[Trith]

I don't get it. Are you a doctor? You say "our patients", and you say "their doctors", and you provided people with pills, are you a doctor or a pharmacist? You give precise instructions on when to take pills, why so? Why do you increase the lithium dosage after a week? I have been prescribed lithium at a dosage of 800 mg without increasing gradually, as prescribed by a psychiatrist. Also it didn't do anything for my dpdr and I took some for more than two years up to 1 g a day and it was all in the evening. Also the effective dosage for lithium is very close to its toxicity limit and patients need to have their blood tested every month to check their blood levels as everyone absorbs it differently and it can change over time, so people get different dosage in order to achieve the same blood levels, so I don't know how you can talk about a unique dosage for everyone without talking about blood levels. Exceeding the toxic limit for your body can damage your kidneys and can kill you.
Is this based on your own experience? If so, could you please simply tell us about your experience and your credentials and then we can decide what to do on our own.
Practicing medicine illegally is severely punished by law, at least where I live.
Give us more context. Also how do you expect people to get a prescription for four different meds that are not supposed to do what they do just based on some random person in the internet who we don't know where they get their information from? How did it work for you?

 

[Trith]

I am speaking based on an experience that was effective for several other people. My friend, when DP reaches a stage that drives you crazy, you should consult the experience of patients who have recovered. The doctor understands you to some extent

So did they all have the same medicines at the exact same dosage? Or did you make your own mix of information?

 

[Trith]

I still fail to realize what the problem about that is. Is there really such a large difference between being fully recovered and being symptom free, but needing to take a tablet in the morning and in the evening (assuming there is a drug that works like that)?

Same here. I don't understand what's wrong with masking symptoms, if the meds side-effects are bearable of course. You could even choose to mask symptoms (totally or partially) while you are trying to find the "real solution", I don't know why we should suffer more until we find the perfect solution. And it's not one or the other.
Also I don't understand why it would be impossible to cure DPDR with talk therapy just because it has symptoms that feel physical. When you have anxiety your heart beats faster. It's very physiological, but you can still cure it with talk therapy. I even know someone who got fingertips numbness and even partial blindness because of too high levels of anxiety, and still you can cure anxiety with talk therapy.
It's like some people who believe DPDR must be caused by brain damage, when they have no medical background, just because it feels like it. Well you also feel unreal and still you are real so...
Perhaps this sort of things is one reason why patients are not taken seriously as soon as they talk about something they have seen on "the internet". If this is the kind of information they think we read.

 

[Trith]

It was given by a good doctor(my last dr) . only use lithium 300 and biperiden 2 . other drugs have also had successful reports for treatment, but lithium and Biperiden work for most of the patients I mentioned

So it seems you advised people to take all four at the same time, with no information about potential drug interactions then.
If you really think you are on to something with DPDR, and I hope you are right, then maybe you are the first person to find a treatment that is so efficient, perhaps more efficient than lamotrigine + SSRIs which is the best we have so far. Then wouldn't it be worth it spending just a little more time to explain what your experience actually is with these different people, instead of just giving your conclusions and instructions, especially in a way that might harm people, and also without giving your credentials?
Like who were these people, how long they had DPDR for (because spontaneous remission is frequent after a few months according to the forum), how many people did you advise to take this treatment, for those who recovered how much did their symptoms improve, and how many others did not have any positive effect? I mean, this kind of information is super important to draw a conclusion, and you expect us to trust you blindly like a doctor, this is really baffling to me.
You say "take lithium and biperiden for two weeks" and you don't even say if this is the time it took for these people to see an improvement or for how many of them, or if this is just your random intuition. Like you are so 100% sure you have the truth it's not even worth mentioning your reasoning to people, because doubt is useless when you are right, right?

 

[Trith]

Dear friend, can you tell the leg that hurts to think and calm down? That you can deceive your mind with thinking is good, but for how long? When our disease responds to the medicine, it means that there is a cure, but it has not been found yet, a DP patient feels the symptoms with all his heart, and if it was solved by thinking that we all would have been treated by now, I am sure that the medicine for this disease will be found. FDA just needs to do more

I am not sure I understand you. But just to make sure, I am not making any statement about DPDR myself, I am not making claims about DPDR. I have no interest in defending talk therapy, or meds, or anti-meds things. I am just anti-"affirmations that are not backed up" in general.

