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Member Since 24 Jan 2015
Offline Last Active Aug 31 2020 07:03 PM

#349674 Neurologist status updates...

Posted by samguan on 25 February 2015 - 01:58 PM

I understand where you are coming from but I want to make it clear that I did not hide anything. What I described to him was exactly what I feeI. I said my mind and my memories are foggy, time feels weird, just don't have the same mental clarity as before. Days seem blurry, what I did yesterday seems blurry.

I didn't use the word derealization(I used brain fog because it seems to better describe my symptoms). When I mentioned Visual Snow he was like what?? What is that? What do you mean static!

For some people, 90% of their symptoms are unreality, for me 90% of it is foggy mind.

But you have a good point, I will used the word derealization in the follow up meeting with him next time!

#349669 Some please tell me whats happening

Posted by samguan on 25 February 2015 - 09:55 AM

I thought I was crazy too when this first started, I was scared and I could relate to every possible illnesses in someway. Now that the anxiety has gone down, I don't have that problem anymore. Your brain loves to trick you!

#349222 100% cured

Posted by samguan on 10 February 2015 - 04:42 PM

That's great to know... I've had mine for just over a month, nothing made sense in the beginning, everything just felt off and I felt disconnected from everything, lost interest in everyhing. Severe fog!

In the past week, things are getting better, I felt more connected and starting to feel my old self again. Appetites back, interest in work and hobbies back.... Mentally I'm doing 10 times better now! Fog is still there but sometimes a lot less foggy, good sign!

I had lots of anxiety and little depression leading to this crap, turned my world upside down!

In the beginning I could barely do anything, just trying to figure out what could have triggered it. Well it doesn't matter because it ain't going to solve any problems!

Get out and act and try to be yourself!

#349107 SPOILER: I have found no cure for my DP.

Posted by samguan on 07 February 2015 - 10:04 PM

I think there is no point of arguing if there is a cure or not, no one knows. What we need to do is work together and get the stories heard! Take for example, this Florida woman developed visual snow and started a campaign to raise money she got over $50K in couple months and there is a small team of neurologist looking into the visual snow thing at this moment and they are dealing directly with VS people, even though the $50K will only last 7,8 months of research at least there is something and I've heard after the research they might try some medications. I donated $$ because my brother and I are affected by VS, it doesn't really bother me but it's a big deal for some people.

As long as there research, there is hope for treatment. I'm really looking into contacting her about how to kick start something like that.

#349039 SPOILER: I have found no cure for my DP.

Posted by samguan on 06 February 2015 - 11:36 PM

ya we know.  your point?  everyone should just apply for disability and stay on dpselfhelp 24/7?

#348633 Feel like my life is over. Nightmare

Posted by samguan on 28 January 2015 - 01:06 PM

Sorry for posting again but these symptoms are disabling my whole life.

I was born with Visual Snow, thought everyone sees visual snow, floaters came 3 years ago and those things don't really bug me. 28 years old now.

Leading up to this crap: headache, low mood and really irritable like I was about to go crazy, something just didn't feel right, I was suspecting depression. (Lasted 1 month). Have anxiety all my life and lots of stress and anxiety leading to this as well.

Started with derealization, had that once before but only for a very brief periods of couple minutes and this time it's like a deeper state of that.

-Cant feel time
-memories seem distant, even if it had happen few minutes ago.
-Concept of everything has changed
-things don't register anymore.
-70% of my brain is shut down
-can't visualize past and future
-feel like my brain is trapped
-everything just don't make sense
-felt like I'm a completely different person
-still remember my old self, just can't get back to old self, only can get back by acting.
-everything seem very distant
-lost motivation
-can't enjoy anything
-don't look forward to anything
-can't visualize anything happening outside of my room
-barely getting by at work
-used to wake up with lots of thoughts, no more, blank
-severe brain fog

What's in progress
-blood test(doubt anything would show up)
-asking to have a brain scan or neurologist.

Saw psychologist, didn't know anything about my symptoms.

Don't know what to do.... Losing help... Has been like this for a month and it's nightmare! I would only find relief at night for some reasons, I can actually find joy but only at night. Things do come more closer and connected at night but still not as before.

I feel like mine is 10 time more serious than anyone here on this board.