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Giving my P doc a list of 4 meds.. advice pleaseee


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#1 CK1

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Posted 19 April 2017 - 10:33 PM

Hey everyone, 

 

As the title hints at, I am going to my Physiatrists and man is gonna hate me as I have wrote him out 3 page gift for him to take home, first page is how many DP affects me, second kinda on why I should get clonazepam mainly lol, third is the one I want to share (hoping to get this to 2 pages to stand a chance of him reading it).

 

I want to let him into 4 possible DP treatments (out of 14 I rate/read good things) just so I can plan my next move and let him say now what he thinks of them before I waste both our time as I might need to go to Kings College as he is saying NO a lot. At the moment we have only agreed on Lamotrigine after showing him kings college (Number 1 on my list) no Clomipramine or Clonazepam.. (because i am bipolar and clonazepam as it's addictive)

 

What do you think of this order? / anything you'd switch out for something else... this guy knows nothing DP so hopefully gonna be his study list. Wish we had a top 10, this is my top 3 + number 4 I am hopefully allowed soon for ADHD anyway.

 

1. TRY Antidepressant (Clomipramine preferred) + Lamotrigine 400mg + 4mg Clonazepam (Kings College)

Gave him the Kings College Report 

 

2. Modafinil with Mirtazapine 

Referred to as ‘The hidden pearl by Dr Evan Torch’ DP specialist. Often Kings College DP centre’s next line of defense according to patients I know at the centre. 

 

3. Suboxone

Studied for DP by Simeon et al who has seen 30% reduction in trails, while studies conducted in Russia show much higher results, in fact, Suboxone is the first line medication in Russia for DP. 

        

4. Addreall / Ritalin – Many success stories noted online, usually used with Lamotrigine or Anti Depressant, I’ve read in the UK often short term trails are given to patients to note if they have any improvements.

 

 

This make sense? 



#2 Marinkawr

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Posted 20 April 2017 - 03:41 AM

It is hard to say, you never know what will work for you. Naltrexone just made me too sleepy and thats it, but studies show that it is a good one for dp. I personally take cymbalta and it does magic for me, but many people who take it do not succeed. Especially if you are biopolar it is only doctor who may give you something according to your condition, because you don't know the chemical reaction of different meds with each other.
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#3 Hedgehog fuzz

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Posted 20 April 2017 - 03:56 AM

I don't know man, I would say number 1 (assuming that it will be ok given your bipolarity). Ideally, it should be the doctor giving these combinations though shouldn't it? I acknowledge that if he won't, you have to take matters into your own hands like I have to. You should go to the DP Unit if you can, you need the best treatment you can get mate.


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#4 Broken

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Posted 20 April 2017 - 06:52 AM

I assume you are seeing this psychiatrist privately? If so, and hes saying no a lot why not just change? I had this with my GP for many years, and it took me too long to change because he came across as nice, but ultimately refused anything that had the potential to help. 

 

These all sound good to me, lamotrigine did me no good but has proven helpful to others. 

 

My condition seems to be improving with my gut pre/probiotics approach alongside mindfulness and exercise. Definitely better sleep, more relaxed and more emotions. Not much change in DP/DR yet but am hopeful. Would recommend trying other approaches whilst waiting for meds. Try not to put all your eggs in one basket as ANYTHING can help, and anything that helps... helps :)



#5 b7wagon

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Posted 20 April 2017 - 07:44 AM

clonazepam sure makes life easier, i was on it for a number of years. With that being said I'm not sure of it cures anything rather than mask the problem.

#6 Hedgehog fuzz

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Posted 20 April 2017 - 11:54 AM

what is the problem and how can we unmask it? does unmasking it lead to recovery?



#7 CK1

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Posted 20 April 2017 - 09:22 PM

Thanks Marinkawr i'll put Naltrexone beside Suboxone, kinda similar but different. Was talking to my doctor about my list before I seen him and he was like Suboxone and Naltrexone are gonna be very hard to he is guessing a straight NO. But in my report I say all NHS trailed for DP, so if he has any kinda of open mind he might think about it. Cymbalta? yeah? i've never considered it at all. Might go through the typical list first but thanks! 

 

Hedgehog we talk all the time so you are filled in but thanks, yeah they should but, as i said can't get too wound up at the fact I have to present him with somethings, it's the fact when they aren't open minded that gets me, I know this guy isn't thinking about me when he gets home and puts the kettle on... as for DP centre i'm giving this guy 6 months, if he doesn't take this seriously enough onto DP centre I go, it's just complex, being bipolar I need one doctor to keep me right, as bipolar is a lot more dangerous than DP. 

 

Broken, I wish you had a nicer user name, you might feel it but you aren't! 

No, i seen a psychiatrist on the NHS, took 8 months to get one of being manic and went through over 60 zopiclones a lot of missed sleep and the story just get's worse from there, told 6 different psychiatrists I was bipolar in London over them months and none of them thought i was, eventually had to move back to Northern Ireland, went to my GP, sent me an emergency appointment to see my P Doc and first half an hour he said "you are bipolar2" was that simple. I was like "THANK YOU, i knew that like a year ago!" 