 

[Trith]

well i can very well understand why you dont get this because it seems your humanbeing functions are completely vanished from your dpdr. we are human. we are not robots where you can install a new program or just put some motor oil in it so it can work well. humanbeing doesnt function like this. i mentioned this once but okay nice, again. both my mother and my grandma they took ssri for over 10 years my grandma even more than 30 years. they both became completely different human. cold, flat, dumb just like a robot. this is not how humanbeing works. if you consider yourself as a robot where you can turn a few screws and everything is ok, great. medicine is completely moneymaking mafia. me as a german need to pay my whole life more than 1 million euros for an insurance, i maybe never will need in the future. the problem of you is you are atheist and you hate everything spritual. therefore you clinge on the idea that you can impact the brain with medication and modulate it. in my opinion and beliefs there is something like the soul. and just like how ridiculous it is for you to believe in a god or something the same i think about a physical fucking pill that should heal my soul.

This sucks really, for you, for your mother and for your grandmother and perhaps SSRIs are doing more bad than good, in general I am not sure of that but even if it was true I don't see how this proves medicines are useless in psychiatry. I understand your anger against psychiatry. I mean, i can't be in your shoes but I understand how you could have reasons to be angry, just like i am angry against most psychiatrists i have seen. But not long ago you were willing to admit that psilocybin or MDMA might cure dpdr. So it seems you agree that molecules can heal your soul, but you hate big pharma. That would be fine by me because I am not going to defend the pharmaceutical industry. But just because the pharmaceutical industry sucks doesn't mean that molecules can't cure us. The world would be simpler if bad people could only produce bad stuff, but I don't believe that, all the more if it can increase their profits margins.
Then regarding depression and serotonin, i have already answered you in a recent post.

 

[Trith]

could you compile some statements from these 7 people and post it here? would mean a lot

Amen to that, that's what I have been waiting for, but it seems it's really hard.

 

[Trith]

That's interesting, but don't forget to mention that he is also on two other meds and no lithium. Ave you ever tried biperiden without lithium? Why do you think lithium is important?

 

[Trith]

(I remove it because now it's a double post)

 

[Trith]

It's been less than three days since I posted on this site and reddit, and so far only two people have messaged for advice on getting medicine, but the story of these 7 people is related to Instagram.
I live in Iran and the most popular social network here is Instagram, one day a channel belonging to a person with DP wrote that he can no longer tolerate the symptoms of DP and is going crazy. If anyone has experience, please help. I had never mentioned my meds until that day, I advised her to take lithium and bipradane, I didn't hear from her again until after a month he texted me that he was on treatment and all these symptoms were gone, in His channel There were a lot of DP sufferers and he shared my message with them and after a while he told me 6 more people told him they felt the treatment, it's been 2 months since that rouge and I don't know how many Other people use lithium and Biperiden, when I saw it was helping I came here and reddit and shared

So you are saying that 7 people were helped when you only had feedback from one person you don't know and they told you it worked for 6 people and you just trust them on face value, and you did not think it was important to mention this detail. Also I don't see how they can get 6 different people with DPDR to put their hands on both lithium and an anti-parkinsonian med in less than a month without having the corresponding symptoms to get a prescription. But maybe it's different customs. Like many improbable things it's not impossible, but again, I think it's baffling that you just give us "truth" like doubt had not been invented yet.
Also as far as how quickly it works you had feedback from a person who had results in less than 2 days and for the rest of them you don't know. So why do you advise people to take it for at least 2 weeks to see results? Where does this come from?

 

[Trith]

If I had a suggestion or advice, I would have shared it on the Internet in these 2 years.

That doesn't make sense. Do you think that phrasing something as an argument makes it an argument? You are trying to say that you don't share advice, when you just did. You literally gave people your five rules and "consumption instructions" in this very thread. Are you betting on the fact I might have Alzheimer's?
And is advice usually shared immediately while whatever you are doing that is not giving advice comes after two years? What is the link with the two years duration? It sounds like you are just making things up with confidence, hoping I will believe they make sense.

Most of you are old member here and I've only been here three days and have only posted one treatment.

And what is the relationship with the fact that you have posted one "treatment" only? Is it more ok to play doctor with people when it's the first time you post? None of this makes sense.
And as I said before, I don't have any problem with you sharing your experience, quite the contrary.
And yes, that's true, nobody forces me to do what you say, I am free. I am also free to say what I think about it. So?

 

[Trith]

You need a prescription for these medications, it's not like you can run to a pharmacy and just get them and try them.

That's right. And to get a prescription you need to have the corresponding symptoms or a very lenient psychiatrist. Because getting lithium when you are not bipolar is probably very difficult (otherwise what would the FDA be doing right?). At this point it is fair to assume that some people might try to get the medicines from friends who have a prescription or from a black market. It's not really far fetched.

How are psychiatric drugs trials done ? They give them to people and based on their ANECDOTAL evidence they write down if it worked or not.If you enlist 100 people and these 100 all agree on saying that they felt worse, the trial wil be concluded as a failure.

