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B12 deficiency


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#1 mrt

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Posted 15 April 2017 - 01:12 PM

I'm pretty sure a fairly large percent of us are going to have a B12 deficiency. I also have a low blood platelet count, which can also be a sign of B12 deficiency and my doctor refused to test me! (because the cells themselves weren't enlarged)

 

It turns out that may be a good thing, as the standard B12 serum test not only has the lower end of 'normal' set very low (110 ng/1) but is not a true reflection of usable B12. 'Inactive' B12, unusable for your body can count for up to 80% of this reading. So, even if you've been tested, you could still have a deficiency! And if you fall into this category, you really need injections to resolve it.

 

I've ordered a private 'Active' B12 blood test, I'm actually hoping its low as would provide an answer to all this. I'll update again once I have the results,

 

I happened across this story...

 

"I felt I was stuck in a dream, or underwater" "I felt drunk without having had a drink" "I feel as though I’m 20 seconds behind"

 

http://www.mamamia.c...b12-deficiency/

 

Here's a (very long) list of possible symptoms..

 

  • Tinnitus
  • Tremor
  • Paresthesia - numbness, tingling and pain
  • Confusion / disorientation
  • Weakness of legs, arms, trunk
  • Impaired vibration - position sense
  • Abnormal reflexes
  • Unsteady or abnormal gait / falls
  • Ataxia (Neurological disorder affecting balance, coordination and speech)
  • Balance problems
  • Difficulty walking
  • Dizziness
  • Restless legs
  • Visual disturbances / decreased-blurred vision / damage of optic nerve
  • Forgetfulness, memory loss
  • Dementia / intellectual deterioration
  • Impotence
  • Paralysis
  • Impaired fine motor coordination
  • Muscular spasticity
  • Bladder or bowel incontinence
  • Impaired pain perception
  • Nocturnal cramping
  • Disturbance in taste and smell
  • Optic atrophy
Neuropsychiatric 
  • Confusion/disorientation
  • Psychosis
  • Post natal depression
  • Hallucinations
  • Memory loss
  • Delusion
  • Depression
  • Suicidal ideation
  • Mania
  • Anxiety
  • Paranoia
  • Irritability
  • Apathy
  • Personality changes
  • Inappropriate sexual behaviour
  • Violent/aggressive behaviour
  • Schizophrenic symptoms
  • Sleep disturbances
  • Insomnia
  • Changes in taste, smell, vision, and sensory/motor function which can be mistaken for psychiatric problems
Haematological signs and symptoms
  • Anaemia
  • Macrocytosis (large red blood cells)
  • Hyper segmented neutrophils
  • Generalised weakness, fatigue
  • Breathlessness
  • Pallor / jaundice
  • Chronic fatigue
Vascular Problems
  • Orthostatic hypotension/ Postural hypotension (low blood pressure when standing, which can cause fainting and falls)
  • Postural orthostatic tachycardia
  • palpitations
  • Occlusive vascular disorder
  • Transient ischemic attacks (TIAs, or 'mini stroke')
  • Cerebral vascular accident (CVA or 'stroke')
  • Myocardial infarction ('heart attack')
  • DVT - Deep vein thrombosis (blood clot to the leg or arm)
  • PE - Pulmonary embolism
Female Male Gastrointestinal - signs and risk factors
  • Loss of appetite/weight loss or anorexia
  • Epigastric pain (poor digestion, bloated feeling after eating small or normal sized meals)
  • IBS - Irritable bowel syndrome
  • Constipation
  • GERD - Gastric reflux disease - ulcers / mouth ulcers
  • Giardiasis
  • Pancreatitis, pancreatic exorine insufficiency
  • Decreased stomach acid
  • Gastropareisis
  • Helicobactor pylori infection
  • SIBO Small intestinal bacterial overgrowth
  • Gastrectomy (partial or complete) - bariatric surgery
  • Illeal resection (partial or complete)
  • Malabsorption syndromes - Crohn's disease, coeliac disease etc)
  • Liver disease
  • Diphyllobothrium latum (fish tapeworm)
Additional Signs and Symptoms
  • Dry cracked corners of the mouth
  • Premature greying
  • Glossitis - swollen / sore tongue, geographic tongue
  • Fainting/light headedness
  • Osteoporosis
  • Fractures
  • Suppressed activity of osteoblasts (cells that build bone)
  • Symptoms mimicking Parkinson's and MS
  • Nominal aphasia - difficulty recalling names or words
  • Radiculopathy - chronic pain disorder
  • Increased susceptibility to infections
  • Poor wound healing
  • Malnutrition
  • Enlarged spleen (splenomegaly)
  • Enlarged liver (hepatomegaly)
  • Skin hyper pigmentation or hypo pigmentation
  • Poor antibody production following vaccines
  • MTHFR Gene mutation


