39 replies to this topic

[NODID]

To save the moderators the work:

I think a post discussing if a difference does or does not exist between the two groups should be posted for a different thread. I would be able to answer some questions based on the data gathered from this group and our research and the information in other literature.

However, because I noticed a publication in a high impact journal (and notable not written by Dr. Simeon) that states the interest in DPD was growing and attributed it to the Internet support groups, which this happens to be the core and also the one that usually sprouts others, I was hoping that the community would have some hope in knowing that you are not going unnoticed simply by being here. It also was a way to demonstrate the hard work of the participants who took the long survey from us many years ago, and I was repeatedly asked when the publications would come out and how could it make a difference with doctors and researchers. It took forever to come out because this is just the nature of the business, and because we did it without a salary or grant, and only enough donations to help with some statistical software costs for my local computer.

I should also note that NODID is really nothing more than a few people, although relatively well-networked, who are passionate about research and not a large company.

Cheers,

David

[Sean 561]

Really, I have drug induced DP and it's still here after 18 years.

Me too, 25 years here

[codeblue213]

Yep, drug induced DP doesn't just "fade away". Sad truth

[Dreamer*]

"[font="Century Gothic"]SWEET BABY RAPTOR JESUS THIS IS AWESOME."

ROFL!
I like that.
I hope Jesus isn't a shape shifting reptilian robot skeleton with flaming hair or something, LOL.


I wish to GOD my medical resident psychiatrist would acknowledge this illness to begin with. I am SO tired of ignorant mental health professionals I could SCREAM BLOODY MURDER.

However, each case is unique. Sadly I have had DP/DR for basically 51 years. Well, I had experiences at age 4/5, episodic in childhood, and chronic since @20 ... I have never taken a rec drug in my life.

I still think there is hope in ANY research and this in particular.
I am SO, SO tired. My meds help mainly. Therapy helps me cope.
What is difficult is I did come from severe abuse and lack of a family. I think that made things worse. I'm angry about that now.

And thank you David.
I have to keep having hope ... everyone here does.[/font]

[Dreamer*]

codeblue, your signature is rather disturbing as well.

[DPNOrway]

Same here but, to be honest I kind of knew about this already I mean.. When it's not about drugs, it's about anxiety, and anxiety "regens" itself. An anxious person can't get rid of anxiety that easily, while as far as I know DP can be induced by drugs on someone whos mentally healthy right? So a person who has drug induced DP won't have more to worry about than the DP itself, now there might be worse cases which is anxiety+drugs at the same time, that's probably even harder.

thats me right there... i think... im not sure cus i might have gotten anxiety from drugs to

[SnakeyMLT]

mines not drug induced, so are you saying this could go away by time? 0.o?? im sick of this sh!t...

[BusyBee]

Ah man. My DP is not drug induced or anxiety induced. I went through alot of trauma for two years... its gone now.. no flashbacks. I understand what happened. Its gone. Its in the past. I feel emotionally stable and completly unaffected by it.

I guess theres no answers. I may stop looking.

[York]

DP, like all the other psychiatric conditions, are over-analyzed by lab-rats who only see it from the outside. I wish psychiatrist would leave this the hell alone, it's just bullshit! Everything I've ever read about DP written by the medical community is just bullshit.

They look at brain-scans and figures and test-results given by terrified people, and they conclude with some biological nonsense (area 5x9 lights up green in prefrontal cortex left side upper-lobe, that means it's not responsive enough!), psychological nonsense (so your dad yelled at you? You feel anger? Houston, we have something in common in these guys (and all the rest of humanity save Paris Hilton)!! ), and test-results given by someone who is in the middle of dp, and who clearly wants to be taken seriously, has come all the way from wherever, and knows this is the time to really get some help if they just describe exactly how horrible it is.

Why are brain-scans bullshit? Your mind rules your brains chemistry, meaning that if you are in a state of shock, you have activated the brains survival mode, which includes shutting off emotional response, and enforcing rational thinking. It does not show any wires being cut, areas missing or lack of blood. It shows electricity, which changes with mood and the mental state you're in. Sadly, if you've pushed yourself too long, you'll biology takes the wheels and set you on autopilot, that does not mean you can't get to a place where you feel safe enough for it to go back to normal.

Why is psychological tests bullshit? Because the human mind is way too complex! We are all different, we all have hundreds of factors that determine how we cope with life.

Trust in your own ability to heal, this is a coping mechanism. Drug-induced DP goes away because it wasn't set off by inner conflicts, it was set of by a biological response to drug-induced anxiety.

2/3 of people recover from schizophrenia, and no-one knows who many recover every day from dp. One things for certain, and that is that if you make ANYTHING your life's project, it being anorexia, being a nerd, being poor or having dp, it will stick with you.

[Freya4SmilesAgain]

I have non-drug induced...what does this mean for non drug users? Never touched any...Im soooo confused. lol. x.....just read the comment above, i get it now ha. Im dim...i blame it on my DP

[stefisings]

Whether it is drug induced or not....lt is treatable and curible. Its just exhausting!

[Phantasm]

although there's no doubt it can be triggered by drugs, I do believe it's always psychological in origin.
A withdrawing into self to escape painful reality.
I had breakdowns on pot, but I started mentally introverting many years earlier. I just didnt know the future consequences of the patterns I was establishing in my mind. I was just an unhappy little boy. I couldnt know.

[Phantasm]

although there's no doubt it can be triggered by drugs, I do believe it's always psychological in origin.
A withdrawing into self to escape painful reality.
I had breakdowns on pot, but I started mentally introverting many years earlier. I just didnt know the future consequences of the patterns I was establishing in my mind. I was just an unhappy little boy. I couldnt know.

Tbh, Im not sure if its not all covered elsewhere under anxiety and dissociative symptoms.

but the emphasis on these symptoms, of dp and, in my case dr, makes a dubious philanthropic Sotho.

[Phantasm]

Tbh, Im not sure if its not all covered elsewhere under anxiety and dissociative symptoms.

but the emphasis on these symptoms, of dp and, in my case dr, makes a dubious philanthropic Sotho.

Did I post that? I don't even know what that means, and I dont think that's what I was trying to say.

My point was, that theses symptoms are covered elsewhere outside of a specific dissorder.

I appreciate that it is concidered to be chronic when other symptoms have died down and it remains, but all things are relative and perhaps one persons level of (chronic) stress is felt normal in a way it would not be to another - hence a consistent undercurrent of anxiety and related symptoms.

That said, these symptoms OR conditions, although known, are harrowing in a way that is underrecognised, and can certainly be the on-going, most disturbing aspect of dissacociative, stress-related conditions - due to their ongoing nature.

Specific disorder or not, many people who live with these symptoms take them as normal and dont concider or feal they can discuss them, or that they will be recognised without ridicule or disbelief(or without being sectioned)- so I welcome greater emphasis on these fundamentally troubling, often sidelined symptoms, however they are classified.

[jihejihe]

Visitors to the Museum will enter through a Pavilion that will house an auditorium for public programming, a multi-purpose area for contemplation and refreshment and a private suite reserved for victims'family members. Two of the original steel tridents from the Twin Towers will beenclosed within the Pavilion’s grand glass atrium, standing as references to the past, while signaling hope for the future.