Oh no, dear god... In a trial, they would give the medicine to thousands of people in total when combining the different phases. That's anything but anecdotal. They would examine them carefully, give them a standardized test or questionnaire to get the most objective measurement of how they are doing with the same criteria for everyone and not just "ask for their opinion", they would compare them to a control group to rule out the placebo effect, they would test different dosages. They would not just let 7 people come to them with their opinion and neglect how many didn't come forward because they tried and felt nothing, for example.

I don't see the same hate everywhere else when drugs like cannabis, lsd, magic mushrooms are suggested.He didn't even mention these drugs, these drugs are openly advocated in the USA and Europe, why pick on him for his experience when he didn't even advocate such crap ? Lots of posts here are about other medications, and when a post is positive, the replies are also all positive and full of hope.What's all the hate on this guy ?

That's not the problem. The problem is coming on a forum and acting like some form of authority that you are not (so exactly what thebiglie already said in the comment you are replying to, acting like bullies). Making up instructions for people out of nowhere and to play doctor like children play market. This is not a game. I come here precisely to read about people's experiences because some things might help me and might be interesting. But there are constantly some people who recovered, totally or partially, who come and believe that because they feel better they are going to be the queen of the party and will get a power trip telling others what to do. Like this guy playing doctor, or other people playing coach, saying "do this, do that, if you did not recover it's because you are think like this or that". I know that some people are totally oblivious of this phenomenon. Perhaps because a good fraction of them just dream of doing the same once they have recovered.


"Hey I have some information that this thing is working almost for sure, so here is the long and detailed list of what you have to do from now on if you want to recover: ...
-- Wait, what is this information that led you to this conclusion?
-- You don't have to follow my instructions if you don't want to.
-- I don't care, I just want to know the details to make my own opinion.
-- If you don't follow me you are doomed, because you will have to choose between all these other options that don't work, based on my other information.
-- I just want to know the details, you won't answer?
-- Sorry, the details are mine, now either follow my path and validate me or you are free to leave"


"Hey, I had this experience that gave me hope/solved my problem, here are the details of what happened to me, in case if it might be useful for someone else: ...
-- Ah this is interesting, I will use this information to get a better understanding of my disease and perhaps find a solution, using my own common sense, taking into account what I have already learned on that topic as well as other people's testimonies, thank you."


I know a lot of people won't get it, but at this point there is nothing I can do.

 

[Trith]

Benztropine Mesylate works for me

I've had Derealization for 22 years and I don't ever expect to recover 100%. But that's ok, I accept that. But for the last 22 years I have been taking a drug called Benztropine (Cogentin) which was originally prescribed to me to treat side effects of an anti-psychotic I was taking back in 1990...

www.dpselfhelp.com

That's right. And to get a prescription you need to have the corresponding symptoms

"
But for the last 22 years I have been taking a drug called Benztropine (Cogentin) which was originally prescribed to me to treat side effects of an anti-psychotic I was taking back in 1990.
"

Damn it you have some wires touching, don't you.

 

[Trith]

Benztropine Mesylate works for me

I've had Derealization for 22 years and I don't ever expect to recover 100%. But that's ok, I accept that. But for the last 22 years I have been taking a drug called Benztropine (Cogentin) which was originally prescribed to me to treat side effects of an anti-psychotic I was taking back in 1990...

www.dpselfhelp.com

anticholinergic drugs can work for dp

And so can Ayahuasca apparently:

Ayahuasca cured me

Last night I took ayahuasca, most of my dp is now gone. I really signed up just to preach this. I ordered the ingredients online and I brewed the drink, I had slight hallucinations, I was outside looking up at the sky and the sky was dancing, I was dancing with the stars folding and unfolding...

www.dpselfhelp.com

and Sertraline:

Sertraline has helped me to recover

Hello everyone, I thought I would share my experience with sertraline with users on here as it seems to have acquired somewhat of a bad name on this forum. I was scared to try it for months because I had heard of cases where either one's DP/DR had become worse or it had triggered DP/DR in...

www.dpselfhelp.com

and mindfullness:

Cured after two years of being depersonalized

Hi everyone... I went through depersonalization up until a year and a half ago... I am finally cured after two years of being depersonalized... I know exactly how it feels to be depersonalized... You feel numb, don't feel gravity or emotions, don't feel time passing, you don't ever get...

www.dpselfhelp.com

and facing your fears:

CURE 3 STEPS

I am about to give you the steps on how to cure dp/dr Step 1: Not give a fuck--//Now how can someone not give a fuck about a mental disorder? By your own cognitive will that you have 100% control over. Now who are you? You are a glob of flesh that learned to reason through evolutionary process...

