[Peter]

dpdr do not heal with meds youre just masking your symptoms

I still fail to realize what the problem about that is. Is there really such a large difference between being fully recovered and being symptom free, but needing to take a tablet in the morning and in the evening (assuming there is a drug that works like that)?

 

[Trith]

I still fail to realize what the problem about that is. Is there really such a large difference between being fully recovered and being symptom free, but needing to take a tablet in the morning and in the evening (assuming there is a drug that works like that)?

Same here. I don't understand what's wrong with masking symptoms, if the meds side-effects are bearable of course. You could even choose to mask symptoms (totally or partially) while you are trying to find the "real solution", I don't know why we should suffer more until we find the perfect solution. And it's not one or the other.
Also I don't understand why it would be impossible to cure DPDR with talk therapy just because it has symptoms that feel physical. When you have anxiety your heart beats faster. It's very physiological, but you can still cure it with talk therapy. I even know someone who got fingertips numbness and even partial blindness because of too high levels of anxiety, and still you can cure anxiety with talk therapy.
It's like some people who believe DPDR must be caused by brain damage, when they have no medical background, just because it feels like it. Well you also feel unreal and still you are real so...
Perhaps this sort of things is one reason why patients are not taken seriously as soon as they talk about something they have seen on "the internet". If this is the kind of information they think we read.

 

[mehrdadrad]

I still fail to realize what the problem about that is. Is there really such a large difference between being fully recovered and being symptom free, but needing to take a tablet in the morning and in the evening (assuming there is a drug that works like that)?

I feel that your DP is chronic and I am happy for this, there are times when the patient has symptoms 24 hours a day or the severity of the symptoms is beyond the patient's tolerance, usually among those who are in acute DP conditions, the dose It is not less responsive and the drug should be used in two or three doses, this is the case in many diseases, but in DP, one should try to keep the life of the drug and its concentration stable.

 

[nocturnalman]

dude chill tf you know jackshit. what is going on with you arabic guys do the doctors in middle asia know at all what medicine is? i dont wanna know what the „fda“ is sending to the arabic nations when it comes to medication hahahaha

First learn some geography, you can clearly see the Iranian flag next to his username.Second, Arabs have very well known doctors, among them one of the best doctors in Schizophrenia research, Henry Nasrallah.Third, why are you so bitter ? Is it because he has found something that helps him and you are still stuck in the mindset that there will be no cure or at least medications that manage his symptoms ? He posted about his experience, plus what he said about the FDA is true, thanks to the FDA it costs now 1 billion us dollars to develop a medication that will get rejected by the FDA either way because the shareholders have have company shares in most psychiatric medications that haven't changed over many years.It seems to be that you are just a racist who dismisses anything from the eastern part of the world.

 

[mehrdadrad]

Same here. I don't understand what's wrong with masking symptoms, if the meds side-effects are bearable of course. You could even choose to mask symptoms (totally or partially) while you are trying to find the "real solution", I don't know why we should suffer more until we find the perfect solution. And it's not one or the other.
Also I don't understand why it would be impossible to cure DPDR with talk therapy just because it has symptoms that feel physical. When you have anxiety your heart beats faster. It's very physiological, but you can still cure it with talk therapy. I even know someone who got fingertips numbness and even partial blindness because of too high levels of anxiety, and still you can cure anxiety with talk therapy.
It's like some people who believe DPDR must be caused by brain damage, when they have no medical background, just because it feels like it. Well you also feel unreal and still you are real so...
Perhaps this sort of things is one reason why patients are not taken seriously as soon as they talk about something they have seen on "the internet". If this is the kind of information they think we read.

Dear friend, can you tell the leg that hurts to think and calm down? That you can deceive your mind with thinking is good, but for how long? When our disease responds to the medicine, it means that there is a cure, but it has not been found yet, a DP patient feels the symptoms with all his heart, and if it was solved by thinking that we all would have been treated by now, I am sure that the medicine for this disease will be found. FDA just needs to do more

 

[mehrdadrad]

First learn some geography, you can clearly see the Iranian flag next to his username.Second, Arabs have very well known doctors, among them one of the best doctors in Schizophrenia research, Henry Nasrallah.Third, why are you so bitter ? Is it because he has found something that helps him and you are still stuck in the mindset that there will be no cure or at least medications that manage his symptoms ? He posted about his experience, plus what he said about the FDA is true, thanks to the FDA it costs now 1 billion us dollars to develop a medication that will get rejected by the FDA either way because the shareholders have have company shares in most psychiatric medications that haven't changed over many years.It seems to be that you are just a racist who dismisses anything from the eastern part of the world.

