Depersonalization Support Forum banner
1 - 20 of 132 Posts

· Registered
Joined
·
71 Posts
Discussion Starter · #1 · (Edited)
This instruction is my personal experience that has helped 7 people recover so far and is not a coercion or recommendation for others and the decision is yours.

Hi, I finally found my way home and I can't describe how excited I was to find this group and website because no one understood me for almost 11 years. I am sending a message from Iran and my language is not very good. , I want to tell about the treatment that happened to me after all these years, last year I accidentally took lithium tablets, lithium worked wonders for me, for those who have brain fog and tunnel vision and are still not familiar with lithium. I was in the fog for over 9 years but since taking lithium they have all disappeared and in the last 2 years it has decreased a lot. I've been lost in space and time for years, but after all this time, the only way I know is to control DP. I want to try harder and always try to heal myself, that's why in the midst of these attempts to recover, I accidentally discovered the medicine biperiden , and with biperiden , many bad states of the disease, such as tunnel vision, hallucinations, deficiency Energy . Loss of emotions and feelings and concentration and memory problems were resolved. After all these years, I have come up with rules that I think should be implemented for all our patients.

Rule number one: Be sure to use lithium
Rule number two: Do not use antipsychotics
Third rule: Do not use antidepressants except amitriptyline and desipramine
Rule number 4: Be sure to use anticholinergics such as Artane or Bipridan or benztropine.
Rule #5: Don't waste your time with herbal supplements and talk therapy

Rule number one: Be sure to use lithium
Rule number two: Do not use antipsychotic drugs
Rule number three: Do not use antidepressants except amitriptyline and desipramine
Rule number 4: Be sure to use anticholinergic such as artane or biperiden orbenztropine
Rule number 5: Do not waste your time with herbal supplements and Speech Therapy

consumption instruction :

Lithium 300: 1 at night , after 1 week, 1 at night and 1 in the morning

biperiden 2 : 1 at night after one week 1 in the morning and 1at night, after two week 2 at night and 1 in morning
 

· Registered
Joined
·
71 Posts
Discussion Starter · #3 ·
Congratulations, but this is so anecdotal. What helps you will probably not help another.
To date, I have offered 5 dpdr patients lithium and Biperiden , and unbelievably they feel better, and their doctors don't know why they get a therapeutic response from these drugs.Use lithium and biperiden for at least two weeks.
 

· Registered
Joined
·
71 Posts
Discussion Starter · #4 ·
Today, the seventh person whom I told to use lithium and biperiden says that he can no longer see fog, he does not have tunnel vision, and he does not have a state of separation from his body. Trust me friends . I have lived with this disease for a third of my life and have taken more than 30 samples of pills. Since I got to know the forums and shared my experience, 7 people felt the cure

lithium 300 . 1 night after one week 1 night 1 morning

biperiden 2 (you can take benztropine 2 . is similar ) 1 night after one week 1 night 1 morning . after 2 week 2 night 1 morning
 

· Registered
Joined
·
71 Posts
Discussion Starter · #12 · (Edited)
first read my medicine list to understand how bad i was
Citalopram
Escitalopram
Fluoxetine
Haloperidol
Paroxetine
duloxetine
Bupropion
amitriptyline
Depakene
Lamotrigine
Zolpidem
Zonisamide
Clonazepam
Diazepam
Xanax
Aripiprazole
Ritalin
Modafinil
Sertraline
Topiramate
Carbamazepine
Risperidone
quetiapine
clomipramine
Olanzapine
Do you know why i writing should be read? Since these pills were written by different doctors in these 11 years and none of them were able to cure, there are tens of thousands of DP patients now but with all due respect no effective efforts have been made by the FDA and doctors. . I respect the medical community, but many doctors don't know much about DP due to limited information beyond prescribing anti-depressants and anti-psychotics, I really can't understand why the FDA isn't doing anything, even in the webMD articles There. I don't know why we can't complain to the FDA, I tell my doctors, doctor, I see fog, I've lost my senses, I see the world with a camera and I'm going crazy, so What do you mean by speech therapy? I'm stuck in a fog and I'm not in my body, how can I heal by talking? Why don't you tell the FDA to make an effective effort instead of saying that, when I got 70% better in the last 2 years with lithium and biperiden , I told the doctors that I was able to cure it to some extent. Anticholinergics and lithium, but they have no explanation and know nothing. Do you know why? Because in all these years, no research was done on these two drugs from higher institutions for other doctors to study it, when I shared my experience on the Internet, 7 patients got better and their doctors did not have an explanation, friends. We are really oppressed, there are too many of us, but there is not a good effort from the medical community, I wish we could collect signatures through a campaign to start an FDA investigation.
 