www.dpselfhelp.com

and living normally:

Easy cure! I’m cured

I told myself once I am cured that I WILL share my story. I've had dp for a year and it has easily been the hardest year of my life!!!! No one knows how strong we actually are. But there's hope, I finally figured it out and it came so easy!!! I watched "the secret" on Netflix. This documentary...

www.dpselfhelp.com

and having hope:

Deleted

Deleted

www.dpselfhelp.com

Wow, it's incredible, there are 2,823 different threads in the recovery sections, almost each of them describing something that worked for someone. 2,823. Its 2,822 more than the one you picked. Why isn't everyone recovered already with all these solutions at hand? Why did it take you 11 years... Could it be that individual testimonies are interesting to know about, can prompt people to try some things, but don't prove anything regarding the rest of the population?

edit: Oh and let's add prozac:

Recovered a while ago with the help of Prozac. Here is...

I used to have anxiety which I never knew I had for so long, I have always thought that it was my insecurity, shyness or just personality overall. Until one day my brain couldnt take it anymore, had a huge ass panic attack and I got Derealization disorder. That was when I finally went to get...

www.dpselfhelp.com

Everybody, please all take prozac now.

 

[Trith]

And interestingly, one of the effects of lithium is to inhibit acetylcholine

And interestingly, as I told you already, I had lithium for more than two years at 1g a day and it did not affect my DPDR a single bit... But Sertraline removed my DPDR in just four days and there are a few testimonies of other people who were helped by Sertraline. Do you see me running around saying that I have found the cure that will save everybody and that they have to let me guide them to the light? No. Because there are plenty of people for whom it doesn't work, including you, leminaseri and countless others. So yes, it's cool. But a tiny bit of self doubt is always welcome.

 

[Trith]

I say again, it is not mandatory and I don't know if you are taking lithium or not, but if you have been taking lithium for 2 years but it doesn't give a positive answer, then why do you continue? Why not try a new treatment? Why do you think you are a robot if you take a pill? Or are you going to get worse? Worse than dp or is your dp not yet severe enough to need a new pill or are you scared ? with all due respect

Wtf... I already gave you all the reasons why I said what I said, why do you have to not listen to them and make up new ones? I am not saying it will not work, nor do I think that, I am saying you should not tell people what to do like you are a/their doctor. That's still true whether this treatment can work for DPDR or not. It's irrelevant. Also guess why I took lithium for two years given everything I have said about getting a prescription, I got a prescription because my psychiatrist thought I had symptoms of a mood disorder, absolutely not related to DPDR. And why do you think I think I will be a robot if I take a pill?? Where did you get this from? Where did I say that? I already tried many anti-psychotics, anti-depressants, a benzo, lamotrigine, and naltrexone, I have nothing against the principles of getting meds, I even was the one who insisted with psychiatrists on trying different things. Is this puzzling to you? Why in the world then would I criticize you when you are offering a possibility of a treatment if I am not afraid of meds? mmmh, I really don't know.... Or could it be for the reason that I already wrote maybe ten times and that you don't seem to compute? Have you read any of my answers to your comments? And why do you think my DPDR was not bad enough?
You really don't get it, you really don't understand what I am telling you, do you? Should I write it again? I am saying you should not tell people what to do like you are their doctor. Erase all the rest from your mind, keep just this. Don't make up a secret agenda. That's all there is. That's all I'm blaming you for. But I already know the sentence I underlined will not compute for you. Just at the point where I am saying you are acting out of ego your mind will just go blank like a popping bubble of soap. Because you don't even see anything wrong with doing what you do, so I must be secretly blaming you for something else.
That's the problem with controlling people. They can't see anything wrong with being controlling. And even if others act in a controlling way with them, they don't see what's wrong with the principle of being controlling. They will say controlling is ok, but the actual problem with other people's controlling is just that they are wrong. But the controlling person is right, obviously (which is what absolutely everybody on earth thinks, by definition, but controlling people think that for them it's necessarily true because they are special). Look at you, that's all you can do. Even in this post now you tell me what to do on totally unrelated matters and you can't mind your own business. You think I took lithium for too long, it's absolutely not related to anything we talked about but you already think you know something about it that you want to teach me. Like you have read two lines about me taking lithium and now you think you have something to teach me to fix me. And earlier you assumed I had it easy with DPDR contrary to you who had it for 11 years. But if I told you for how long I had it I already know what would happen. If I tell you less then 11 years you will tell me that then I don't have your experience and that's why I don't know, and if I tell you more than 11 years, instead of accepting that you were wrong you will just change topic as you just did and tell me that if I had it for this long it proves that I don't have the right mindset contrary to you, or I don't know what, and then I have to learn from you. For lithium, I just say it didn't work for my DPDR and you feel the need to prove me wrong on the fact that I took it for two years even though it has nothing to do with this conversation. That's what people like you do. And you don't see anything wrong with it, I know. Because there is nothing wrong with controlling people when you are right, and obviously you are, otherwise why would you feel like you are right? Controlling people like you don't think there is any problem with being controlling, they even think they are doing the world a favor by sharing their deep knowledge about the truth. And of course, why give arguments? Why giving people information and letting them make their own opinions? Why would people need to have opinions when they can directly have the truth from you?