 

[mehrdadrad]

.

 

[Trith]

It was given by a good doctor(my last dr) . only use lithium 300 and biperiden 2 . other drugs have also had successful reports for treatment, but lithium and Biperiden work for most of the patients I mentioned

So it seems you advised people to take all four at the same time, with no information about potential drug interactions then.
If you really think you are on to something with DPDR, and I hope you are right, then maybe you are the first person to find a treatment that is so efficient, perhaps more efficient than lamotrigine + SSRIs which is the best we have so far. Then wouldn't it be worth it spending just a little more time to explain what your experience actually is with these different people, instead of just giving your conclusions and instructions, especially in a way that might harm people, and also without giving your credentials?
Like who were these people, how long they had DPDR for (because spontaneous remission is frequent after a few months according to the forum), how many people did you advise to take this treatment, for those who recovered how much did their symptoms improve, and how many others did not have any positive effect? I mean, this kind of information is super important to draw a conclusion, and you expect us to trust you blindly like a doctor, this is really baffling to me.
You say "take lithium and biperiden for two weeks" and you don't even say if this is the time it took for these people to see an improvement or for how many of them, or if this is just your random intuition. Like you are so 100% sure you have the truth it's not even worth mentioning your reasoning to people, because doubt is useless when you are right, right?

 

[mehrdadrad]

So it seems you advised people to take all four at the same time, with no information about potential drug interactions then.
If you really think you are on to something with DPDR, and I hope you are right, then maybe you are the first person to find a treatment that is so efficient, perhaps more efficient than lamotrigine + SSRIs which is the best we have so far. Then wouldn't it be worth it spending just a little more time to explain what your experience actually is with these different people, instead of just giving your conclusions and instructions, especially in a way that might harm people, and also without giving your credentials?
Like who were these people, how long they had DPDR for (because spontaneous remission is frequent after a few months according to the forum), how many people did you advise to take this treatment, for those who recovered how much did their symptoms improve, and how many others did not have any positive effect? I mean, this kind of information is super important to draw a conclusion, and you expect us to trust you blindly like a doctor, this is really baffling to me.
You say "take lithium and biperiden for two weeks" and you don't even say if this is the time it took for these people to see an improvement or for how many of them, or if this is just your random intuition. Like you are so 100% sure you have the truth it's not even worth mentioning your reasoning to people, because doubt is useless when you are right, right?

I was diagnosed with DP when I was 22 years old, today I am 33 years old with a 4-year-old child, dear friend, you have taken the game a bit easy, DP has different intensities and stages, and I am happy that you have not yet reached a condition where you can say what only one person can say. It's a good pill to get rid of!
I emphasized that this recommendation has given a positive response to 7 people and I am not the only one, I am not FDA, but I know that 7 people is not a small number, I have shared my advice and treatment experience with DP patients and you can implement it or Don't do it, it's not mandatory and it's up to you. See, doctors only prescribe antidepressants and antipsychotics. If the patient responds, it's a temporary and limited treatment. If not, there's no other way. Well, what to do for someone who doesn't respond to antidepressants? Speech Therapy ? Tolerance ? how much ? Can ? I lived in a fog for 9 of these 11 years with no emotions, no memory, no motivation, with tunnel vision, but in these 2 years, I found out that anticholinergic with lithium can cure up to a high percentage, so I randomly decided to use it in I will share the internet, both here and on reddit, they suspended me on reddit, but can you believe that in these 3 days that I was on reddit, someone messaged me that he had prepared the medicine and felt the effect of the medicine on the second day, I am not a doctor , but I have experience that doctors don't have. I know it's ridiculous from your point of view, but you should give me the right, you shouldn't wait for treatment, you shouldn't be afraid to take pills or new treatment so that you can overcome this disease a little, otherwise life will be difficult.

 

[Trith]

Dear friend, can you tell the leg that hurts to think and calm down? That you can deceive your mind with thinking is good, but for how long? When our disease responds to the medicine, it means that there is a cure, but it has not been found yet, a DP patient feels the symptoms with all his heart, and if it was solved by thinking that we all would have been treated by now, I am sure that the medicine for this disease will be found. FDA just needs to do more

I am not sure I understand you. But just to make sure, I am not making any statement about DPDR myself, I am not making claims about DPDR. I have no interest in defending talk therapy, or meds, or anti-meds things. I am just anti-"affirmations that are not backed up" in general.

