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Discussion Starter · #1 · (Edited by Moderator)
Both my brother and I were on therapeutic doses for 2 years. After 2-3 months on being on it (dexedrine) I felt better than in a long time. Little did we know it was neurotoxic. When we tried to wean off my brother went beyond DP, literally like living in other universes without any conciseness 3 mos ago plus he cannot get any restorative sleep. My DP has never been worse either plus fear and anger are sky-high. I don't know if we will recover from this and when but this is living hell.

Stay away from amphetamines and all psychiatric drugs if you can.
 

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I read a post on here about a person who after getting off an SSRI his DPDR skyrocketed. Fortunately, over the course of 10 months he almost completely recovered. It may take a while but perhaps your brain can readapt to baseline.

I see that you've had DPDR since 12. Im interested in the lives of people who've had this long term. How old are you now? How have you coped with it thus far? Could you still say that you've had good experiences despite living like this?

EDIT: also, howcome you guys tried to get off the medication despite it working for you?
 

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I read a post on here about a person who after getting off an SSRI his DPDR skyrocketed. Fortunately, over the course of 10 months he almost completely recovered. It may take a while but perhaps your brain can readapt to baseline.

I see that you've had DPDR since 12. Im interested in the lives of people who've had this long term. How old are you now? How have you coped with it thus far? Could you still say that you've had good experiences despite living like this?

EDIT: also, howcome you guys tried to get off the medication despite it working for you?
I have had dp/dr on and off since the age of 5. I am 26 now.
 

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I have had dp/dr on and off since the age of 5. I am 26 now.
Okay, I guess I mine as well ask you too; How have you coped with it thus far? Have you gone through periods where you don't even think about it? Could you still say that you've had good experiences despite living like this?
 

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Okay, I guess I mine as well ask you too; How have you coped with it thus far? Have you gone through periods where you don't even think about it? Could you still say that you've had good experiences despite living like this?
I sense a reassuring tone in your questions, are you asking this because you really want to believe you can get out of this? To just really know that it's possible to get better? And to answer your questions.Yes, from the age of 5 untill around 16. I had it on and off, days with and days without. At these times I did not even know what it was, I just thought it was normal and that feeling "tired" felt that way. I had lots of anxiety, panic attacks. Night terrors and all that. At 16 I had a very stressful period and at moment I truly felt DP coming up and I googled it, and the rest is history. Even after that it went away and I had many happy moments with peace and happyness. So yes you can feel better, the past few years have been very tough and it's been at its worst ever. But I do have hope it can get better again. It really comes down to just living your life, staying calm. No stressfull things etc. Just the simple stuff, believe me when I say that I have researched this disorder for more hours than I can even count. I have been obsessed about it for YEARS. And what can I tell you? You wont get any further, it's much more simple then we think. I don't even have the power or will to find the answers or why this happens. Just let things be.
 

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I sense a reassuring tone in your questions...
Yeah, can you blame me? These past few weeks I have been in a state of what I think is hope, but maybe its denial. I read some of the posts on here- the ones that seem the most fatalistic, torturous, and unsurmountable. I think to myself, this wont be me, in a year or two I will be out of this. To see the world this way forever seems so absurd that I can't believe it's even happening RIGHT NOW. Let alone it happening the rest of my life. But I realize, maybe I am just being willfully ignorant for my own good. People do have this for decades, I am deluding myself to think that I am somehow "different" and will get out of this. I have been getting worse for almost three months. I think, I have to stop getting worse eventually. Am I one of those phenomenally rare cases where my disorder progresses until my soul is gone? I think that there is no way that is me, and I find some reassurance. But I forget that there is no telling that I will stop getting worse.

So, what Ive recently started doing is trying to get some vague census on how people live with this long term. And I've seem to find that there are more people who have been able to live, recover from, and stay hopeful in a state of DPDR than I have thought. This gives me hope. But I am battling with the thought that my case is worse than others, which I know on some level is bullshit, in fact I should feel greatful for what I have compared to others. But the thought still prevails, mine has gotten to severe to recover from.

This is longer than I expected. If you care to answer, I have one more question. Can you see any reason for why things have gotten worse for you in the past few years?
 

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Yeah, can you blame me? These past few weeks I have been in a state of what I think is hope, but maybe its denial. I read some of the posts on here- the ones that seem the most fatalistic, torturous, and unsurmountable. I think to myself, this wont be me, in a year or two I will be out of this. To see the world this way forever seems so absurd that I can't believe it's even happening RIGHT NOW. Let alone it happening the rest of my life. But I realize, maybe I am just being willfully ignorant for my own good. People do have this for decades, I am deluding myself to think that I am somehow "different" and will get out of this. I have been getting worse for almost three months. I think, I have to stop getting worse eventually. Am I one of those phenomenally rare cases where my disorder progresses until my soul is gone? I think that there is no way that is me, and I find some reassurance. But I forget that there is no telling that I will stop getting worse.

So, what Ive recently started doing is trying to get some vague census on how people live with this long term. And I've seem to find that there are more people who have been able to live, recover from, and stay hopeful in a state of DPDR than I have thought. This gives me hope. But I am battling with the thought that my case is worse than others, which I know on some level is bullshit, in fact I should feel greatful for what I have compared to others. But the thought still prevails, mine has gotten to severe to recover from.

This is longer than I expected. If you care to answer, I have one more question. Can you see any reason for why things have gotten worse for you in the past few years?
From my experience why it gets worse, is because you allow it getting worse. By contributing focusing on it, being on here 24/7. When I recovered I just went on with my life, despite how hard things were. And yes it got worse due to a break up, and to much screen time etc. Isolating, quitting work etc. That all made it worse. Worst descision was quitting work. Just leave this place, that's what I tell everyone who just got it. You wont find an answer. Your system is overloaded it's telling you, give it rest and the care it needs.Everyone thinks they got the worst case, and to be quite frankly it's impossible to measure. It's very lonely, to be honest. I also think I got it the worst. I have it very very bad. No sense of time and all the other symptoms, but I am not afraid of it anymore. Even this gets "normal". People who got it later in life have a higher chance of recovery, for me it's ingrained in my soul.
 

