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Lyme or other tickborne illness causing dpdr?


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#1 Knicole0214

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Posted 05 July 2020 - 01:28 PM

Who is considering lyme or another tickborne illness could be underlying cause of your dpdr?

I'm on the 2nd provider saying mine is. Granted, both are lyme literate and my current had babesia herself.

I'm not into political argument, so please kindly spare me the "chronic lyme doesn't exist" spill. I question myself daily. I want to hear from those who might have other reasons to believe theirs is tickborne or other vector . In the bartonella world, it has been known to cause dp and it's from a variety of vectors including cats, fleas, etc.

#2 Saschasascha

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Posted 05 July 2020 - 02:41 PM

What makes you think lyme is causing your DP?



#3 Knicole0214

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Posted 05 July 2020 - 02:59 PM

I got infested with ticks and started having dpdr. Never got treated .

Lyme lit psychiatrists say Lyme and bartonella can cause neuropsych symptoms if untreated.

Keep in mind, for me... I have many other Lyme symptoms. Some people have more or less.

I also have positive blood test for bacterial flagella and positive bartonella test.

I've considered retesting with other labs just to see.

#4 Chip1021

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Posted 06 July 2020 - 01:56 PM

I was diagnosed and treated for purported Lyme disease for 2.5 years. Did I ever have Lyme? Who knows. I had one Commercial test say I was negative. Criticism says those tests lack sensitivity. I had another Igenix test show me floridly positive. That test is criticized for being overly sensitive and lacking in specificity. So what should I have done?

Well, this was my reasoning. I’ve had my symptoms for at least 16 years now (at the time of my treatment it was about 12 years). Been to several various doctors. Only diagnoses I could get were mental health ones, which are not valid medical entities. But I had tried various treatments for them, both medications and talking/behavioral therapies. I was only getting worse. My symptoms also seemed to vary minimally as a result of my emotional state whereas they varied greatly with changes in the weather (e.g. feeling more rotten when it’s raining and intense brain fog and muscle tightening during humid weather), suggesting to me an organic source of some form or another. My symptoms are also highly disabling. I was aware that prolonged antibiotic treatment has questionable efficacy and there are risks involved. But a cost-benefit analysis suggested to me it was still worth the risk. Did it work? Well, it did seem to greatly improve some of the gastrointestinal issues I had been having for years, but the far more disabling neurological and cognitive problems did not improve, unfortunately.

So my advice to you would be, in the absence of diagnostic certainty, try to be rational about it, at least. Ask yourself:

Do you live in a Lyme-endemic area? Did you spend a fair amount of time outdoors and in nature prior to developing your symptoms?

Was there an obvious psychological trigger to your symptoms? Do you experience any symptoms other than DP/DR? What is their nature (be as specific as possible)? What factors, if any, result in a fluctuation of your symptoms?

How disabling are your symptoms to your life? Would the potential for improvement be worth the considerable resources it would take to undergo treatment for suspected Lyme?

Feel free to send a private message to me if you wish to discuss further.

#5 forestx5

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Posted 07 July 2020 - 07:59 AM

I considered Lyme as a source for my neurological/psychiatric issues.  I have spent a lot of time outdoors and have been bitten by ticks. I never noticed a bullseye rash or anything like that, but no one

can argue that Lyme causes neuro-psychiatric symptoms.  Lyme is difficult to diagnose reliably, so it is reasonable that anyone suffering chronic neuro-psych symptoms who was ever bitten by a tick,

would want to rule out Lyme. And, that is not as easy as it might be.  On the other hand, there are a lot of other reasons to have neuro-psych symptoms which makes Lyme disease less likely.

I noticed that hamburgers and other meats don't have the same flavor as used to be. Did I lose my taste buds as I aged?  Is it the antibiotics they are using on pork and beef? Or, did some pathogen

I got from a tick bite remove my sense of taste?  LOL.  Llife is sure complicated.






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