· Registered
Joined
·
71 Posts
Discussion Starter · #13 ·
I don't get it. Are you a doctor? You say "our patients", and you say "their doctors", and you provided people with pills, are you a doctor or a pharmacist? You give precise instructions on when to take pills, why so? Why do you increase the lithium dosage after a week? I have been prescribed lithium at a dosage of 800 mg without increasing gradually, as prescribed by a psychiatrist. Also it didn't do anything for my dpdr and I took some for more than two years up to 1 g a day and it was all in the evening. Also the effective dosage for lithium is very close to its toxicity limit and patients need to have their blood tested every month to check their blood levels as everyone absorbs it differently and it can change over time, so people get different dosage in order to achieve the same blood levels, so I don't know how you can talk about a unique dosage for everyone without talking about blood levels. Exceeding the toxic limit for your body can damage your kidneys and can kill you.
Is this based on your own experience? If so, could you please simply tell us about your experience and your credentials and then we can decide what to do on our own.
Practicing medicine illegally is severely punished by law, at least where I live.
Give us more context. Also how do you expect people to get a prescription for four different meds that are not supposed to do what they do just based on some random person in the internet who we don't know where they get their information from? How did it work for you?
I am speaking based on an experience that was effective for several other people. My friend, when DP reaches a stage that drives you crazy, you should consult the experience of patients who have recovered. The doctor understands you to some extent
 

· Registered
Joined
·
71 Posts
Discussion Starter · #17 ·
dude chill tf you know jackshit. what is going on with you arabic guys do the doctors in middle asia know at all what medicine is? i dont wanna know what the „fda“ is sending to the arabic nations when it comes to medication hahahaha
Dear friend, I am not Arab. I am persian and I live in Iran. In Iran, despite the many sanctions in 43 years , the level of medicine in here is very professional and ranks first in West Asia, and thousands of people from the countries of this region come to Iran every day to treat serious diseases, and as far as I know, many outside Iran as well. They are reputable Iranian doctors so dont listen to media . But in the case of DPdr , everyone is the same and this is a universal matter. Until today, the FDA has not found a cure for us, and that's why all doctors either prescribe antidepressants or antipsychotics. Do they give you something else that I don't know about? This is my 11 year list, not a few months Good luck
 

· Registered
Joined
·
71 Posts
Discussion Starter · #19 ·
So did they all have the same medicines at the exact same dosage? Or did you make your own mix of information?
It was given by a good doctor(my last dr) . only use lithium 300 and biperiden 2 . other drugs have also had successful reports for treatment, but lithium and Biperiden work for most of the patients I mentioned
 

· Registered
Joined
·
71 Posts
Discussion Starter · #23 ·
I still fail to realize what the problem about that is. Is there really such a large difference between being fully recovered and being symptom free, but needing to take a tablet in the morning and in the evening (assuming there is a drug that works like that)?
I feel that your DP is chronic and I am happy for this, there are times when the patient has symptoms 24 hours a day or the severity of the symptoms is beyond the patient's tolerance, usually among those who are in acute DP conditions, the dose It is not less responsive and the drug should be used in two or three doses, this is the case in many diseases, but in DP, one should try to keep the life of the drug and its concentration stable.
 

· Registered
Joined
·
71 Posts
Discussion Starter · #25 ·
Same here. I don't understand what's wrong with masking symptoms, if the meds side-effects are bearable of course. You could even choose to mask symptoms (totally or partially) while you are trying to find the "real solution", I don't know why we should suffer more until we find the perfect solution. And it's not one or the other.
Also I don't understand why it would be impossible to cure DPDR with talk therapy just because it has symptoms that feel physical. When you have anxiety your heart beats faster. It's very physiological, but you can still cure it with talk therapy. I even know someone who got fingertips numbness and even partial blindness because of too high levels of anxiety, and still you can cure anxiety with talk therapy.
It's like some people who believe DPDR must be caused by brain damage, when they have no medical background, just because it feels like it. Well you also feel unreal and still you are real so...
Perhaps this sort of things is one reason why patients are not taken seriously as soon as they talk about something they have seen on "the internet". If this is the kind of information they think we read.
Dear friend, can you tell the leg that hurts to think and calm down? That you can deceive your mind with thinking is good, but for how long? When our disease responds to the medicine, it means that there is a cure, but it has not been found yet, a DP patient feels the symptoms with all his heart, and if it was solved by thinking that we all would have been treated by now, I am sure that the medicine for this disease will be found. FDA just needs to do more
 

· Registered
Joined
·
71 Posts
Discussion Starter · #26 · (Edited)
First learn some geography, you can clearly see the Iranian flag next to his username.Second, Arabs have very well known doctors, among them one of the best doctors in Schizophrenia research, Henry Nasrallah.Third, why are you so bitter ? Is it because he has found something that helps him and you are still stuck in the mindset that there will be no cure or at least medications that manage his symptoms ? He posted about his experience, plus what he said about the FDA is true, thanks to the FDA it costs now 1 billion us dollars to develop a medication that will get rejected by the FDA either way because the shareholders have have company shares in most psychiatric medications that haven't changed over many years.It seems to be that you are just a racist who dismisses anything from the eastern part of the world.
 