#2 Chicane

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Posted 15 April 2017 - 01:39 PM

I was just reading about B12 deficiency the other day, where one woman was talking about a long list of unexplained symptoms she had that resembled the ones we experience with DP. They progressively got worse, with doctors having no answers. She dealt with this for 20 years before discovering she had a B12 deficiency, and recovered completely once she started getting shots for it. I wish this explained my own symptoms, but I was tested and only had a slight vitamin D deficiency. Still, from what I've read, some of the ranges that are considered 'normal' are pretty off. I also wonder if someone could show as being within the normal range while having absorption problems or something along those lines.


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#3 mrt

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Posted 15 April 2017 - 02:40 PM

'normal' are pretty off. I also wonder if someone could show as being within the normal range while having absorption problems or something along those lines.

 

Yep, seems you can. Do you know it it was a serum B12, or an active (HoloTc or Holotranscobalamin) test you had?



#4 mrt

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Posted 16 April 2017 - 06:20 AM

A GP called Dr Chandry had started treating anyone under 300 ng/l (well up into the 'normal' range) if they had fatigue/neurological symptoms with success for people with fatigue, ms and depression.

 

There's a short BBC piece about him here. Unfortunately he was banned from continuing the treatments.

 



#5 Chicane

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Posted 17 April 2017 - 08:08 AM

Good stuff mrt. Not sure of the test I had, but this thread has convinced me to try B12 sublingual drops (far better absorption rates than pills from what I understand). I started yesterday, it's 20,000% the daily recommended amount. Hopefully there's an improvement, I'll update over time.
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#6 mrt

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Posted 17 April 2017 - 08:45 AM

Good stuff mrt. Not sure of the test I had, but this thread has convinced me to try B12 sublingual drops (far better absorption rates than pills from what I understand). I started yesterday, it's 20,000% the daily recommended amount. Hopefully there's an improvement, I'll update over time.

 

Fingers crossed.



#7 Phocus

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Posted 17 April 2017 - 12:36 PM

I was terrible yesterday after my DR being x10 worse but then I took some B12 pills and today I'm feeling x50 better. I'm going to keep taking them to see how I do with them and if they keep helping me. It's worth a try for anyone thinking about taking them.



#8 mind.divided

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Posted 17 April 2017 - 01:45 PM

It's especially common for vegetarians to have a b12 deficiency 



#9 Phocus

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Posted 17 April 2017 - 08:30 PM

It's especially common for vegetarians to have a b12 deficiency 

I'm actually from a vegetarian based household, my mother is a vegetarian and I was a full on vegetarian till about a year ago so I rarely eat meat unless she's cooking it for guests . I've had anemia before whilst I was a vegetarian which is why I started eating meat again. I'm going to try to get my mother to start cooking me more b12 rich foods and I'll take supplements too and see if it affects my DR.



#10 mrt

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Posted 01 May 2017 - 12:04 PM

I got my results back, they were at the bottom end of normal. Did anyone have much luck continuing to take it?



#11 Chicane

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Posted 01 May 2017 - 12:12 PM

I got my results back, they were at the bottom end of normal. Did anyone have much luck continuing to take it?

 

Glad you got some results you can work with. I've been taking the sublingual drops since we started discussing it earlier in the thread, but not feeling any better so far. I'm not sure if it's just unlikely that this is the cause for any of my symptoms, or if I just need to give it more time.


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#12 mrt

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Posted 02 May 2017 - 07:34 AM

Glad you got some results you can work with. I've been taking the sublingual drops since we started discussing it earlier in the thread, but not feeling any better so far. I'm not sure if it's just unlikely that this is the cause for any of my symptoms, or if I just need to give it more time.

Still early days, starting mine too. Would be nice if it was that simple. 






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