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Discussion Starter · #1 ·
Is it normal tho to not physically feel body like cannot feel my face or head or skin on my face like no joke can’t feel it whether I touch it or not and it’s diffivult to talk bc of it I can’t feel my lips when I talk can anyone lmk if this sounds like what they experience or If it’s different like completely can’t feel face don’t feel like I’m in it it’s so bad so trippy feels beyond weird it’s been non stop almost 3 months can’t even put on makeup bc of it. Will it end ???
 

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If you can't feel it only on one side then that can be from a stroke or something related such as Bell's palsy. If it's your whole face and you can feel pain when you pinch it or did your nail in then it's more than likely just hyper awareness but if you are actually experiencing numbness in your face then I highly suggest you seek immediate medical attention. Hyper awareness is not the same as numbness though they feel related your trying to feel something that does not normally has awareness to it unless something is actually physically touching it for example the hair on your arm you do not feel at any point in less it's being pulled or something is touching it and you might have hyper-awareness trying to understand why you don't feel it when in reality you do it's just not sustainable because it is not being used in a function like it is designed for
 

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Discussion Starter · #4 ·
Thank you, no I can't feel it when I dig into it or anything at all honestly strangest thing I've ever experienced just complete loss of sensation. I went to ER they couldn't find anything wrong in MRI or bloodwork and nerve test and neurologist doesn't know what it could be since nerve test and emg were fine so I was wondering if this could be dissociation or a type of it or depersonalization. Ik u prob aren't a dr but ppl here seem to know a lot it is so weird I can't even feel my teeth or lips and ik it's not bc I'm
Overaware sadly. What do u think this could be? Or any chance of it being depersonalization? Autoimmune? Etc? Thank u!! Desperate right now
 

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Discussion Starter · #5 ·
Like the only way I can try to explain it is saying it feels like my face just isnt there and I know it is but there’s zero sensation in any part from forehead to chin and inside mouth too and when I blink can’t feel it when I scratch can’t feel it it’s weird sometimes it tingles tho it just feels like I’m not inside my skin but not out of it ik this sounds crazy it wasn’t too bad at first but has gotten a lot worse and ik I’m not dying since I’ve had this for 3 months but it’s just so uncomfortable I’ve had to drop out of school and leave my job. I’m on 50 mg of Zoloft and have been on it for 10 years that’s the only thing I can think of that could have caused this I don’t drink or smoke or do any drugs. I was fine and functioning before this it happened so fast
 

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Discussion Starter · #6 ·
Like the only way I can try to explain it is saying it feels like my face just isnt there and I know it is but there’s zero sensation in any part from forehead to chin and inside mouth too and when I blink can’t feel it when I scratch can’t feel it it’s weird sometimes it tingles tho it just feels like I’m not inside my skin but not out of it ik this sounds crazy it wasn’t too bad at first but has gotten a lot worse and ik I’m not dying since I’ve had this for 3 months but it’s just so uncomfortable I’ve had to drop out of school and leave my job. I’m on 50 mg of Zoloft and have been on it for 10 years that’s the only thing I can think of that could have caused this I don’t drink or smoke or do any drugs. I was fine and functioning before this it happened so fast
 

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Hun if you're telling me you could poke yourself with a needle or something Sharp and it would not inflict pain then there absolutely has to be something neurologically wrong. I would certainly reach out for better advice from say a neurologist to be sure because though it feels odd and foreign and numb we all still actually can feel the parts of the body but we may feel different Sensations but complete numbness does not come with depersonalization or derealisation unless you're talking about your thoughts feelings or emotions
 

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Hi Megannbray,

I think I have very similar symptoms to what you describe about your face, but except I can feel my face when I touch it.
I'll describe my symptoms below.

I don't feel my face properly. I feel that there is a face but it seems as if I don't feel the exact boundaries of my face.
I don't feel my forehead, my eyelids or my cheeks. I also feel tingling sensations in my face often. I find it difficult to make facial expressions.
For example I feel uncomfortable when I have to smile. I smile by remembering what it looked like in the mirror rather than actually feeling it.

I thought this might be part of DP for sometime but now I believe I've a neurological condition. So I'm talking to a neurologist this week about it. It might take couple of weeks to get a diagnosis.

I'm sorry about your condition but I'm interested to know what you might find out about it.
Please post something here if you find the cause or a solution.
I'll post here when I get a diagnosis.

- Abe
 

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Discussion Starter · #9 ·
Abe89
Thank you. Yes I feel like that also but just added symptoms like the no pain and stuff it's so hard to explain I saw a neurologist and she had me start taking more b12 and a month has passed no relief she also had me do a nerve test and an EMG which came back negative and Normal. I had an mri done as well since I've had a history of a brain tumor. Still can't find anything wrong. It's tough and I saw the neurologist again today she said basically she can't help me anymore and that my symtoms aren't neurological which made me feel crazy. I'm doing some blood work to check for autoimmune and I had a hormone test and it came back very high cortisol not sure if that has anything to do just very scary to feel like this. I miss my life as I'm sure you do too:(
 

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Discussion Starter · #10 ·
Tyree225

Yes I agree completely yet the neurologist said there's nothing more she can do which is devastating to me. I had a nerve test and an mri and an EMG Wish there was a med or something I just wanna feel. Ik it sounds crazy it's just like my face isn't there at all 0 sensation. Gonna stay positive and keep fighting. Thanks for ur advice
 

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Sounds familiar. It's a nasty terrifying feeling. Couldn't feel my brain and body for months when "dp"started I would touch my head and it's like my finger wasent there like I was getting ready (numb)for surgery. Same crap happened to my body where I would pinch my self and not feel it. Everytime I went to sleep couldn't feel the mattress on my skin or my head on the pillow. Same feeling when they numb you for surgery. Horrible. Felt like I was floating only my eyes existed.
 