· Registered
Joined
·
71 Posts
Discussion Starter · #29 ·
So it seems you advised people to take all four at the same time, with no information about potential drug interactions then.
If you really think you are on to something with DPDR, and I hope you are right, then maybe you are the first person to find a treatment that is so efficient, perhaps more efficient than lamotrigine + SSRIs which is the best we have so far. Then wouldn't it be worth it spending just a little more time to explain what your experience actually is with these different people, instead of just giving your conclusions and instructions, especially in a way that might harm people, and also without giving your credentials?
Like who were these people, how long they had DPDR for (because spontaneous remission is frequent after a few months according to the forum), how many people did you advise to take this treatment, for those who recovered how much did their symptoms improve, and how many others did not have any positive effect? I mean, this kind of information is super important to draw a conclusion, and you expect us to trust you blindly like a doctor, this is really baffling to me.
You say "take lithium and biperiden for two weeks" and you don't even say if this is the time it took for these people to see an improvement or for how many of them, or if this is just your random intuition. Like you are so 100% sure you have the truth it's not even worth mentioning your reasoning to people, because doubt is useless when you are right, right?
I was diagnosed with DP when I was 22 years old, today I am 33 years old with a 4-year-old child, dear friend, you have taken the game a bit easy, DP has different intensities and stages, and I am happy that you have not yet reached a condition where you can say what only one person can say. It's a good pill to get rid of!
I emphasized that this recommendation has given a positive response to 7 people and I am not the only one, I am not FDA, but I know that 7 people is not a small number, I have shared my advice and treatment experience with DP patients and you can implement it or Don't do it, it's not mandatory and it's up to you. See, doctors only prescribe antidepressants and antipsychotics. If the patient responds, it's a temporary and limited treatment. If not, there's no other way. Well, what to do for someone who doesn't respond to antidepressants? Speech Therapy ? Tolerance ? how much ? Can ? I lived in a fog for 9 of these 11 years with no emotions, no memory, no motivation, with tunnel vision, but in these 2 years, I found out that anticholinergic with lithium can cure up to a high percentage, so I randomly decided to use it in I will share the internet, both here and on reddit, they suspended me on reddit, but can you believe that in these 3 days that I was on reddit, someone messaged me that he had prepared the medicine and felt the effect of the medicine on the second day, I am not a doctor , but I have experience that doctors don't have. I know it's ridiculous from your point of view, but you should give me the right, you shouldn't wait for treatment, you shouldn't be afraid to take pills or new treatment so that you can overcome this disease a little, otherwise life will be difficult.
 

· Registered
Joined
·
71 Posts
Discussion Starter · #36 · (Edited)
well i can very well understand why you dont get this because it seems your humanbeing functions are completely vanished from your dpdr. we are human. we are not robots where you can install a new program or just put some motor oil in it so it can work well. humanbeing doesnt function like this. i mentioned this once but okay nice, again. both my mother and my grandma they took ssri for over 10 years my grandma even more than 30 years. they both became completely different human. cold, flat, dumb just like a robot. this is not how humanbeing works. if you consider yourself as a robot where you can turn a few screws and everything is ok, great. medicine is completely moneymaking mafia. me as a german need to pay my whole life more than 1 million euros for an insurance, i maybe never will need in the future. the problem of you is you are atheist and you hate everything spritual. therefore you clinge on the idea that you can impact the brain with medication and modulate it. in my opinion and beliefs there is something like the soul. and just like how ridiculous it is for you to believe in a god or something the same i think about a physical fucking pill that should heal my soul.
I don't know how you judged me with a few minutes of conversation and a few messages and said that I don't believe in God, the only person who has been with me in these years has been God and this illness made me believe in him more. He gave me patience and hope and that's enough for me. Good luck
 

· Registered
Joined
·
71 Posts
Discussion Starter · #39 ·
id like prefer to suffer my whole life from the worst dpdr of the humanbeing history than becoming a robot with underresearched medicine where you never ever the fuck can put that on a scientifical evidence. you all are ignoring this because you dont want to admit. science thought 20 years long ssri is responsible for depression. now they say they were wrong. can you please give me an answer for this? they gave more than 1 billion people ssri with the reasoning „you are depressed“ tell me who will pay the due for that? how many peoples life got destroyed with ssri?
Anyway, opinions differ and I give you the right, good luck my friend
 

· Registered
Joined
·
71 Posts
Discussion Starter · #45 · (Edited)
could you compile some statements from these 7 people and post it here? would mean a lot
It's been less than three days since I posted on this site and reddit, and so far only two people have messaged for advice on getting medicine, but the story of these 7 people is related to Instagram.
I live in Iran and the most popular social network here is Instagram, one day a channel belonging to a person with DP wrote that he can no longer tolerate the symptoms of DP and is going crazy. If anyone has experience, please help. I had never mentioned my meds until that day, I advised her to take lithium and bipradane, I didn't hear from her again until after a month he texted me that he was on treatment and all these symptoms were gone, in His channel There were a lot of DP sufferers and he shared my message with them and after a while he told me 6 more people told him they felt the treatment, it's been 2 months since that rouge and I don't know how many Other people use lithium and Biperiden, when I saw it was helping I came here and reddit and shared
 
1 - 20 of 132 Posts
Top