

Yes! Everyone thinks I'm just lazy... even I do at times. I haven't been diagnosed, but I think I have this.

I am sooo tired all the time no matter how much sleep I get. I could come home from work and go to sleep for five hours, wake up and get everything ready to go for morning, go back to bed and sleep for seven hours.... and it's still hard to get up in the morning!!! And then I have to drink two cups of coffee just so I won't fall asleep at work. And then I get home and I'm tired again.

My mom and my boyfriend are constantly trying to wake me from my after work naps. They don't understand that it's like physically painful for me to get up. I mean not like a really bad pain, but those aches you described.

Well maybe it's different from what you're talking about, but it's definitely something. I used to be an insomniac now I have to fight to stay awake. Maybe it's my meds, but maybe this has something to do with it, I'm gonna ask my psych. and see what he thinks.

 

[David Kozin]

cesart, e-mail privately. I may have a contact and some references for you. There are some interesting relationships to what doctors refer to Chronic Fatigue Syndrome and various causes.

- dk

 

[peacedove]

can I email for this info :?

 

[fingertingle]

You should definitely eliminate other possible causes first. My doctors jumped at the gun to identify me with some psychological problem when I came in complaining of being tired all the time, but it was diabetes. I don't really think they do anything for chronic fatigue either, so in that case a diagnosis would be pretty useless :/ Not sure.

 

[David Kozin]

There is some very surprising research, which is still somewhat controversal regarding a type of bacterial infection, and when a patient is placed on an anti-batcterial regimine, the individuals have recovered in sometimes less than a few weeks (although some up to a year a more) This is getting more common in what sometimes can be mistaken as "Adult On-set asmtha", which will not respond to typical asthma drugs like Albuterol, Advair, etc, but responds extremely quickly to Zithromax or Biaxin. It gets quite complicated and is not my area, but I am very interested in the topic and know some people involved. This type of unconventional treatment is finally getting recognition. This is VERY similar to how people once thought ulcers were "all in the head" and then they (now Nobel Prize Winners) discovered the H. Pylori bacteria that were actually the cause and it was a bacterial intefection and could be treated accordingly.

Sure, anyone can e-mail me. I just have so many lately, so it may take 3-5 days for me to get to them.

All my best,

David

 

[boohoo]

I've got cfs and I know how terrible it is. People say, oh that's when you're tired all the time, isn't it. But it's more than that, it's feeling so ill. I feel like I constantly have a really high temperature even when I don't, because my head pounds in my ears whenever I move about and I get so dizzy the room spins round when I sit down. And obviously having no energy etc. I have a headache every day. You'll probably be sent for tests to rule out anything else, and it's difficult to get a diagnosis. But I found that eating a strict diet is a good help, eg no spread and crap like that - use butter instead and make sure things you eat are pure. Drink lots of water and try not to have too many additives. I know it's difficult. Sorry, I hope this doesn't sound patronising. Good luck in getting help for it.

 

[Homeskooled]

Dear Boohoo and Cesart,
Boohoo, you should ask your doctor to test you for porphyria, using a blood and urine test. With porphyria, you have temperature changes in response to chemical exposures. I have it. A good way to clean the air in your home is to buy some peace lilies, and eat organic foods if you can.

Cesart, I was just going to tell you, because of the aching joints, to get a Lyme Disease test, a Liver function test, and a test for autoimmune disorders. Nodid, right on man, its good to see that other people on here are keeping up with the latest medical data. I didnt even know the thing about the adult onset asthma, although I definitely know about the antibiotic regimen for chronic fatigue. They use that for Lyme Disease CFers too. Cesart, I would follow up with all of this.

Peace
Homeskooled

 

[Guest]

Hey gang,

I know that for myself, because of the DP, I have to think alot more these days about EVERYTHING. When I work, when I drive, etc...so by the end of the day, I am mentally exhausted. This could have something to do with it.

I wish you peace,
Tony