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It's tough and I saw the neurologist again today she said basically she can't help me anymore and that my symtoms aren't neurological which made me feel crazy.
We shouldn't believe everything doctors say. Despite how experienced they are they often make mistakes, just like everyone else.

I miss my life as I'm sure you do too:(
Yes, I want to feel like myself again. But I also know I should try to solve this problem very patiently.

I might get demoralized if all my attempts to recover fail at once.

One thing I remembered now is I used to accidentally cut myself while shaving very often because I couldn't feel my face and body properly. I've opted to use a electric hair trimmer since then.
 

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Are you very anxious about it? Because that's what always made it 100x times worse for me.. I would obsess about it and the numbness would spiral out of control.. The only thing that stopped it for me was taking a benzo and calm the f** down.. I had that phase of not being able to feel my body and my head (I literally couldnt feel the water running on my skin during a shower).. I would get crazy anxious and HAD to start distracting myself or take a benzo.. i don't have this symptom any longer (because now i'm obsessing about other symptons).
 

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Discussion Starter · #16 ·
Will this go away? I’ve even gone to ER for this it’s truly hell. I am scared of being put in a mental hospital for it. It needs to go away I’m not crazy I was functioning fine before this I could legit bite through my lip and not feel it I can’t feel food or water in my mouth or taste it barely I can’t feel any part of face or sensation even with my mouth closed or open. I can’t feel myself talk it’s just crazy. I don’t wanna hurt myself I just wanna feel okay. I can’t even feel my skin like legit feels like it’s not there and can’t feel my teeth even if I grind them it’s just this extremely strange awful trippy hellish feeling. The rest of my body feels okay I think just face head mouth brain area. So scary. It makes it difficult to talk or even stand there bc I don’t feel there I cannot feel a thing and my brain doesn’t register that I’m in my body but I don’t necessarily feel outside of it at all and everything around me feels the same. Will this go away? So desperate at this point my life is robbed from me. What should I do?? Any suggestions? Pls pls pls. Any med suggestions or anything?
 

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Will this go away? I've even gone to ER for this it's truly hell. I am scared of being put in a mental hospital for it. It needs to go away I'm not crazy I was functioning fine before this I could legit bite through my lip and not feel it I can't feel food or water in my mouth or taste it barely I can't feel any part of face or sensation even with my mouth closed or open. I can't feel myself talk it's just crazy. I don't wanna hurt myself I just wanna feel okay. I can't even feel my skin like legit feels like it's not there and can't feel my teeth even if I grind them it's just this extremely strange awful trippy hellish feeling. The rest of my body feels okay I think just face head mouth brain area. So scary. It makes it difficult to talk or even stand there bc I don't feel there I cannot feel a thing and my brain doesn't register that I'm in my body but I don't necessarily feel outside of it at all and everything around me feels the same. Will this go away? So desperate at this point my life is robbed from me. What should I do?? Any suggestions? Pls pls pls. Any med suggestions or anything?
Your fine and safe. Don't worry. It's actually a very very common symptom you are describing and most people have/had it... Its because you are focussing on it to much and the added anxiety will make it worse.. Seriously, just ignore it and focus on other stuff.. If you really need INSTANT relief, go to your pdoc or GP and ask them for a benzo.. just make sure you don't abuse them, but I honestly don't believe its harmfull if you just use it for a really short time to calm you down (1 or 2 days).

But distraction/ignoring would be your safest bet. I couldn't ignore it, because my anxiety is just to persistant so I was FORCED to take a benzo before shit really started hitting the fan.

The symptoms your describing i'v had aswell, and now I don't have them anylonger so...
 

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Discussion Starter · #18 ·
Thnk you so much how long did it take to go away for u? I’ve had it for 3 months. Even when I try to distract and I don’t think about it it is still there even in my dreams sometimes.
 

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Hi Megan, DP can raise some very strange sensations and feelings all over your body. Went I saw really bad 2 of my left fingers were completly numb. My face looked a bit droopy on one side. My pupils would be different sizes. Sometimes I'd wake up in the middle of the night and feel like my arms had swapped sides. Other weird experiences like I woke up in the middle of the night and I didn't know what I was, who I was, where I was or which way up I was! DP can have many causes but its to do with communication in the brain.

My DP was also gone within a couple of weeks using SSRIs. Its been 80-90% gone since 2007. I still get minor eye floaters, visual static, emotional blunting and a little brain fog but I function well!
 
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