I agree Eddy, I agree.
Forget the cause, we all have it, lets just focus on how to get better day by day...
FOR ME...
I actually TODAY went to a private Endocrinologist at £165 (this is in N.I where that is say £250 in [Redacted]) and he said my sleep was not a blood or hormone thing, he looked at my MRI and said this was FOR ME and my symptoms, a nervous system thing, i've never had anyone be that conclusive but this was a top rated doctor for Endo in N.I, he told me to not waste time with a P Doc any longer and go to a good Neurologist and he would write to my GP.
No this isn't a cure, but my symptoms to him were red flags, I don't sleep over a week as i've mentioned....yep rare, but obviously the cause of what I experience. He said he couldn't believe what they had tried and that I needed to treat the nervous system... he was Chinese and had that great frank way of talking, he knew exactly what DP was and explained how out of balance my system is, he did this hand thing where he put P docs down low, under his chest and Neurology above his head when i talked about how my p doc treats me with my symptoms. He also told me basically in a few words not to listen and that the nervous system doesn't work on good thoughts. Doesn't mean you can't beat DP without good living, but if it isn't anxiety loop, which he agreed saying as I can stay up days, it's a different cause, for me, he was very sure my nervous system was way too out of balance.
Not saying you should all run to one, but he confirmed that my level of 'hyper stimulation' which i said to my p doc and got things like 'have a quiet life'...utter rubbish.
Just sharing as for me, after a while of searching, i've met someone who deeply understood and looked at my symptoms and all the medications i've ever tried...to him, i was in the total wrong department. He said that many times... £165 well spent.
He agreed with Mirtazapine and Zyprexa that was working for a while, but said if i couldn't sleep on that, well there is deeper issues than mental health and had a clear distinction between the nervous system and mental health. He is on the top rated doctors in Northern Ireland, that's why I went.
Not everyone can relate, but as always, it's an individual journey. For me it seems 'hyper stimulation' - believe me, if you have this you'll know, you don't feel tired...ever