Frankly this is too much for me too. I got some positive things from this forum, but there are far too many people like you coming here. I wouldn't be surprised if it had something to do with DPDR predispositions too because nowhere outside of DPDR communities have I seen such a number of geniuses playing coach. That's what DPDR'ed people do, trying to control their perceptions even in the minute details, controlling their minds, controlling every aspect of their thoughts that feel weird, controlling their disease, controlling their symptoms, and when they recover they think the universe just validated their genius controlling mind so why not go into people's lives and get the satisfaction of correcting them with your magic light of truth that you just acquired, because "other people's problems are always so easy! Ah such fools..." You should get the right mindset, you should believe in god, you should not believe in god, you should take meds, you should not take meds, you should quit pornography, you should take this in the morning, you should change your diet... Everybody has the truth for all the others, doubting and not knowing is just totally foreign, and even giving the reasons for one's beliefs is useless now. Because it's the truth, so why check anything.
So I should really stop these debates. But I will try to limit myself to sharing personal things really relevant to my DPDR and just block all the compulsive advice givers seeking an ego rush, if any. That's if I am not banned before. Because last time I went into this kind of argument I got a ban threat by a mod who was totally oblivious of the same things.

 

[Trith]

Could you please tell me more about sertraline ? I got it prescribed and I am seeing more and more people post on different platforms that sertraline, you could say, cured them in a few days.There is lot's of fearmongering about ssris, so I am not sure.Especially media going as far as saying that drugs like sertraline were a cause in mass shootings and other crimes.How did it make you feel after 4 days ? Did it cause emotional numbness ?

Sure. I was prescribed sertraline even though I suspected i had a mild mood disorder, and apparently it is well know it should not be prescribed to people who have a mood disorder because it can cause a manic episode. I had some very pleasant feelings 45 minutes after taking it that lasted a few hours. Then strong insomnia starting the first night and maybe something like hypervigilence. It increased gradually, and I felt weird and my dpdr started decreasing on the third day, and then I got a few auditory hallucinations. On the fourth day my dpdr was gone. I did feel some numbness, like impossibility to cry although I felt "good" sadness coming up, which was frustrating (I've heard the same from a couple other people on some forum). Also rapid decrease in libido and sexual numbness and impossibility to reach orgasm. So I took it only four times and had to stop because of the side effects, mainly the hallucinations and hypervigilence. And also a lot of nausea.
But this is really not typical from the several testimonies i have read. Also a friend took the same dosage (50 mg/day) and was absolutely fine and had zero side effects even after a month. So I think there is a lot of variability.
My psychiatrist told me that typically when people have side effects like nausea and insomnia it lasts for the first week or so (not sure about the duration) and then it gets better. But the hallucinations are really not typical but they told me it is probably a sign of a manic episode, which means I can't take SSRIs alone, without a mood regulator.
I also read about post SSRI sexual dysfunction, PSSD, which is permanent sexual problems even after the meds are discontinued. I read some scientific articles saying it is super rare but that it seems it does exist and is not understood. My then psychiatrist laughed about it but some people online said it happened to them. I decided to try it anyways because it's rare.
Overall my mood was better during the treatment, and very good when my dpdr was gone.

 

[Trith]

‏You tell me you take 1 gram of lithium daily, the dose of lithium is 300 mg, if you take 3 pills it can 900 and if you take 4 pills it cab 1200 , how can you add another 100 mg of precision For you who are so precise and skeptical? Are you sure you are taking lithium carbonate

Omg... Thanks for confirming what I said about you never doubting yourself. You are a math genius apparently, but you are lacking the most basic ability to imagine there might be some things in the world that you don't know about. Also, to anticipate your next epiphany, "sécables", in french, means you can split them in two.

 

[Trith]

View attachment 4899
View attachment 4900

So it talks about 12 people, why did you say 6?

 

[Trith]

So it talks about 12 people, why did you say 6?