 

[leminaseri]

Same here. I don't understand what's wrong with masking symptoms, if the meds side-effects are bearable of course. You could even choose to mask symptoms (totally or partially) while you are trying to find the "real solution", I don't know why we should suffer more until we find the perfect solution. And it's not one or the other.
Also I don't understand why it would be impossible to cure DPDR with talk therapy just because it has symptoms that feel physical. When you have anxiety your heart beats faster. It's very physiological, but you can still cure it with talk therapy. I even know someone who got fingertips numbness and even partial blindness because of too high levels of anxiety, and still you can cure anxiety with talk therapy.
It's like some people who believe DPDR must be caused by brain damage, when they have no medical background, just because it feels like it. Well you also feel unreal and still you are real so...
Perhaps this sort of things is one reason why patients are not taken seriously as soon as they talk about something they have seen on "the internet". If this is the kind of information they think we read.

well i can very well understand why you dont get this because it seems your humanbeing functions are completely vanished from your dpdr. we are human. we are not robots where you can install a new program or just put some motor oil in it so it can work well. humanbeing doesnt function like this. i mentioned this once but okay nice, again. both my mother and my grandma they took ssri for over 10 years my grandma even more than 30 years. they both became completely different human. cold, flat, dumb just like a robot. this is not how humanbeing works. if you consider yourself as a robot where you can turn a few screws and everything is ok, great. medicine is completely moneymaking mafia. me as a german need to pay my whole life more than 1 million euros for an insurance, i maybe never will need in the future. the problem of you is you are atheist and you hate everything spritual. therefore you clinge on the idea that you can impact the brain with medication and modulate it. in my opinion and beliefs there is something like the soul. and just like how ridiculous it is for you to believe in a god or something the same i think about a physical fucking pill that should heal my soul.

 

[leminaseri]

id like prefer to suffer my whole life from the worst dpdr of the humanbeing history than becoming a robot with underresearched medicine where you never ever the fuck can put that on a scientifical evidence. you all are ignoring this because you dont want to admit. science thought 20 years long ssri is responsible for depression. now they say they were wrong. can you please give me an answer for this? they gave more than 1 billion people ssri with the reasoning „you are depressed“ tell me who will pay the due for that? how many peoples life got destroyed with ssri?

 

[leminaseri]

First learn some geography, you can clearly see the Iranian flag next to his username.Second, Arabs have very well known doctors, among them one of the best doctors in Schizophrenia research, Henry Nasrallah.Third, why are you so bitter ? Is it because he has found something that helps him and you are still stuck in the mindset that there will be no cure or at least medications that manage his symptoms ? He posted about his experience, plus what he said about the FDA is true, thanks to the FDA it costs now 1 billion us dollars to develop a medication that will get rejected by the FDA either way because the shareholders have have company shares in most psychiatric medications that haven't changed over many years.It seems to be that you are just a racist who dismisses anything from the eastern part of the world.

no it is the british flag next to his username. i am not stuck in my mindset. i am still kicking the dp in ass while im living even a better and more meaningful life than people without any health issue at all. dont need medication for that. dp is my slave. he just does what i want not the other way

 

[nocturnalman]

well i can very well understand why you dont get this because it seems your humanbeing functions are completely vanished from your dpdr. we are human. we are not robots where you can install a new program or just put some motor oil in it so it can work well. humanbeing doesnt function like this. i mentioned this once but okay nice, again. both my mother and my grandma they took ssri for over 10 years my grandma even more than 30 years. they both became completely different human. cold, flat, dumb just like a robot. this is not how humanbeing works. if you consider yourself as a robot where you can turn a few screws and everything is ok, great. medicine is completely moneymaking mafia. me as a german need to pay my whole life more than 1 million euros for an insurance, i maybe never will need in the future. the problem of you is you are atheist and you hate everything spritual. therefore you clinge on the idea that you can impact the brain with medication and modulate it. in my opinion and beliefs there is something like the soul. and just like how ridiculous it is for you to believe in a god or something the same i think about a physical fucking pill that should heal my soul.

So you accuse others of not knowing anything, but you claim that dpdr is a soul thing ? Neuroscience doesn't even know 1% about the human brain, and will not even know 0.1% about the soul.If you don't know have 100% full knowledge about the brain you cannot say anything about cause and effect.It's the same shitty stigma about schizophrenia in the past when people used to say it possesion.But you know what's worse than stigma from the general population ? The stigma from those who have a mental disorder against their own disorder.If you want to bring religion into this issue, I belong to one of the monotheistic religions that is a very strict one and in our religion God encourages the seeking of medical treatment and but I won't argue about this, as some people still think that having a stone-age mentality is part of being religious.Just because humans haven't found cures for many disorders and diseases doesn't mean there is no cure."Heal my soul".Tell us how your soul can interact with the world if your brain gets damaged.I bet Eckhart Tolle and his book the Power of Now can reverse it.