Anyway that ended up a story. But felt it's needed as having a P Doc not private is a mission. I can't change, was told we only have 1 even though I read the board and there is 2? same old story.. anyway, my only options are to keep seeing him and get bipolar sorted and see what he does for my DP, if nothing go to Kings College. 

 

Lamotrigine is what I am kinda pinning too much on, but i just need some hope, if it even got my blank mind away and emotions, i'd be out. I'd stick around for support but I'd cash in. 

 

I get the mindfulness thing if you have thoughts, when you have no emotions at all or thoughts all day is mindfulness, it's just a void, i am guessing you are the opposite? also link me up with pre/probiotics you take, i'll have some of them and i've started walking, so in a way I am following you with that.

 

I defiantly don't put my eggs in one basket, that's why i am 4 meds ahead when he is considering the first one! 

 

B7wagon yeah i 100% agree, i even say in the letter, it's not a cure, it's to allow me to find the cure. Bipolar+DP is extreme in the fact when your mood goes low your anxiety sky rockets, i just think my brain needs a break from it and so do I to allow me to do other things, i know that even if you were on 10mg a day it's never gonna fix anything, it's just a masker. I think Kings College do it to give the brain a break and the mind while treating it with other meds. I do have an addictive personality i'll grant you that, I also don't feel Clonazepam till 4mg. I was given 10mg Diazepam this week by my doctor and it was like sugar tablets, but then again so was the 2x 7.5 zopiclones... say's something



#8 Hedgehog fuzz

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Posted 21 April 2017 - 07:39 AM

exactly. what point, or application is there for mindfulness, when it comes to the DP void? I suppose you can do your best to stop and accept the void and everything that is going on, but it's veery different to the old racing thought-filled mind that i used to have. oh that delicious mind that i crave back so much 

 

also the DP Unit will probably have seen other cases of bipolar comorbid with DP. You can't have been the only case and I think they are probably the most proficient doctors in the country (well, ok, maybe not, but you don't get a post in the Muadsley by being any-old doctor).


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#9 CK1

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Posted 21 April 2017 - 11:23 AM

100% agree that's why my p doc doesn't really know it but he is on a time limit. True they must have dealt with it more than a few times. 

 

Yeah there is very different types of DP, there is anxiety racing thoughts, existential, panic 24/7 or there is me, numbed out so much i'm in a void, it's like constant meditation, no anxiety in the mind, just there but not thoughts or anything... need different approaches and until i got meds as said 1000 times i know but the only time that void ever changed was 3 months on Mirtazapine, two years without meds and i haven't had one thought, weird some people want this... my mum thinks it sounds great.



#10 Hedgehog fuzz

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Posted 21 April 2017 - 12:09 PM

I like your style. Put the law down. 

 

Yes I agree, people seem to exhibit different symptoms and manifestations probably due to individual differences, drug induced (if applicable), personality and psychology etc. I do have a theory that even in people who have no anxiety in the mind, are actually anxious or dealing with trauma or repressed emotions and memories and even bodily sensations that it basically puts you in such a hyper vigilant anxious state that you feel nothing. Almost like when you run your hand underneath freezing cold water and you feel its biting cold but you don't actually feel any sensation. Its just a theory, lending weight from the repression and suppression schools of psychology. 

 

I have the existential stuff. Constantly thinking about death and thereafter. Waste of time frankly. Death will happen to us all - there are kinds with terminal illnesses who go out like soldiers and not complaining. Thereagain I do need to be compassionate to those feelings of suffering and try and respond warmly. 

 

It does seem that meds are important. I think its important to consider everything else, but not to overlook the value of proper effective medication (and not bullshit treatments or stuff that does not work). 

 

I don't think your mum understands - nor does mine. The blank mind/no thoughts sounds very similar to what people want to get through meditation and having a break from the constant racing or critical thoughts. But the avenue to get there and the eventual result are different to DP. They look similar but are not related. This is not some kind of psychological improvement or state of enlightenment - it is more like the fucking tsunami that washes everything away. 

 

Also people don't understand. We DO have thoughts but not the same quantity/profile/features/mental content and mental orientation that we used to. Obviously we have thoughts  cuz we are not dead, but the blank mind is hard to understand and I think is a debilitating symptom. It's a complete motherfuka. 



#11 b7wagon

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Posted 21 April 2017 - 05:54 PM

I'm back on lamotrigine, small dose of 50mg i dont know how much it effects my dp but it for sure helps my depression. It's very good for treating bipolar. Imo it's a better version of lithium
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#12 Hedgehog fuzz

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Posted 22 April 2017 - 04:32 AM

Are you bipolar? Or do you just have depression? 

 

EDIT: It does sound like you are bipolar form what you wrote, but I would like to confirm.






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