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From my experience why it gets worse, is because you allow it getting worse. By contributing focusing on it, being on here 24/7. When I recovered I just went on with my life, despite how hard things were. And yes it got worse due to a break up, and to much screen time etc. Isolating, quitting work etc. That all made it worse. Worst descision was quitting work. Just leave this place, that's what I tell everyone who just got it. You wont find an answer. Your system is overloaded it's telling you, give it rest and the care it needs.Everyone thinks they got the worst case, and to be quite frankly it's impossible to measure. It's very lonely, to be honest. I also think I got it the worst. I have it very very bad. No sense of time and all the other symptoms, but I am not afraid of it anymore. Even this gets "normal". People who got it later in life have a higher chance of recovery, for me it's ingrained in my soul.
Yeah. Fuck, you're right. You are the third person on this site whos essentially told me to leave. I don't know why the fuck I keep coming back. But I guess I do. I don't come on here to research, or even to read recovery stories for hope, im long past that. I come on here because this site is the only thing that reminds me of reality (which is so ironic). When I write posts about my mental disorder it is the best way that I can regain my sense of self back. It's like im activating the part of me that's still me when I type. Being on this forum I can enjoy the sweet ecstasy of feeling like I still exist- however vaguely. But I have to leave, maybe one day I will find the strength.

I think you're right. It seems that the common age of people on the recovery forums got it in their 20's-30's. Obviously I'm knew to this, but I feel as though the cause of my DPDR is ingrained into my soul. The very way in which I view the world and my place in it almost ensures I feel inadequate, out of control, and worried. Ive tried very hard to look at things differently, but I cant. I have accepted the chance that I won't recover from this disorder- it seems way too severe for that to be possible. But I hope to god things get better.
 

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Yeah. Fuck, you're right. You are the third person on this site whos essentially told me to leave. I don't know why the fuck I keep coming back. But I guess I do. I don't come on here to research, or even to read recovery stories for hope, im long past that. I come on here because this site is the only thing that reminds me of reality (which is so ironic). When I write posts about my mental disorder it is the best way that I can regain my sense of self back. It's like im activating the part of me that's still me when I type. Being on this forum I can enjoy the sweet ecstasy of feeling like I still exist- however vaguely. But I have to leave, maybe one day I will find the strength.

I think you're right. It seems that the common age of people on the recovery forums got it in their 20's-30's. Obviously I'm knew to this, but I feel as though the cause of my DPDR is ingrained into my soul. The very way in which I view the world and my place in it almost ensures I feel inadequate, out of control, and worried. Ive tried very hard to look at things differently, but I cant. I have accepted the chance that I won't recover from this disorder- it seems way too severe for that to be possible. But I hope to god things get better.
mate believe me, if you can manage it to not get freaked up by the disorder, if you can manage it to think „okay man, thats dp. nothing more." and keep calmness, believe me the things will get much better for you. you are just 17 and your brain is still under development. you have to give your brain the chance to make the development without ruminating/journaling on dp. and just like aridity said, you will never find answers. i said anything similar to you, even if you read all the books on this earth, you will not get an answer.
 

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From my experience why it gets worse, is because you allow it getting worse. By contributing focusing on it, being on here 24/7. When I recovered I just went on with my life, despite how hard things were. And yes it got worse due to a break up, and to much screen time etc. Isolating, quitting work etc. That all made it worse. Worst descision was quitting work. Just leave this place, that's what I tell everyone who just got it. You wont find an answer. Your system is overloaded it's telling you, give it rest and the care it needs.Everyone thinks they got the worst case, and to be quite frankly it's impossible to measure. It's very lonely, to be honest. I also think I got it the worst. I have it very very bad. No sense of time and all the other symptoms, but I am not afraid of it anymore. Even this gets "normal". People who got it later in life have a higher chance of recovery, for me it's ingrained in my soul.
very good explanation mate???????? for me quitting work was also on of the main reasons for my relapse.. it gave me so much more time to harm my mind with senseless thoughts and ruminations..
 

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Yeah. Fuck, you're right. You are the third person on this site whos essentially told me to leave. I don't know why the fuck I keep coming back. But I guess I do. I don't come on here to research, or even to read recovery stories for hope, im long past that. I come on here because this site is the only thing that reminds me of reality (which is so ironic). When I write posts about my mental disorder it is the best way that I can regain my sense of self back. It's like im activating the part of me that's still me when I type. Being on this forum I can enjoy the sweet ecstasy of feeling like I still exist- however vaguely. But I have to leave, maybe one day I will find the strength.

I think you're right. It seems that the common age of people on the recovery forums got it in their 20's-30's. Obviously I'm knew to this, but I feel as though the cause of my DPDR is ingrained into my soul. The very way in which I view the world and my place in it almost ensures I feel inadequate, out of control, and worried. Ive tried very hard to look at things differently, but I cant. I have accepted the chance that I won't recover from this disorder- it seems way too severe for that to be possible. But I hope to god things get better.
Oh bro,really you are 17? Please listen to me and get out, this forum has already done it's purpose. Experienced people like me have told you to leave it and live your life,dont chase questions you dont have answers to. Everything else now will be pollution for you brain. Believe me when I say that when I got it "severely" at the same age as you I thought I was done. I got better mate. I moved back to my home country and went back to school. And I enjoyed life again. It was still here sometimes but very manageable. Good luck man
 
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