 

[leminaseri]

So you accuse others of not knowing anything, but you claim that dpdr is a soul thing ? Neuroscience doesn't even know 1% about the human brain, and will not even know 0.1% about the soul.If you don't know have 100% full knowledge about the brain you cannot say anything about cause and effect.It's the same shitty stigma about schizophrenia in the past when people used to say it possesion.But you know what's worse than stigma from the general population ? The stigma from those who have a mental disorder against their own disorder.If you want to bring religion into this issue, I belong to one of the monotheistic religions that is a very strict one and in our religion God encourages the seeking of medical treatment and but I won't argue about this, as some people still think that having a stone-age mentality is part of being religious.Just because humans haven't found cures for many disorders and diseases doesn't mean there is no cure."Heal my soul".Tell us how your soul can interact with the world if your brain gets damaged.I bet Eckhart Tolle and his book the Power of Now can reverse it.

i had have several brain scans. my brain is working absolutely fine.

 

[mehrdadrad]

well i can very well understand why you dont get this because it seems your humanbeing functions are completely vanished from your dpdr. we are human. we are not robots where you can install a new program or just put some motor oil in it so it can work well. humanbeing doesnt function like this. i mentioned this once but okay nice, again. both my mother and my grandma they took ssri for over 10 years my grandma even more than 30 years. they both became completely different human. cold, flat, dumb just like a robot. this is not how humanbeing works. if you consider yourself as a robot where you can turn a few screws and everything is ok, great. medicine is completely moneymaking mafia. me as a german need to pay my whole life more than 1 million euros for an insurance, i maybe never will need in the future. the problem of you is you are atheist and you hate everything spritual. therefore you clinge on the idea that you can impact the brain with medication and modulate it. in my opinion and beliefs there is something like the soul. and just like how ridiculous it is for you to believe in a god or something the same i think about a physical fucking pill that should heal my soul.

I don't know how you judged me with a few minutes of conversation and a few messages and said that I don't believe in God, the only person who has been with me in these years has been God and this illness made me believe in him more. He gave me patience and hope and that's enough for me. Good luck

 

[mehrdadrad]

I don't know how you judged me with a few minutes of conversation and a few messages and said that I don't believe in God, the only person who has been with me in these years has been God and this illness made you believe in him more. He gave me patience and hope and that's enough for me. Good luck

 

[nocturnalman]

id like prefer to suffer my whole life from the worst dpdr of the humanbeing history than becoming a robot with underresearched medicine where you never ever the fuck can put that on a scientifical evidence. you all are ignoring this because you dont want to admit. science thought 20 years long ssri is responsible for depression. now they say they were wrong. can you please give me an answer for this? they gave more than 1 billion people ssri with the reasoning „you are depressed“ tell me who will pay the due for that? how many peoples life got destroyed with ssri?

Can you do better than them ? Are you expecting them to bring on a pill that fixes a complex issue without having all the knowledge about the brain ? Even a 100 years from now, no medication that works in the body will be fully understood.Theories change over time when new knowledge comes up, humans are not God and they will never be perfect.Just because science messes up in things due to lack of knowledge that will always be an issue doesn't mean they are all evil.And instead of blaming the so called suffering of millions on some pills look at what causes the real problem to being with: social isolation, living expenses, destruction of nature, inequality, racism, wars and conflicts, and many more things.And don't tell me it's all the governments fault.Humans in general are all involved in this and we all pay the price of destroying the harmony God created.

 

[mehrdadrad]

id like prefer to suffer my whole life from the worst dpdr of the humanbeing history than becoming a robot with underresearched medicine where you never ever the fuck can put that on a scientifical evidence. you all are ignoring this because you dont want to admit. science thought 20 years long ssri is responsible for depression. now they say they were wrong. can you please give me an answer for this? they gave more than 1 billion people ssri with the reasoning „you are depressed“ tell me who will pay the due for that? how many peoples life got destroyed with ssri?

Anyway, opinions differ and I give you the right, good luck my friend

 

[thebiglie]

could you compile some statements from these 7 people and post it here? would mean a lot