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Angular Gyrus trail still not finished


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#1 Mayer-Gross

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Posted 08 February 2021 - 08:18 PM

One I know, had yesterday been in contact with the French researcher behind the rTMS trail at the right angular gyrus. The trail should according to the design from 2015 be a placebo controlled with a 100.patients. Last year they hoped to be finish around sept 2020 but they are still open for patients living in France. 

 

This is really depressing that a trail can take more than 6.years because they can not locate a 100.patients in the Paris area. Research into depersonalization was until recently done at two small units in London and New York that made some small examinations like brain scans and small trail,- clearly underfunded if one looks at the sizes of the patients used. Now, these are closed. 

 

So, the only research there is are some small studies done in other european countries. This is not enough if there shall be some hope of a treatment. 

 

The unawareness and that it is still highly undiagnosed seems to be the core problem in getting founding, recutting patients for doing more research into this condition. Deeply concerning. 



#2 WithYourSigh

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Posted 09 February 2021 - 03:31 AM

Can only French citizens be accepted to the trial? Are you aware of the means the researchers are using to recruit subjects?



#3 Mayer-Gross

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Posted 09 February 2021 - 04:38 AM

Yes, only French citizens can be a part of the trail with a referral though the French health service. This by itself can give these limitations. I live in Denmark and our health service is divided into 5.regions. If you have any health problems it is your region your are in that adresses your problems. There might be a specialist service in another region so your region have to refer you to this other service in a another region with the money too for the other region to treat you. Such a system is also in place in the UK. When the depersonalization research unit was active you could only get access to it though the national health service in the UK. If you lived in the same part of London as the research unit you could easy get a referral though your GP. But, if you lived in other parts of the UK your had to go though a very bureaucratic process because it was the region you where in that had to refer you to the other region with the money to, to look at you. It could take years to get a referral and some never got it. If you was under 18.years at your outset you could not get a referral as it was a a clinic for adults. I think there could be  similar systems in place in other parts of Europe like France. It can be that it is easy to get into the trail if you live in that area of Paris with the trail but you have to go though a very bureaucratic process if you live in other parts of france. 



#4 WithYourSigh

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Posted 10 February 2021 - 06:17 AM

If the French healthcare system is indeed similar to the British and Danish ones, as you described, it is understandably unfortunate and inevitably acts as an obstacle in the recruitment of patients in any kind of study, let alone in DP studies. In my eyes, all online DP communities should make an effort to promote the French study to reach those living in the Paris area who may benefit from participating in such a study.






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